This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
Thanks for the info. I was so focused on pregnancy and the crazy newborn period that I honestly haven't done anything beyond "okay, now I'm living without gluten." Now that my baby is four months old and I've got a bit of mental space for something past the basics, it's time I got some stuff figured out! And I'm driving my husband nuts with the should I or shouldn't I waffling re: endoscopy.
I'm glad to hear your stories about migraines! Gives me hope.
Really, it was just that my doctor thought it would be worth checking because of my thyroid. She's very thorough with things like that! However, in retrospect it might explain some things, like my chronically abysmal iron levels and (maybe?) recurring migraines.
So my doctor is good in that proactive way, but I don't know about the follow-up stuff. Like yearly work-ups. Do you know what extra stuff I should be looking into? I'm in Canada, and it's a bit tough here to get in to see specialists, but maybe I'll ask my doc for a referral...
How old is your daughter? What made you decide to look into celiac testing for her?
Thanks! You're right; it does seem pretty obvious with those kinds of numbers, doesn't it? I appreciate the straight talk .
I'm not trying to sound whiny about this or anything. I have really no desire to "cheat," and I don't think, after a year of gluten free, that I'm suffering by living this way. I just feel like I don't KNOW know, and it's kind of crazy-making. I don't even really know how I actually react to gluten because it's not something I paid attention to at all before going gluten free, so it's been tough over the last year to pinpoint if I've been glutened or if I was just feeling pregnant, for example.
I also recognize that you guys can't necessarily interpret test results for me. But my doctor seems uninformed, too, and I'm having trouble wading through the info to understand just how reliable the ttg-iga positive is as a diagnostic.
Hello! This week marks a year since I got blood results suggesting I have celiac disease. I got the results just a couple days after discovering I was pregnant (hooray!!). I didn't want to stay on gluten for even a second longer, given my concerns about my baby's health, so I didn't bother with a biopsy, figuring I could always do a gluten challenge later.
My initial blood test showed a TTG-IGA result of 110. We repeated the test about six months later, and it was down to only 8. To me that suggests that gluten was the cause.
BUT BUT BUT now I'm dithering. Before getting these results, I never really considered that I could have celiac disease. My doctor only ordered the test because I have/had thyroid issues, which she says often go along with celiac. And then I went gluten free while pregnant, so it was hard to evaluate any improvement because my body wasn't feeling normal anyway.
So now I'm in this spot where I am carefully gluten-free, but psychologically I kind of still don't think I have celiac disease because I didn't do a biopsy.
Do I do a gluten challenge and go through with a biopsy, or should I just get over my denial and accept that I absolutely do have celiac disease? Should I just go out and eat a doughnut one day to see what happens? That last question is only mostly a joke.
Sorry this is so long. Thanks for any insight you can offer. I really appreciatr the amazing resource that is this community.
Thanks for the good, reassuring, advice and the welcome. This is a great community!
I`m lucky that going gluten-free isn't be a huge lifestyle change for us. We already eat a whole-foods diet, heavy on good animal fats/proteins and lots and lots of produce. As far as gluten-containing food goes, in our own home (family's a whole other can of worms, I'm learning!) we actually had only been eating my homemade sourdough for the last little while, so I'll miss that, but there's nothing else to clear out from my pantry. From the research I've done, it doesn't seem like cutting the bread is suddenly going to cause a huge nutritional deficiency. Hooray for real food!!
nvsmom, thanks for the info about test results. I am already nervous about the idea of doing a gluten challenge, especially while caring for a newborn. And I'm going to check in with my doctor about nutrient deficiencies. I've always ALWAYS had low iron levels and had to supplement during my last pregnancy, so that's something in particular I'm interested to look into. I didn't know about the other nutrients you mentioned, so I appreciate it. And I hope I'll have the same good results with migraines as you!
Thanks! I think it's just the overwhelm of finding out that I'm pregnant AND that I (probably? maybe?) have celiac all in one week. To be honest, I'm afraid to check about nutritional deficiencies. I'm already pregnant, and there's not much I can do to correct what's in the past... I've got a really good (gluten-free, thankfully) prenatal vitamin that I've been taking for months and months now, so I'm really hoping that has helped with covering any malabsorption issues I might have been having.
mmcc54, my doctor told me that results for kids under 2 aren't always really reliable (especially when talking about biopsy), so maybe that's why her biopsy was negative? I'm taking my two-year-old daughter off gluten along with me because I've had concerns about it for her anyway, and it's easier to just feed her what I'm eating!
Hi! I'm very new to this world (two weeks new, to be precise) and was wondering if I might be able to get some advice. A couple weeks ago I found out that I was pregnant (I'm at seven weeks now), and a few days later I got a positive result on a TTG-IGA (I think that's what it was called... the requisition form says "anti-transglutaminase IgA") test that my doctor ordered for me. I am on synthroid after a partial thyroidectomy and my doctor ordered the celiac testing just as a routine thing due to the correlation between the two things. Surprise! My results came back at 110, which my doctor tells me is quite high. I didn't *think* that I had any symptoms, though in hindsight I realize that maybe bloating and gassiness after having a slice of bread isn't normal the way that I thought it was, and I wonder if I can ascribe the migraines I've long suffered and maybe even my thyroid troubles to this.
Because I'm pregnant, I've chosen to go gluten-free immediately and not do the biopsy until I've delivered my baby because I don't want to do anything that involves sedatives, etc. that's not totally, totally necessary while I'm pregant. I know that I'm going to have to do a gluten challenge at the end of all this in order to get accurate results.
I think it's probably just the hormones, but I'm feeling really, really anxious about all this and the baby and everything. Is there anything that I should be doing to make sure I'm helping my body get all the nutrients it needs to support the baby? Is the TTG test fairly reliable? Given that a positive result is anything over 10.0 U/mL, my doctor says I can pretty safely assume I've got celiac. I'm okay with this and actually a little excited about possibly resolving a whole whack of health problems with only ONE diagnosis, but it bothers me for some reason not to KNOW that I need to be gluten-free, even though obviously I'm not going to take any chances during pregnancy. Am I crazy? Is this result as high as my doctor is telling me?