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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About Celiacmama83

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  • Gender Female
  • Interests Spending time with my four beautiful kids and wonderful husband. Gardening, Cooking, Cleaning, and watching movies
  • Location Helena, MT
  1. I've had a lot of blood work and nothing is coming up abnormal. I'm slightly anemic and my potassium is low, but other than that the doc said everything is functioning the way it should be. They just couldn't figure out why I had a severe rash and they might not ever know. Same with an allergic reaction I had a few months ago. Its just very scary. I do believe I have Celiac because 90% of my problems went away after going gluten-free, but new things have developed and that is what scares me. I'm so afraid of cancer and lupus and even RA, but my doctor doesn't think I have any of those Lets just hope he's right. Thank you so much for your input
  2. I am wondering if anyone that understands the blood test to chime in. I had one positive test and it was the DGP IGA. Everything else was negative. I can't seem to find an answer anywhere. I just want to know if I need to ask my doctor to test me for some other disease. I am gluten free and have been for a few months, but lately I have had some really weird issues pop up and wasn't sure If its Celiac related or some undiagnosed issue. I'm so scared and I can't seem to get a doctor to help me. I'm pretty anemic and the doctors can't figure out why. I haven't had gluten since being diagnosed through blood work and I'm very careful when eating. I had a bad petechial rash pop up a few days ago and the doctors still couldn't figure out why it happened. I contacted the University of Chicago and they said that my results don't support a diagnosis of Celiac since everything else was negative, but my Doctor said that I have it since that the DGP IGA is very good. So confused and so over thinking I have something else, but can't seem to get a straight answer from anyone. I did not have a biopsy and went gluten free after my doc told me I was positive. I didn't know anything about Celiac disease and the importance of the biopsy. I'm too afraid to eat gluten just to get a positive biopsy
  3. I have been gluten-free for three months. I recently had my blood checked because of a petechial rash on my legs and they said my iron and potassium are still low, even being on a gluten-free diet. I thought that would go away :/ I also contacted the Celiac Center of Chicago to see if I could get a care package since my doctor said I definitely have Celiac. They asked for my blood work, I sent it and they came back saying that my test doesn't  support a Celiac diagnosis. My doctor said that the test that came back positive is very good. I'm just so confused and tired of all of this. I wish they would have done the biopsy because I'm still having tummy troubles, but not as severe as before. That is why I was thinking it might be something else. The ER doc said that I might have something mimicking Celiac?? I don't know what else to do. I'm going to continue the diet and hope everything will subside. I just keep having all this other stuff pop up now and its terrifying. Thanks for listening to me!!!
  4. I had the same test come back positive and everything else was normal. My doctor also had me go gluten-free and said a biopsy wasn't necessary and she was sure that I have Celiac. I am torn though. Sometimes I have no symptoms at all and other days I feel terrible. I'm sure this is normal in the first few months. I really wish she would have done the biopsy for piece of mind, but I'm to afraid to eat gluten to get a positive biopsy :/ I'm also afraid it might be something else, but all of my other blood panels are coming up normal. The only thing that they noticed was that I am anemic and low on potassium. Do you suffer from that to??
  5. Can someone explain what IGA deficiency is and what number is considered low? Thanks so much!!
  6. I was just tested for Wheat allergy and I should have my results in two weeks. I accidently ingested wheat and my eyes became swollen and I broke out in hives. My doctor said that it probably wasn't wheat, but maybe my makeup. I've been using the same makeup for years and it happens to be gluten-free. I don't know what else it could have been. We will see in a few weeks what is causing this reaction. It was pretty scary and hoping it doesn't happen again. I have never once had an issue, but once I went gluten-free I have become super sensitive to a lot of different things. I'm so nervous, I don't even want to eat
  7. Here are my results   Deamidated Glaidin AB IgG - < 0.4 Normal Deamidated Gliaidin AB IgA- 18.0 High Anti-Human Tiss Transglut IGA -0.5 Normal Anti-Endomysial Iga Ifa- Negative Total Iga by Neph- 127   I did not have the biopsy, she said to start eating gluten-free and come back in a month if I don't feel better :/