PrairieGal replied to PrairieGal's topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsThank you so much for your replies! The thing is that I don't know which test I was positive for in the past or that it was even positive (but I think it was), because it was so long ago and I don't have the results, it's just that I remember being referred to a specialist who didn't think a biopsy was needed then. And this most recent time, I am "just" over the normal range - I was a 10.8 when 9.9 is the max upper limit for normal. As much as I would like to go back to gluten free and never look back, I'm not sure that result is enough to eliminate the little bit of doubt in my mind and it's not enough for my family doc to strongly recommend a biopsy (according to the doc). I have been having abdominal symptoms on and off this past year, but that started before I was eating gluten regularly, when I was having it once or twice a month. it's hard to connect the two, as much as I would like to, because I do believe that there is something going on with my diet, but the medical system requires more "proof". Because I already tried gluten free for a few years, but didn't have a diagnosis, I feel like I need to get some more confirmation before doing it again. The family history is also a big red flag, I agree. I don't want to end up like my dad who didn't "feel right" for DECADES but the doctors could never identify what was going on!!I am thinking of eating gluten for another 6 weeks, which would put me at just over 3 months of eating it and then get another batch of tests done. Waiting until I have been eating it for 6 months seems like wayyy too long but I have read that some recommendations for the "gluten challenge" are up to 3 months, and I definitely didn't wait that long before being tested recently.
PrairieGal posted a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsHello, I have been reading some of the posts here and think that I am one of those who is totally confused about what my celiac screening panel results actually mean. To start - I have a family history of celiac as my father was dx late in life but likely had symptoms for at least 20 years before. When my father was dx, I had the standard blood tests to check and all I can remember from that time (8 years ago) is that one, or possibly more, of the tests was positive enough for the doc to recommend that I see a specialist. The specialist said I didn't have the "classic" symptoms therefore a biopsy was not needed. At the time, I was young and thought "ok that's fine with me, I will keep eating gluten, yay". Now, however, it's a different story. After spending most of my 20s with various GI issues and the IBS diagnosis, I decided to try gluten free and did start to feel better generally. I did that for about 2 years and then thought that I should probably get a real diagnosis. I started eating gluten again off and on for a year and then did the gluten challenge for 6 weeks and had a screen of tests done last month. So...my results are that the DGP IgA was positive, but a weak positive, and the other tests were not above the normal range. My current doc (not the one who did the tests 8 years ago) thinks that I should keep eating gluten and we will re-screen in 4-6 months. I am ok with that because I want to know for sure if I have it. But my question is does this DGP IgA test indicate that I am re-damaging my gut by eating gluten? I don't understand what it means, especially because the other tests were not really high. What do we know about the DGP IgA tests?