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tj84 added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsNot Diagnosed - But I Think It's Gluten! Is It?Hello,
I have been feeling sick for the last six months, but have been attributing all of my symptoms to a number of other things...
My symptoms include:
-Absolutely no energy (EVER), particularly after I eat. After a meal I need to lie down.
-After every meal (which almost always involved bread) I would feel light headed, almost like my head was in the clouds.
-I feel nauseous all of the time and feel the need to vomit for no reason. This is most intense after eating and has finally resulted in only finding relief after I eat by vomiting.
- I don't have diarrhea or rashes
-A lot of trouble sleeping (tossing and turning), but have recently been diagnosed with sleep apnea
-I stopped ovulating 9 months ago and was diagnosed with polycystic ovarian syndrome - I now take a pill to help with this.
-bloating with abdominal pain and gas
-heartburn often, but only within the last 4 months
-I was having numbness in my feet and hands for a while, but haven't experienced this as much in the last 6 months
-I also have VERY thin hair (not sure if this would have anything to do with gluten though)
I was talking with a friend recently when I had to leave lunch because I felt so ill and she suggested I stop eating gluten. So I decided to stop eating gluten just this past Monday and after only a day I felt so much better. My energy level is like night and day compared to a week ago and I don't feel sick at all (no head in the clouds, or need to vomit).
I went to the doctors today to talk to them about this. I heard the doctor talking to the RN in the hall about how this is just a fad and is all the rage with it being in the media so much lately. They are sending me for blood work for a number of things they seemed to be favouring over anything gluten related. From there they said the only way to test for gluten intolerance is to stop eating gluten and see how I feel. They offered to send me for blood work for celiac on Monday - although I will have been off of gluten completely for 1 week by then (will this affect the outcome of the test?).
I feel like I'm not getting the proper medical advice/treatment. Any suggestions? Do my symptoms sound familiar to anyone?
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