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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About agrieser

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    1. agrieser added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      Symptoms And Self Diagnosis
      When I eat anything containing gluten my stomach feels like there are thousands of tiny needles in my stomach within a minute. Within 5 minutes my whole body starts shaking like I'm incredibly nervous and I cannot control it. I begin to feel nauseous and feel so weak that even lifting my arm is difficult. My heart rate increases and i have a hard time breathing.The shaking and weakness last for hours after I consume the food.  
      I've had abdominal ultrasounds, blood tests, and stomach biopsy's with my GI and had no luck. Unfortunately, I do not know what the doctor was testing me for when I underwent these tests. I only know that the day before my stomach biopsy I went gluten-free on the advice of my mother (who suggested that I do it because my dad is allergic to gluten,soy, and dairy).
      It's been almost 2 months since I became gluten free. The only time I've experienced the symptoms described above was the day I ate bread, in an effort to test my "self-diagnosis."  I've also noticed that I am more sensitive to gluten now than I was 2 months ago, the smallest amount of cross contamination will make me experience my symptoms. 
      I'm debating how to proceed, I apparently was highly allergic to gluten for almost a year and lost a lot of weight (currently 99 lbs) and muscle due to the constant weakness and lack of nutrients being absorbed in my intestines. Do I go to a primary care doctor to make sure that gluten is the only thing I'm allergic to?  Should I make sure than the extra stress on my body didn't cause some long term issue? I have thousands of dollars in medical bills from the constant doctors visits and tests over the last year so I don't want to waste any more money or time if it is not necessary.
      Any comments help
       Anne- 24 years old 
      Michigan resident
      • 2 replies

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