This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
I have found that people in Korea, though well-meaning, don't get it at all. My coworkers would constantly put bread, cookies, cakes, etc, on my desk, and then ask why I wasn't eating, even though I explained DOZENS of time! Once, at a BBQ place, my friend interrogated the owner about the meat and asked if it had any sauce on it. The owners repeatedly said "No, no, no," no sauce, but then once my friend dropped the phrase" severe allergy," suddenly the meat was magically soaked in wine! Then, halfway through the meal, I felt sick, so my friend asked once again, and the owner admitted that the meat had soy flour on it. *Bangs head against wall.* It's tough !
As far as having gluten free foods with you, I highly recommend iherb.com, a natural food and supplement website that ships all over the world. You could even go ahead and order so that you have a box of food waiting for you. Prices are really reasonable and shipping is dirt cheap. Good luck! I hope you enjoy your travels!
I developed "adult acne" at age 19 after having flawless skin all of my life. It was horrible. My face got more and more RED as the years went on, and I had cystic acne that itched AND hurt. And my skin got extremely oily too. Other skin symptoms: the little bumpy things on the backs of my arms and legs, excessive sweating, and swelling/cracking around my lips. Thank goodness going gluten free fixed ALL of my skin issues. My skin is clear now, and the goose bump things are completely gone! I hope you find some relief from your symptoms as well, and that your tongue heals up! For what it's worth, my boyfriend also has this (i believe it's called a "geographic tongue") and I've noticed that when he is eating mostly gluten free because he's eating only my food that I cook, it begins to look a little less sliced up and seems to heal.
I can't speak for Hong Kong or the Phillippines, but I have managed to be able to do sushi here in Korea. I just explain to the person preparing that I have an allergy (it's easier to understand that way) and that I want only raw fish, no sauce, no rice, and I bring my own gluten-free soy sauce. It's not very exciting, but it's another option besides eating in for every meal.
Yes, yes, yes. I also struggled with severe depression for years, probably from age 14 to age 24, when I went gluten free. Sadness, apathy, outbursts of anger, and turbulent emotions are all symptoms of gluten ingestion for me. I'm generally a content, easy going person, but as soon as I hear thoughts in my brain of "it's just not worth it. Why do you even bother? There's no point in being alive," etc, I KNOW I have been glutened. These thoughts are really terrible and make me feel incredibly low. There's no way I would ever act on them, but they are vicious thoughts and they ARE there. It helps me to know that they are a result of the gluten and that they will pass after a couple of days.
I also second what CyclingLady said. If you are going to try gluten free to help, you have to dive in one hundred percent. No cheating, and be extra vigilant about cross contamination.
I hope you feel better soon! Anxiety is truly an awful mental space to be in.
Aw thanks, everyone. Unfortunately, I got hit my very first day home. I'm trying to figure out what it was. May have been the electric can opener, which is a bit dirty AND lives right next to the toaster in a cabinet. Ugh, I hate this!
I found that non gluten-free certified brands of rice were hit or miss, but more hits, with glutenings. I think it's probably because rice and barley are often grown and transported together, especially in Asia. It got to the point where I decided to do only certified rice, so I stick with Lundberg. It's been fine for me.
I haven't had to deal with things like business meetings, but would it be possible for you to get the names of the restaurants where you'll be meeting and to then call ahead so they know to expect you? Will you be going to the same places again and again, or will it always be different? If it will become somewhat routine, then at least the chef and staff will come to be familiar with you and your needs.
Oh that's good advice, to send her the newbie link. I'll do that. And you're right about being firm from the beginning. I have a varied dietary history (vegetarian, vegan, raw foodist, etc) which was all done to try and get my health sorted, so my family is used to me having dietary restrictions, but this is, obviously, quite different, so I hope I can get them to understand.
I'll be going home next month to visit my parents, and it's the first time I'll be home since being diagnosed. I'll be staying for a month, so I guess I will need to have my own area for food in the pantry/fridge/etc. I asked my mom to grab a skillet and a cutting board for me, which she did. I'm just wondering the best way to explain to her how I need to eat, and what needs to be done to avoid CC. Here are the main issues I'm planning on talking to her about:
-having my own gluten free space for my non-refrigerated foods
-having my own cutting board and skillet
-not double dipping in condiments (i plan to buy new ones for myself and label them gluten-free)
Is there anything else I should cover? I'll be making all of my food myself, so that should not be an issue. My mom is also obsessed with cleanliness, so crumbs on the counter top won't be an issue either.
Mostly I'm just afraid of talking to her about these things because I'm afraid she is going to be judgmental, or think I'm being too obsessive. Any advice on the best way to approach this?
I'm in Korea. The figs were imported from a German company.
I did have a gluten reaction after eating those figs. Whether the reaction came from the figs, or maybe came from something else that I had eaten that day, I don't know. But the timing seemed to suggest that it was the figs that made me sick.
As any of you would surely claim for yourselves, I know the "personalities" of my reactions very well.
Like I said in my original post, I can't say for sure that it was the figs that made me feel unwell, but it certainly seemed to be the case. I just thought i would post my experience here in case anyone else may have made the same mistake. Maybe it was the figs. Maybe it wasn't. The figs looked like they were dusted in flour. I ate them. I got sick. It seems that the dusting with flour is an uncommon practice, according to what you are all telling me. So it seems likely that I'm wrong about that. But I won't be eating packaged figs anymore, unless I can verify that they are gluten free.