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RaRaMachine added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsMy SoresI don't know if these are hives or dermatitis herpetifomis. I'm on a high gluten diet (after 4 months gluten-free) for re-test.
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RaRaMachine added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsA Re-Test ...sighHi all. I'm new here. Brief history: my daughter (4) had chronic mouth eczema. Tried elimination diets, with milk, then eggs. There was a bit of improvement with the milk, but it never went away. Then I researched gluten. As I researched it I realized I had many of the adult symptoms (sores that never heal, a "celiac rash on my bottom, thighs, and under arms, inability to loose weight (after my pregnancies ...I used to be very fit and in the Air Force!)
Sooooo, at the beginning of June we went gluten free. After only a week, my daughter was completely healed (although she's been having an outbreak since she started kindergarten ), and my sores were finally healing!
I had the blood test after being gluten-free for 8 days. It was negative. All was going fine being gluten-free until I passed blood (a lot) in my stool 2x's. I then started to see a gastologist. I started having some mystery swelling/bloating. I would swell 5" and gain 8lbs! It was debilitating! I've had an ultra sound, a CT scan, an x-ray, an endoscopy, & colonoscopy since. All come up picture perfect! My dr was boggled and frankly had lost confidence, so I switched to another dr and hospital.
New dr thinks I may have had false positives on my celiac tests. 8days gluten-free for the blood test and 4 months gluten-free for the biopsy. So per new dr's orders I Am on a high gluten diet for 2 weeks, for the blood and biopsy tests.
I'm only 5 days in and I've got huge boils and I'm breaking out again. . It's so painful. Now the odd thing.....I'm not bloating like as bad as I was before??? Wth?
These tests suck, but I know that every needle and, probe, & biopsy, is one I save my daughter from. That keeps me strong.
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RaRaMachine added a topic in Celiac Disease - Parents of Kids or Babies With Celiac Disease5Y/o Having A Flare Up.My daughter & I are in the process of some sort of diagnosis. She had mouth eczema & we couldn't figure it out. I researched that gluten was a common culprit. While researching her medical issues, I realized I had many adult symptoms. We quit gluten together & both started healing. Her mouth eczema was healed in a week, & my rash is still healing.
She's had a flare up tat has coincided with starting kindergarten. I pack her lunches & her teacher is well aware of her condition. As far as I know, she's still gluten-free. I'm wondering f it's stress related? She as fun in kindergarten, but it can be stressful.
Any advice? Help? I'm taking her to the dr tomorrow, I'm looking for a referral to a specialist at children's.
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