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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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  1. We have tried LOTS of different gluten-free play dohs and by far we like Skwooshi the best.  It is cheap, cleans up well, doesn't stink, lasts a long time, and my boys really like it.  You can get it in activity sets or alone.  Skwooshi on Amazon It feels a little different than Play Doh but we use our play doh pasta maker and dentist with it and it is fine.  
  2. Thanks for the articles and older posts, those were very informative. Gets a bit frustrating when you are doing everything possible and it's not working.  Oh well, I guess we will get it right one of these days   I am glad she is doing better! 
  3. Thanks for everyone's insight. We are going to the pedi GI today.  I meticulously went through everything we eat and we did change gluten-free flours about 8 months ago, started a few things that are gluten free (verified with the company that it is a gluten-free facility) but not certified, and started eating a new gluten-free ice cream that is produced in a shared facility. I am usually the litmus test since I am hyper sensitive, but maybe that is not the case anymore.  We will see what the doctor suggests today.    
  4. I have two boys with Celiac ages 6 and 8, diagnosed with endoscopy at 3 and 5.  Do the blood test and if it comes back positive do the scope to get a formal diagnosis. Don't stop gluten without a blood test.   Knowing all the problems we are dealing with trying to get the school district to cooperate, if we didn't have a medically diagnosed condition they wouldn't be legally required to comply with their medically required needs.  Don't go gluten-free without the test, I debated over getting the scope for months, both boys had EXTREMELY high values so I figured what's the point.  Now I know.  Also, if we only had the blood test our health insurance would deny some of the test that are required as the boys age.      When the first's blood test came back positive it was standard protocol to test the whole family.  That's when we found out about myself and our other son.  
  5. My two boys were diagnosed with Celiac 3 years ago. My 3rd grader's IgA levels were slow to come down after going gluten free. The first year he had an IgA of 28, a year later it was 18, six months later 14, and six months after that 9. He just had another test and it came back at 38. We are on a strict gluten-free diet, there is no gluten in the house since 3 of us have Celiac. We go out to eat maybe once every two months, if that. I make all our baked goods at home using certified gluten-free ingredients, the only processed foods we use are certified or when I call the company they state the product is gluten-free. The other two's (one of which is a first grader at the same school) numbers have continued to decrease and have been 5 or lower for the past two years. This is my anal child, he always washes his hands at school, makes sure his food and hands never touch the lunch tables, and doesn't put his hands in his mouth.  I have met with the school nurse, teachers, and principal.  We keep his supplies separate, after art he always washes his hands just in case. This is the only environment I can't control. One thing that makes it difficult is he is asymptomatic, which is definitely a good thing, but kind of bad here.   We use gluten free lotion, toothpaste, soaps and shampoos, sun screens, laundry detergent, dishwasher soap, i verify that any prescriptions he is given are gluten free, chapstick, etc. I am the crazy one sitting on the floor of the grocery store calling companies to verify products are gluten-free. I could be missing something somewhere, but I can't figure out where. About the only thing I haven't verified that he uses are Band Aids (rarely used), and tape. But he always washes his hands after tape or glue use.     Has anyone else had this happen? Could he be getting contamination from school? Is there something else going on? Bad blood test (my other son's test was done at the same time and same place and he is at 4)? Any ideas?    Thanks for your thoughts. 
  6. I have two boys with Celiac...1st grade and pre-school.  We were just diagnosed in July of this year.  My younger son was much easier to deal with in the classroom, I think in part because his class was much smaller (6 kids vs. 26).  He had the same issues with snacks and getting glutened.  We had all children wash their hands when they got to school, during snack/lunch time each child had to sit at the table to eat in the same spot each time, wash their hands when they were done, and the tables were all cleaned after the children were finished.   This seemed to take care of the problem for my youngest.   His teacher has been amazing, checking with me before she uses ANYTHING in class that might contain gluten and being super vigilant about keeping cross contamination down.  We were hoping it wasn't going to be as big of a problem in 1st grade....we were wrong.  Getting a classroom of 26 kids is a bit harder to change than 6 pre-schoolers.  They have a whole science curriculum that centers around meal worms...who live in some kind of gluten food/bedding.  It is all over the classroom.  I felt bad telling them they couldn't do it, so we tried it and I think we made it through that one okay, but this snack thing is another story.  The teacher already seems a bit overwhelmed with various other things in class and trying to educate several teachers, nurses and other staff is a bit daunting.  I am sure we will both figure it out, it just can be overwhelming at times!!!!    
  7. My son has been diagnosed with Celiac and he is getting glutened.  Best I can tell, it is coming from his 1st grade classroom at school.  Everyone is aware of his Celiac, there are doctors notes/diagnosis on file, we have met with the teachers, nurse and principal but there no 504 in place.   Here is the problem, I believe.  The students eat snacks everyday in class.  They do this while sitting in the front of the class on the floor, they are allowed to walk around eating, and to snack through out the day whenever they need.  According to the teacher about 90% of the students have gluten snacks.  There is one student who carries crackers with her most of the day setting them down on shared tables and leaving crumbs behind.  The students rotate through out the day to different tables, all of which have had someone eating gluten at them at some point during the day, without being cleaned.    We take every precaution with my son's snack and hygiene in the classroom.  He brings his own food, he eats at his desk, he lays a paper towel down to place his snack on, he washes his hands before he touches his food, he always brings his lunch and his lunchroom hygiene is very good as well.    I think he is getting glutened from all of the crumbs and snacks laying around the classroom.  Have any of you had any issues with this or dealt with the teachers/administration regarding classroom snacking problems?   Thanks for any advice you have.
  8. thanks for your response....we are going to get the biopsy, largely in part of school requirements. 
  9. Apparently both my son's have high tests results...I was wondering if there are any doctors that will give a positive diagnosis off of the blood test alone.  Meaning no biopsy?   Thanks! Alex  age 4 Deam Iga Index 212.3 Gliadin IgA postive Glia IgG Index 137.9 Gliadin IgG positive TTG IgA index greater than 100 TTG IgA AB positive Robert age 6 Deam Iga Index 115.5 Gliadin IgA postive Glia IgG Index 60.1 Gliadin IgG positive TTG IgA index greater than 100 TTG IgA AB positive
  10. I have the same question, I have read some studies that say the chances of a false negative coming back on the biopsy are higher than an false positive on a blood test when the TTG is over 100.  Any thoughts?
  11. Here are the lab results on both of my boys... Alex Deam Iga Index 212.3 Gliadin IgA postive Glia IgG Index 137.9 Gliadin IgG positive TTG IgA index greater than 100 TTG IgA AB positive Robert Deam Iga Index 115.5 Gliadin IgA postive Glia IgG Index 60.1 Gliadin IgG positive TTG IgA index greater than 100 TTG IgA AB positive   From some studies I have read if the TTG is over 100 there really is no need to do the biopsy.    What do you think?
  12. I have done some research and was wondering if a biopsy is really necessary for either of my boys.  They are 3 and 6 and we do have a family history of Celiac.  Here are their blood test results.   Alex Deam Iga Index 212.3 Gliadin IgA postive Glia IgG Index 137.9 Gliadin IgG positive TTG IgA index greater than 100 TTG IgA AB positive Robert Deam Iga Index 115.5 Gliadin IgA postive Glia IgG Index 60.1 Gliadin IgG positive TTG IgA index greater than 100 TTG IgA AB positive   I found this in a chat room and it got me thinking... "With Celiac, something like 98% of people who test positive for the TTG will indeed have a positive biopsy. In this study , 48 out of 49 people with TTG > 100 had a positive celiac biopsy. This implies that there is no point doing the biopsy when TTG is > 100. For moderate TTG levels (between 20 and 100), 50% had positive biopsies, and were recommended to "continue to undergo biopsies" until diagnosed" .   I would LOVE to hear your opinions.  
  13. thanks, i will call the doctors office on monday morning and ask for a copy of the results so i can post them and hopefully understand them better.  just so new to this i have no clue
  14. Sorry I am new here and not sure if this has already been posted...   I just got a call from my pediatrician and she said my 3 year old son's blood work came back and all the markers were positive for Celiac.  She said the next step is to get a scope and biopsy done to confirm.  She also suggested the whole family get tested for it.     So my questions are....if all the markers are positive is the scope necessary, doesn't that tell us he has it?  Can all the markers be positive and the scope come back negative?     Thanks for any info you all may have!