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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About pebbles12

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    1. pebbles12 added a post in a topic Endoscopy Soon - Hooray!   

      Fabulous!  Is there enough of your doctor to go around?!  Here's to a smooth procedure and road to recovery
      • 0
    2. pebbles12 added a post in a topic Symptoms And Testing   

      Thank you for your replies.  I have been unwell now for approaching 15 months.  The diet I did wasn't specifically gluten-free, it was an elimination diet to see if I had an intolerance of any description.  The first two weeks was very stringent and the guidance said that if you didn't see any change in symptoms after the initial two weeks (after which you start reintroducing food groups) then there was little chance of a food intolerance and you should return to normal eating.  Which is what I did, with horrible consequences!
      I've looked at all those tests but am not sure what I had!  I just know I had a blood test and it came back negative.  Then I had an endoscopy.  The biopsy samples were not labelled up properly by the consultant doing my procedure, so they were destroyed by the laboratory without being analysed
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    3. pebbles12 added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      Symptoms And Testing
      Apologies in advance for the long-windedness of this post!...
      Last year I suddenly started experiencing awful gastric problems - severe bloating, horrific gas with eye watering smells (sorry to be so graphic) and bowel movements that were not normal. I thought I might have IBS so self-treated with various over the counter remedies and alterations to my diet, but nothing made a difference, so eventually went to my doctor for help.
      An initial diagnosis of IBS failed to respond to drugs so a series of blood tests were done, including the one for coeliac, which came back negative. At the time I was severely limiting my intake of bread, cereal etc. as I wondered if that might be that I had picked up an intolerance (as I exercise a lot and fill up on toast and cereal in between meals). I am not sure if stopping all of this could have affected the test?
      After a series of negative test results, I was back to a diagnosis of IBS. Four different drugs later and no response to any of them and I asked for a referral to a gastroenterologist. A variety of tests including an endoscopy and biopsies. The biopsies were lost and my consultant said not to worry as I 'probably didn't have celiac disease anyway'.
      Bounced back to my doctor who yet again stuck the IBS label on me and prescribed variations on a theme of drugs I'd had before, which yet again I have not responded to.
      My symptoms are so similar to many of those described with coeliac that I decided to try an elimination diet to see if that made a difference. Didn't notice too much of a change after two weeks, so returned to normal eating and went to town on toast, pizza, cereal, all the things I'd missed! But oh holy goodness did I pay the price. Was in so much pain with the bloat and gas.
      So my question is should I request another endoscopy to rule in/out celiac (even though it's a singularly unpleasant procedure!) or does the fact that I wasn't massively better after two weeks an indication that it is not coeliac?
      Thanks in advance to anyone who can help!
      • 3 replies

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