cwb66 replied to cwb66's topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsFirst off, I have been off gluten for three days and finally had not stomach pain today. I actually chose to eat something instead of making myself eat something. And I haven't felt sick at all. Then I get home and in the mail are my blood results: negative to celiac and neative to food panel. It makes no sense to me. Why else would I have an inflamed small intestestine, be malabsorptive, anemic, have all the symptoms of celiac??? So here are my results: Deamidated Gliadin Abs, IgA 4 Deamidated Glidadin Abs, IgG 2 t-Transglutaminase (tTg) IgA <2 t-Transglutaminase (tTG) IgG <2 Endomysial Antibody IgA Negative Immunogloblin A, QN, serum 186 mg/ dL reference interval 91 - 414 Basic food profile , all were < .08 kU/L ige Milk ige wheat ige corn ige peanut ige soybean ige pork ige beef ige fish/shell ige egg/whole ige chocolate/cocoa
This is my first post. Just joined. I've had a biopsy and it showed an inflamed small intestine. I'm severely anemic, have malabsorption issues, I've lost 40 lbs over the last few months without trying, I have no appetitite (it actually hurts to eat sometimes), I've had IBS most of my life, I also have chronic migraines. Everything seems to fit with celiac. My GI doctor didn't even mention Celiac to me; he just told me to stop using NSAIDs, which I never take, because they tear up my stomach. So I called my primary care, and she scheduled blood work for celiac (three serum antibody tests) and a food panel test. I'm waiting for those to come back. Since then, I've had "meals" where I don't eat gluten and I don't have pain. When i eat the least bit of anything with gluten, severe pain. I'm convinced that it's Celiac or gluten sensitivity, but I'm almost scared that the test will be negative, and then I'll be back to not knowing what's wrong with me. My question is this, though. Has anyone experienced the inflamed small intestine and had the severe pain associated with it? what did you do for it? When I have a severe attack, I am sore for several days. I don't know what to do or if there is anything that anyone can do to help. I'm ready to go to the ER.