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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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  1. I got my blood test done Monday...I didn't stuff myself with gluten before hand.  I wasn't eating a ton of it, but I certainly hadn't intentionally removed it from my diet so I'm sure if there's something to show, it'll show.   I also requested to be tested for Hashimotos so we'll see how that goes.   I have no idea how long it will take to get the results.  I'm nervous!
  2. I haven't gone gluten free at all yet, but I realized that I've only  been eating a fairly small amount of bread recently and don't want to take any chances on a negative blood test. lol  I'm sure there's gluten in other things I've been eating, but I'm paranoid that it's not enough for the tests.  I know it's not logical. lol  I just want to over do it so I can be sure.
  3. Doc ordered my celiac blood tests today!  I think I'm going to do a massive gluten challenge for two weeks before I get the tests done.  I found this article that said two weeks is enough.     Instead of eating bread, I plan on buying a bag of gluten for baking and just mixing it will water and chugging it.  I figure two or three tablespoons a day will do it, if I am celiac!
  4. Decided, just for the hell of it, to add on the thyroid tests to my request.  My symptoms all fall under Hashimoto symptoms as well, and thyroid issues run in my family.  I just want to feel better!  Being this tired and having all these issues can't be just...nothing.  I mean, I keep telling myself that maybe if I just lose weight, everything will be good again...but how can I work out when I'm so freaking exhausted?    My doc will probably give me a lecture....ugh...stupid VA.  If I didn't have to get my care there, things would be so much easier.  My ability to advocate for myself is so limited. 
  5. Looks like my doc went on vacation.  I won't hear back until mid to late next week. 
  6. Thanks for the info!  I had already sent my doctor another note...telling her that I'd really like to be tested, listing the tests I wanted and all my symptoms...   Then I was reading another thread and saw that medications may have gluten.  I'm on A LOT of it's not as easy as skipping the diagnosis and going on a gluten free diet!  I'd have to check all my medications...a good reason to make sure I get tested! 
  7. This is the response I got from my doctor:   "Would recommend she cut out gluten for 2 weeks, then re-introduce it and if her symptoms return then she should stay on a gluten free diet. My experience is that not many people have true celiac's disease but a lot of people are sensitive or intolerent of gluten and should be on a gluten free diet." Should I push to be tested??  What would your response be?  Is 2 weeks long enough for the small intestine to heal and have the effects disappear?  I'm annoyed.  I don't understand why she won't just test me.  It's not like it comes out of her pocket or she'd even have to do anything other than put the blood tests in the system.
  8. I'm finally to a point in my life where I have the mental clarity to handle going gluten free.  I suffer from severe depression and anxiety and have just been consistently stable for the last year or so.  I've always suffered from IBS/loose stool, hormonal imbalances, acne, headaches, reflux, low ferritin, low D, and low potassium...not sure if they have ever really tested any other vitamins and minerals.   I'm always tired and have very little energy.  I take heavy B vitamins and Iron because without them, I'm almost non-fuctional.  My family diet is heavy on pasta and bread...and we eat out quite often, although we're cutting back...which is one reason I wouldn't consider going gluten free previously.    If my doctors refuse to test me, or if the tests come back negative, I'll still go gluten free and see how things change.  I'd just prefer to have everything documented, of course.    Thank you for all the information! 
  9. For many many years I've known that most of my issues fall in the celiac symptom category...but I've chosen to ignore that because I didn't want to deal with going gluten free.   I've contacted my doctor to see if they'll do a test for me...I don't plan on stopping eating gluten until after the diagnosis comes back.   But if they refuse to do the test (it's the VA healthcare system, they might) and I choose to go gluten free, is there any other reason to make sure they diagnose me?  Is there anything that needs to be monitored by a doctor after going gluten free or is that it?   Thanks!