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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About Nehring

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  1. You're right. I guess it's just a quest for answers when your child is sick, but you just have to take what you know and go with it. I might never find all the answers but I can try to do what is best for him in the meantime.
  2.   He loves almond milk, and we don't really give him any cheese. Maybe ice cream once in a while since it doesn't seen to bother him. We also give him kefir and culturelle to help with the probiotic issue. The first time we went gluten free with him we tried SCD. It was REALLy in depth and there were even more restrictions than with Gluten-free Casein-free. I remember getting a juicer and making fresh juices to help with vitamin absorbtion. I knew soy milk was not an option, and then was surprised when we found the soy allergy. If we would have known this type of reation would happen we never would have tried cheating. We expected maybe a rash or some irritability. It was his first ER visit and we were shocked. That's why I am not sure what else we can find out. I'm wondering if we should just settle at a gluten sensitivity dx and treat it as celiac or should we push to absolutley rule out celiac?
  3. I'm so glad this thread was helpful to somebody. Does anyone have any advice about helping him recover from this type of gluten reaction? I've been thinking of going back to the first stage of the simple carbohydrate diet, which follows a strict protocol for a few weeks. If I remember correctly its eggs, broth and bananas only for the first few days, with increasing food options once they begin to tolerate it. The website is if anyone is interested.
  4. We knew almost immediately that it was a reaction to what he ate. We were just suprised and terrified that it was so strong. We usually are extreemly strict with his diet, but the GI made it seem like the gluten free diet was more of a prefrence than a medical need. I absolutely hear you. Now we know how serious it really is. He actually does have nuerological symptoms. He has high functioning autism, which is what lead me to investigate Gluten-free Casein-free diets in the first place. The first time we tried it we noticed a change in his digestional issues, but no signifigant with autism, so we felt it wasn't worth it. It was maybe 6 months later that we were desperate for a change in his constipation. Going gluten-free helped immediately. He has improved at school, and has generally felt better, so that helps with his autistic symptoms.  Do you know anything about a genetic blood test that we could use? Can you further explain to me what autoimmune monitering is? I have to wait until after the holiday to speak to my Doctor so I'm a little desperate for insight.
  5. This is my very first time posting. My husband and I have been keeping our son on a gluten free diet for about 6 months. A year ago he had an mri with sedation, so they did a celiac panel at that time. It came back negative, but his constipation was crippling his potty training and making him terrified to have a BM. I could just tell that something wasn't right about the way his body was working. We had tried a gluten free diet for a short time before to help with autism, but then returned to a normal diet. After the constipation came back with a vengance, we got him back on the diet and have seen major improvements.   Our Family Practitioner refered us to a pediatric GI Specialist, and discussed the possibility of him undergoing an intestinal biopsy. The GI specialist ordered a huge list of blood tests and did not find any wheat allergies, nor casien, but he did say the test picked up a possible soybean and peanut allergy, which is strange because he ate peanut butter every day. He advised us to continue with the gluten free diet, and that he obviously has a sensitivity to gluten. At this time it was a month before our wedding, and we asked him if he could possibly cheat for just one day, to have a piece of wedding cake with us. He said that it should be fine, that some symptoms might come back but it wouldnt be harmful to his body.   After pricking both of his arms to get two huge vials of blood we treated him to a chicken nugget happy meal. Later that night he got an insanely itchy rash that spread from the backs of his knees throoughout his whole body. He was miserable. We gave him some benedryl and it seemed to work immediately.   Cut to our rehearsal dinner last friday...after staying late at the venue in unsesonably cold weather, we arrived at the restaraunt (and amazing bakery) starving. We let our little guy have some saltines, mozerella sticks, french fries (probably fried in the same oil as gluten products) grilled chicken and he ate the frosting off of a cupcake. That night I got him to take a little benedryl, he slept well but woke up at 4:30 in the morning. He played and ate some bananas and juice. my brother took him to my in laws so I could get ready for our wedding, and about an hour later, my mom in law called saying he had thrown up all over her and had started to have bad diarrhea. He continued to throw up and have diarrhea all through the wedding. It was too much for such a short period of time. Then he started to get listless and lethargic. He wouldn't open his eyes, and was pale, with no color in his lips or cheeks. We have several nurses in the family so we decided to take him to the emergency room. I slipped out of my dress and we drove an hour away to the hospital closest to our home. He slept the entire way, but had barely woken up when we got there. They ordered an IV, but he was able to start drinking normally and drank about 20 oz of juice. His blood tests checked out, and he was able to take some zofran. He threw up one more time that day, had terrible gas and had diarrhea for a little longer.   The er doctor told us that he reacted to the gluten, since he has had reactions before. It scared us so badly we are terrified of giving him an opportunity to cheat ever again. He had gotten sick from accidental gluten before, but never to this degree. My questions are.... -Isn't this a serious reaction to gluten for just a sensitivity? -do we need to do further testing for celiac disease? -There is no way Im giving him gluten to prep him for the intestinal biopsy...What else can we try? -Should we see another GI Specialist? -Please share any advice!!!