nkmichel replied to nkmichel's topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsThank you for the advice. I will start eating gluten again and hopefully get some good news with the testing, and I'll also make an appointment with my regular MD for the full work up!! Thank you so much
nkmichel posted a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsI am 28 and my whole life I've felt sick. Doctors and family always told me I just have a "weak stomach" and that I'm a hypochondriac (sp?). For the past 4 or 5 years, I 've had more seemingly unrelated symptoms; severe GERD, numbness and tingling in hands and feet, joint pain, headaches and migraines, chronic nausea,severe stomach pain, fatigue, and anxiety and depression. So far I've been misdiagnosed with anxiety, migraines, endometriosis, fibromyalgia, and stomach ulcers.I've undergone 2 MRI's, x-rays, countless blood work, 1 laporoscopy,an abdomen ultrasound, and an endoscopy and colonoscopy. All I found out was that I am severely B12 and Iron anemic, every other test or procedure produced negative results and all my doctors are treating me as if I'm crazy. I've had several other friends suggest celiac's/gluten allergy but when the biopsy of my small intestine came back negative, I didn't think that was it. Now I've found out that you can have a negative biopsy but still have gluten intolerance. So I've scheduled an appoinment with an allergist on Wednesday to talk more to him about it. My question is this; has anyone here had a negative biopsy before? And if I've cut out gluten for a week, will that result in a negative blood test? I've been gluten free for 3 days now, and at first I started feeling better, I went to sleep without too much pain for the first time in years, but I think I may have accidently had some gluten, because today I am feeling horrible again. Basically, I'm totally lost and depressed and looking for answers. I know many others have felt this way, but I'm just so sick and tired of being sick and tired. Any answers? Suggestions?? I'd REALLY appreciate any help at this point!!!