kstiber replied to kstiber's topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsThanks so much for your responses! It's great to hear from others in the same boat.
kstiber posted a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsHi, I'm new to this site as well as being gluten free. My main question is, do I really need to have a biopsy or to be diagnosed? I went to a nutritionist about 3 years ago because I was so tired, that I thought maybe something was wrong with my thyroid. AFter a ton of blood work she told me that I had a malabsorption problem and that I wasn't absorbing amino acids, Vitamin D, and iron to name just a few. She said I most likely had Celiac Disease and told me to try eating gluten free and also ordered a blood test (I can't remember which one exactly). The blood test was negative. I went gluten free for a week but didn't really notice a difference. Shortly after I was also diagnosed with PVC's, an irregular heart arrythmia and put on beta blockers which helped with my fatigue. Could my PVC's also be a reaction to gluten? So I ignored the celiac somewhat diagnosis until recently when I made myself realize that my multiple loose bowel movements a day were not normal even though they have been normal to me. I guess I did not classify them as diarrhea but it really is. I have been gluten free for almost 2 months now and have normal bowel movements and feel better. I did however eat 2 slices of pizza to see what would happen. Nothing happened for almost 24 hours then severe diarrhea (15-20 times a day) for at least 2 days but really not normal for almost a week. My main question is, do I really need to have a formal diagnosis with a biopsy? I felt so bad eating 2 slices a pizza that the thought of a gluten challenge prior to a biopsy really terrifies me. Thank you and sorry for the long story Kathy