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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity

trimummy of 2

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  1. yep, a gluten challenge is when you purposely eat gluten to not only observe the symptoms, but to be more accurately tested for the disease, since the blood tests and biopsy are usually most accurate when you have been eating gluten for an extended period of time... hope that helps i have lots of very mixed bloodwork results, and there is a handful of diagnoses on the table besides celiac. i just cannot WAIT to finally find out what is wrong with me. the waiting and not knowing for sure is eating me up.... ugh
  2. quick q re: a gluten challenge - would i be able to just regularly ingest "vital wheat gluten" that you see in the bakery aisle for a gluten challenge instead of having to eat all the starches? I could just miix it into a drink or something - i know it sounds absolutely disgusting.... but i just don't want to end up carb-addicted (been there, done that in my life) from a gluten challenge. just wondering......
  3. thank you all for your responses. just the validation itself helps like you wouldn't believe. i think when you are chronically sick with GI symptoms, for some reason, it seems like the rest of the world thinks it's in your HEAD. and that is so frustrating. i have decided NOT to go back on gluten before my repeat tests in a week. putting myself through that is one thing, but i am not going to put my nursing son through it too. i will go back on gluten for a couple of months in november, after i am done nursing him. i am already worried about him - just noticed his 2 little teeth coming in have black marks on them (celiac disease related demineralization?), and will be making an MD appt for him asap. i am also getting more intensive kidney testing done - anyone here have celiac-related kidney issues? thank you so much again for the replies.....
  4. wow, this website has been a godsend... decided to sign up and post b/c it seems like you all have so much experience dealing with a lifetime of celiac disease and/or uncertainty about celiac disease. just the uncertainty is driving me BONKERS. BONKERS!!!!!!! this will be long............... i have been experiencing gi etc symptoms since giving birth 10mos ago that make us lean toward celiac disease. HOWEVER - no definitive answers from labwork. here's the scoop.... Nov. 2004 - gave birth to baby boy (beautiful i might add ) *No dairy, eggs, soy, nuts, seafood in MY diet due to his food allergies (i nurse him) *ate lean meat, LOTS of fruits & vegetables, occasional starches (pasta once every 1/2weeks), but lots of oats w/ wheat bran/w.germ *had abdominal distension, bloating, LOTS of gas/flatulence, horrible foul odor (my poor husband), occasional cramping, loose stool *Thought the increased stool frequency and awful gas was due to the increase in fiber in the diet. Retrospectively (having experienced more “normality” after abstaining from gluten), I see how abnormal my bowel habits and other symptoms were. ***Received ultrasound in Feb (prior med group thought i had a hernia) – showed lots of gas, bowel, and some dilation of the small intestine, neg otherwise April 2005: *son fell off the weight chart completely, so in may we started him on solids at 5mos. we were worried sick. May 2005 - July 2005: *i ate same as previous, but increased starch intake (pasta, bagels) due to my increased triathlon training load. *symptoms became more severe, with onset of loose large volume diarrhea notable for urgency, borderline fecal incontinence during runs, and extremely painful cramping and bloating/gas. Gas has had foul odor, stools float, and have lots of undigested food in them. Cramping pretty much put me on the couch all day (tough w/ 2 young kids), and doesn't stop when the diarrhea stops. *these symptoms have seemed to wax and wane – be intermittent, with 2-4 days every week experiencing these "flare ups", and then things calm down, back to the more mild baseline (just distention, bloating, and gas). July 2005 - Aug 16: *moved due to husband's job *in the beginning of july -stopped gluten in the diet - hubby is an MD - one day, said, "hey, just for the heck of it, why don't you stop eating anything with gluten in it, and just see what happens". PRESTO.... *now had a diet without gluten, dairy, eggs, soy, nuts, or seafood. ugh!!!!! *diarrhea and cramppping symptoms totally resolved within a week, only left with baseline. *became more engorged, son started gaining lots of weight Aug 17: *saw an internist, got labwork done *tTG = neg *IgA = neg *IgG = pos *other bloodwork = neg for malabsorb., anemia, etc. *creatine & liver stuff a little off - MD thinks may be just due to my high training levels, but more labwork is being done. *i have an appt with a GI doc in a couple of weeks. *ever since..... have tried gluten again, only to react very dramatically within 24-48hrs with the same gi symptoms. it is obvious i am very affected by the presence or absence of gluten in my diet. it takes another 48-72 hours for the symptoms to start to diminish. This whole soap opera has been exhausting and frankly, just downright depressing to me. I am on the verge of breakdown. My MD will be taking more labwork from me, including repeat antibody testing. I have been off and on gluten during august, and have only been STRICTLY off gluten for a week now. when i am off, and feel no symptoms, i sometimes think - am i imagining this? and then i go on gluten again and am nearly non-functional on the sofa all day, my symptoms are so bad, and exhausting, and i remember again what it's like. ques: 1. would being off gluten for only 1.5 mos affect the antibody and other blood results? i read that stuff sticks around for months. 2. anybody hear anything about undiagnosed celiac disease in a mom affecting her milk supply? or would my son actually have it? 3. Would being back on gluten for 10days before the repeat tests (i will get them in 2 weeks) affect the results? Should I do that? This situation is just causing me so much anxiety. I have a 1/2 Ironman this weekend, but my head is just into this situation, I feel so depressed by this. I know there are folks in my extended family that think I'm just imagining this.....I feel like the only person in the world who believes me is my husband. Luckily, I am getting terrific medical care, and they have not ruled ooout celiac disease at all. It's just the waiting that kills me. I know that ideally, I need to go on gluten for 3+ mos, then get everything tested w/biopsy. But considering my son's reaction, I just can't do that until I stop nursing him, and plus, my diarrhea/cramping symptoms are so profound when I go back on gluten that I don't know if I will be able to handle 3mos of that. Hubby thinks it's celiac disease manifesting it's ugly head, triggered by childbirth for some reason. I just don't want to be a lab guinea pig for a year and then just get diagnosed with IBS b/c they "don't know". I know you are not doctors, but any help, or even just reassurance would be so wonderful.....this is really getting me down. Thank you for any responses!