Get email alerts Get E-mail Alerts Sponsor: Sponsor:

Ads by Google:

   Get email alerts  Subscribe to FREE email alerts

  • Announcements

    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


  • Content count

  • Joined

  • Last visited

Community Reputation

0 Neutral

About kamarie

  • Rank
    New Community Member
  1. Thanks for the links, Deanimated Marcus, that's the first I've heard of a rectal biopsy, which sounds really scary but I'm glad to have another option to research.
  2. Cavernio, this page explains why I'm thinking about diagnoses:   AFAIK, if you have Celiac disease, doctors are more aggressive about checking for nutritional deficiencies and conditions related to having a severely damaged intestinal tract.  One person told me that they will also monitor your IgE (something like that, I don't know all the terms very well yet) to make sure you aren't eating gluten you don't know about.  But I haven't talked to an actual MD about this, so I could be wrong.   For me personally, it would help me determine how strict I need to be.  Although a gluten-free diet helps a lot, it hasn't made me 100% better.  Is it because I'm not really 100% gluten-free and I only think I am, and I'm still sick because of cross-contamination?  Or is something else causing my remaining health issues?  If a doctor could test me and say, "Well, there's no evidence you've consumed any gluten at all for the past 6 months," then I'd know there are other issues to investigate.   All of this could be done without a diagnosis of Celiac, and I am definitely trying my best to coordinate it all myself and do my own experimenting, but it would be a lot easier if I had a diagnosis and a cooperative, knowledgeable doctor (I'm resisting going into a tirade about my awful experiences with gastroenterologists, lol)
  3. That's what I figured.  I was just hoping for some miraculous new science I hadn't yet heard about.  Ah well.
  4. My apologies if this is a repeat topic--seems like it would have been asked before but I'm not seeing it.   About 12 years ago I saw a doctor who didn't really understand Celiac disease.  She advised me to get a blood test for a wheat allergy and when it came back negative, she suggested an elimination diet.  When I noticed how awful I felt when I added gluten back into my diet, she said, "Great!  Now you know what's wrong--stop eating gluten."  So I did.   You all probably see the problem with this plan--when I later learned about Celiac disease and how important it is to be tested for it so you can monitor your progress, I discovered that I could not be tested because I haven't been eating gluten for so many years.  I'm told that if I want to be tested, I'll need to eat gluten for three months. !@#$ no!   No way will I purposefully invite that kind of misery into my life for the sake of a diagnosis. So I've been going along eating gluten-free, never knowing if I have Celiac or not.  But still, I would like to know for sure for various reasons.  My family wants to know as well.   So my question: does anyone know of a way around this situation so I could get a real diagnosis?  I fear there isn't, at least not with current medical technology.