This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
I'm curious, how many people here are also diagnosed with MS? And, if so, did your symptoms improve with gluten elimination? What about when you accidentally get glutened - do the symptoms get worse?
I'm asking because right before I went gluten-free I had optic neuritis. I just got glutened ( about a week ago) and had back pain, really bad, despite treatment, since then. Also have had radiating arm pain and numbness.
Yikes! This scares me because I had a bout of optic neuritis and lost about 80% of the vision in my right eye about two years ago. I went gluten-free about a month after that and have been since. I just assumed that since my optic neuritis had not returned again I was safe. I mean, I knew Optic neuritis was linked sometimes to MS but I had no idea a 9 year time span could go by!!!! ACK!
I am sorry you are going through this. But I am, however rude this might sound, interested in your journey and anything that, in hindsight, you missed over the last 9 years. Now I'm a bit concerned!
Might I ask how old you were with your first episode of optic neuritis.
THANK YOU!!!!!! The picture of them makes them look very pliable and soft! I am definitely going to have to try making these. In my "before" days I used to always make homemade flour tortillas (never bought them!) but now I find they just fall apart and never stay together long enough in the skillet etc.
Yes, that was what I thought. It WAS long. My Lord! I just sort of felt that he made gluten to be the culprit for everything. Got a headache - gluten is to blame. Got a hang nail - gluten is to blame. Don't get me wrong - I DO agree that a lot of people are gluten sensitive or intolerant or celiac but I think to blame every single ailment on gluten is detrimental to those who should be seeking other reasoning behind disease process etc. I sort of felt it was so one-sided and anti-gluten that it might actually put people off and make them not believe most of what he has to say.
Who knows. Honestly, even those people in my life who KNOW I am gluten-free have good intentions when making things for me to eat and they *think* they made it gluten-free. Most of the time, by the next morning I KNOW it had gluten in it. I know that just yesterday I was looking at corn tortillas and I found a brand that had wheat gluten in it. Heck, even CORN tortillas are being messed with!
I am lucky in that when I get glutened I just have cramping and gas and once I pass it in my stool (sorry, TMI!) I am good to go again. But that doesn't mean I want to intentionally eat the gluten anyway!
I feel your pain. I really do. This is such a complex thing and it's in so many items that unless you are really, really vigilant and well-read up on what exactly gluten-free means, even the most well-intentioned friends and family members WILL gluten you and not know it.
Now I pretty much just stick to whole foods that haven't been messed with too much. Stuff like plain old baked potatoes or a salad with no dressing etc. Less chance of gluten inadvertently being in there.
And then some people never get it. Just today my MIL brought me some left over pizza that was just "oh, so good". Some people NEVER get it.
Jay, I think you will find, after a while, that you will lose your craving for all that previously, fluffy-white, baked stuff. I know I was a huge dessert freak. I LOVED my carbs. I LOVED muffins and crumpets and cupcakes and pie and bread.....oh, how I loved the bread! But now that I have been off of all that stuff for ten months I have to honestly say that I don't miss it. In fact, once in a while I will *think* I really want something I used to have. I will make a gluten-free version of it (I am a great baker ), eat it, realize it DOES taste pretty good but then realize, "meh, it's not all I thought it was chalked up to be". I have really lost my desire for most of that stuff now.
When I realized I was gluten-intolerant or celiac (haven't officially tested) I was VERY reluctantly on the Primal/Paleo diet (hubby wanted to do it so badly and, well, I am the chief cook in this house). I did NOT want to do Primal/Paleo because of the loss of baked goods and breads. But I did it anyway and that was when I realized how crappy wheat made me feel. I mean, alllll my symptoms went away.
So maybe it is a good idea to just try some clean eating for a while. You know, not filling up on the gluten-free versions of all the muffins, cookies etc. It DOES allow your body to readjust to clean eating and then you WILL lose some of your desire for all that fluffy-white stuff. At least it did for me.
Going gluten-free I have lost 20 pounds now in ten months. That might not seem like a lot but that was with no trying at all! I never deprived myself, I never TRIED to lose weight. It is just the result of cutting out all that fluff I used to eat by proxy of me not being ABLE to eat it. Now when we have hamburgers I will just eat it without the bun. Cut out a 150 calorie bun, or equivalent traditional "wheat" food once a day and those calories really add up and your body is better without all those carbs anyway!
I'm not saying I never have gluten-free bread or a gluten-free bun. I just eat waaay less of them. Most of going gluten-free is really in your head. It's realizing you just WANT the muffins or the waffles etc because, well, now they are sort of forbidden. Once you get past your own headspace it gets easier.
I might be late to the party with this post. I was on the Ontario legislature site looking for another bill when I noticed Bill 75, the Act to amend the Health Insurance Act with respect to celiac disease screening. It seems it passed its first reading in the spring.