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carisima added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsGluten Challenge - Could Wheat Not Be The Culprit?Question, I've been gluten-free for more than 8 months.
I recently started my gluten challenge to be tested for celiac disease, and other than some mild fatigue (at the start of the challenge) becoming slightly off balance, and a small rash, I've only had mild digestive issues (not the severe ones I usually am plagued with). I expected to get the diarrhea within a day of eating wheat. But, so far, nothing major has happened.
I've eaten, what I consider, a large amount. Does this mean that wheat isn't the culprit?
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carisima added a topic in Celiac Disease - Parents of Kids or Babies With Celiac DiseaseDisney Thinks Bullying A Gluten-Free Kid Is FunnyThere has been a recent petition to ask Disney to take down an episode, where a kid who has to maintain a gluten-free diet is mocked and made fun of.
There's been a petition started to take it down.
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carisima added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsGluten Challenge: How Long To Do One Before A TestI really need some advice regarding testing.
I got up the courage to be tested for Celiac Disease. I'm not sure that I have it, to be honest. Up until I year ago, I never suspected that I could have an intolerance to wheat. Doctors had always diagnosed me as having IBS, and tried to convince me that my severe digestive symptooms (the extreme gas, bloating, diarrhea, etc;) were the result of my anxiety disorder. For years, I believed them, and thought I was crazy, and blamed myself. I spent years in psychotherapy and two years on psychotropic drugs they ordered for me to alleviate my "panic attacks". Nothing worked.
My really bad stomach symptoms began in college, but they've only gotten worse. I cut out dairy, saw no change. And it seemed like every meal I ate made me sick. I was going to the bathroom 12 plus times a day (sorry if TMI), and sneaking naps at work during lunch time to function through the rest of the day.b
Doctors gave me so many pills to alleviate the gas and diarrhea, but nothing seemed to help the symptoms. I was desperate, so a year ago, I went on the Specific Carbohydrate Diet to heal my digestive complaints. For the first time, all the bad symptoms began to dissipate, and I felt better. It's a diet where you have to read labels, and I make almost every meal from scratch. After months of being strictly grain free, I decided to use a topical lotion -- Aveeno -- with oats in it, not thinking anything of it. Then, my skin broke out...and I got sick. It was then that I thought, maybe I could be gluten intolerant. It was only until I decided to research celiac disease (which I always thought was a gluten allergy) that I could have it.
This week, I got up the courage to finally speak to a GI doctor to be tested for celiac disease. Right now, I'm not sure what to do. He didn't seem to take me seriously. He spent less than five minutes talking to me, then asked me why did I believe I had celiac disease. When I attempted to tell him he kind of brushed me off. He told me that it could be small bacterial overgrowth, or a really challenging case of IBS.
He then said that I should be tested right away for celiac disease. I said that wouldn't that give a false negative, since I have been strictly grain free for eight months (I had to talk to his nurse to relay this information to him). He basically said, eat wheat lightly for a week, and then get tested. When I asked -- didn't I have to eat gluten for a month to build IGA antibodies (not sure if this is right), he told me not to believe everything I read on the Internet.
I really want the truth, and don't want to cut corners. I've started eating wheat again (so far, so good) but, a little gassy . But, I'm discouraged, really. I've gone throught this so many times with doctors who don't take my issues seriously. I would change doctors, but I seriously don't want to wait, and get testing process over with, since I already had to wait a month to see this specialist.
Should I do a gluten challenge for only a week, then be tested, or wait the full month (of eating wheat) then be tested for an accurate result, since I had been wheat free for a year.
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