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agrieser added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsSymptoms And Self DiagnosisWhen I eat anything containing gluten my stomach feels like there are thousands of tiny needles in my stomach within a minute. Within 5 minutes my whole body starts shaking like I'm incredibly nervous and I cannot control it. I begin to feel nauseous and feel so weak that even lifting my arm is difficult. My heart rate increases and i have a hard time breathing.The shaking and weakness last for hours after I consume the food.
I've had abdominal ultrasounds, blood tests, and stomach biopsy's with my GI and had no luck. Unfortunately, I do not know what the doctor was testing me for when I underwent these tests. I only know that the day before my stomach biopsy I went gluten-free on the advice of my mother (who suggested that I do it because my dad is allergic to gluten,soy, and dairy).
It's been almost 2 months since I became gluten free. The only time I've experienced the symptoms described above was the day I ate bread, in an effort to test my "self-diagnosis." I've also noticed that I am more sensitive to gluten now than I was 2 months ago, the smallest amount of cross contamination will make me experience my symptoms.
I'm debating how to proceed, I apparently was highly allergic to gluten for almost a year and lost a lot of weight (currently 99 lbs) and muscle due to the constant weakness and lack of nutrients being absorbed in my intestines. Do I go to a primary care doctor to make sure that gluten is the only thing I'm allergic to? Should I make sure than the extra stress on my body didn't cause some long term issue? I have thousands of dollars in medical bills from the constant doctors visits and tests over the last year so I don't want to waste any more money or time if it is not necessary.
Any comments help
Anne- 24 years old
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