NotAVampireLvr replied to NotAVampireLvr's topic in Celiac Disease - Parents of Kids or Babies With Celiac DiseaseThanks for the replies. We live close enough (and don't need referalls) that I can take him to a specialist in Boston, I just need some "extra" validation I guess. We do suspect he may be on the spectrum, but its very low I think. I'm only thinking about diagnosis because he's getting to be school age and if we do send him to school (we homeschool) he would probably need an IEP. Will check out all the links and do some more research here too. Thanks.
NotAVampireLvr posted a topic in Celiac Disease - Parents of Kids or Babies With Celiac DiseaseNew here... I was wondering if someone could point me to some really good links that talk about gluten/casein free to help with children? My husband is on board with going gluten/casein free but doesn't "believe" that it will make a difference and I need him on my team regarding this. We are in the process of getting my 5yo (boy) evaluated and one thing that was suggested to me by numerous people was having him go gluten/casein free. Current symptoms: Undiagnosed Allergies/Asthma - tested negative for everything but needs inhaler and takes Clariten daily to keep asthma at bay Short Attention Span Difficulty even getting attention and his focus - his hearing has been checked. Moody/Emotional Dark Circles Under Eyes Pale skin Overtired - still naps daily at 5 1/2 Clumsy/Poor Gross Motor Skills Keratosis Pilaris (I have this as does my 4yo daughter - could be genetic) We have not yet had him screened for Celiac as he doesn't really seem to have any obvious symptoms of that. He has other behavioral symptoms - he's just very different from my other two children... I'm pretty sure he's got sensory issues which we just cope with because nothing is out of control in its severity. We suspect he might be on the autism spectrum - on the low end, but are not sure if we will seek a diagnosis at this time. He's my dreamer and his quirks are what I love best about him, but he does stand out because of them. As far as other allergies in the family: MIL - too many to keep track of and constantly changing Father - environmental asthma Mother (me) - environmental asthma, chronic digestive issues (undiagnosed and needs its own post) Brother (age 8) - Allergic to food dye; sensitive to high fructose corn syrup Sister (age 3) - digestive issues (constipation, sour stomach - also undiagnosed) I think my husband is skeptical because my MIL has so many allergies - too many to keep track of and I'm not sure he knows how many are legitmate and how many are anxiety-induced. Any informative links that deal with this would be appreciated! Also wondering if its worth getting tested for Celiac before going gluten free? I'm skeptical of the panel just because of the false-negative rates. Is it a blood draw? We had a really traumatic experience with the allergy testing on this same child and I don't want to put him through that again.