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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About Serenity1366

    • Rank
      New Community Member
    • Birthday 05/13/1966

    Profile Information

    • Gender Female
    • Interests Badminton
    • Location Hampshire, England

    Serenity1366's Activity

    1. Serenity1366 added a post in a topic Any Uk People Joined Celiac Uk   

      lol,  yes starch for me too.   I registered with Juvela, they have sent me a couple of loaves of bread and today I received a starter pack.  Which I think is really nice, I know they are promoting their products, but I still think it's nice.
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    2. Serenity1366 added a post in a topic How To Cope While Waiting For Biopsy?   

      My thoughts are with you Mum in Norway. x
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    3. Serenity1366 added a post in a topic The Song Name Game   

      "Boom Bang-a-Bang"  Lulu
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    4. Serenity1366 added a post in a topic Modified Maize Starch   

      Thank you for your reply. oops I am still blindly stumblying around the site.  I checked their website and it had wheat gluten in it.  The allergy warning on the package didn't say wheat, but on the website it stated Allergy Warning - Wheat Gluten. And here's the thing...on another page it says it is suitable by showing the cross grain.  Confused?   I am
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    5. Serenity1366 added a post in a topic Any Uk People Joined Celiac Uk   

      I must say I was not impressed with the Food Fair.  It was all cakes, biscuits and cereals.
      One stall asked me to sample their bread, but did not know what was in it (dried milk powder, when I checked)  it had Country Life butter on it.  Being Lactose Intolerant, I thought I would give it a miss.
      And on top of that; the restaurant did not have gluten-free sandwiches or soya milk so I couldn't even have a cup of tea .
      The one and only time I stupidly thought I could eat out and be safe...stupid, stupid, stupid (bangs head against wall).
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    6. Serenity1366 added a post in a topic Warning About Amy's Frozen Meals   

      I think from now on I will look on the websites, cos it's clear as mud.  A pack of Blue Dragons sauce did not state wheat gluten or Allergy information on the back of the pack, but on their website they stated it had wheat gluten and had an allergy warning... then on another page on the some site said it didn't content wheat gluten and it was suitable and showed the cross grain sysmbol.  I am soooo confused .  My tummy was not - it just didn't like it at all
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    7. Serenity1366 added a post in a topic How To Cope While Waiting For Biopsy?   

      I am due to start my gluten feast next week  .  After eating gluten yesterday (by mistake) and still bloated with joint pain, I am wondering if I should start now for the test or not go back on gluten at all...something I will have to think about.
      I think you are both very brave   I hope this will be it for you both, and as you say; you will have all your life gluten free and happy.  There is a light at the end of the tunnel .
      Mum from Norway, if you had a positive test. Why do you have to have the biopsy?  I thought that if you have a positive blood test you do not need the biopsy, or is this still carried out to investigate damage to the small intestine?
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    8. Serenity1366 added a post in a topic Modified Maize Starch   

      Help it's back
      My stomach has been good for about 2 weeks.  Tonight I had a chicken and veg stir fry with Sweet Chilli & Garlic Stir Fry Sauce, this is the only processed food/sauce I have had in 2 weeks.  Within an hour and half after eating, my stomach became uncomfortable and I felt sick, then low and behold my tummy blew up, back pain and yawning my head off. 
      Seriously, what is going on I have looked up Maize Starch; but that is meant to be ok, right?  Please   tell me what I have missed?
      My doctor 2 weeks ago told me to keep off Gluten, Wheat, Milk, white rice and pototoes.  I have not been tested for Coeliac as yet, as I took myself of wheat a month ago.  Next week I am planning to reintroduce gluten etc, as directed by my doctor so I can be tested in 5 weeks.
      Sweet Chilli & Garlic Stir Fry Sauce Ingredients:
      Water, Sugar, Minced Chilli Paste (5%)(Chilli Peppers, Water, Salt, Acetic Acid), Chinese Rice Vinegar (3%), Maize Starch, Spirit Vinegar, Garlic (2%), Sake, Salt, Chilli Powder, Colour:Paprika Extract.
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    9. Serenity1366 added a post in a topic The Song Name Game   

      'Baby come back'  UB40 & Pato Banton
      Too young to remember Player  ... ok ok I'm not!
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    10. Serenity1366 added a post in a topic So Fed Up   

      It poses the question, does it not?..if a condition that cannot be seen is dismissed as a person being a hypochondriac, what of heart disease, Crohn's disease, Arthritis and Asthma? 
      I think if/when I encounter a negative reaction I do not think that I would waste my time on getting upset and stressed, at the end of the day it is their problem; that they have to deal with.  We all have enough issues each day with fighting the ‘Gluten Dragon’.  I feel the more you try to explain or make them understand, the more they will dig their heels in and not let it drop.
      I am lucky at the moment as it is early days for me. I have not encountered this heartache. I have only told my Mum who said she knew I had a problem with wheat and milk, and is surprised I have eaten/drunk it for so many years and suffered.  But when I visit her, she will totally forget   lol.  My work colleagues are great.  They wave biscuits and sandwiches under my nose, but we laugh and I call them bad names,   lol.  We have a laugh over it, but bless them they never slip up and put normal milk in my tea . My 14 year old son totally gets it, and made some pretty good observations and ideas.
      My heart goes out to you all, but you have this forum to run back to for a quick hug and support. 
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    11. Serenity1366 added a comment on a blog entry Oh, Hullo!   

      I did laugh at the gluten rolls. :)
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    12. Serenity1366 added a comment on a blog entry The Grief Of Getting Better?!   

      I long for a clear head and energy.  I have been 3 weeks GF with only 2 accidents. And the thought of having a clear day - keeps me sane..ish!
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    13. Serenity1366 added a post in a topic Any Uk People Joined Celiac Uk   

      Yes, I joined Coeliac UK a few weeks ago.  I was so chuffed to receive the Welcome pack, I didn't really read the details of signing up as I wanted to access a part of the site only available to members.  So as I said I was chuffed to receive the Food & Drink Directory.  They sent me a Crossed Grain magazine this week, too.  Which has been a god send; as I have been home sick this week with severe tiredness, I think due to Iron deficiency (awaitng results from full blood test).
      As for moving around the site and the forum bit, it is a bit confusing, but they say there will be a revamp of the site soon.
      On another note Juvela sent me two loaves of bread.  Again that was a total surprise.
      Off to the Coeliac Food Fair in Salisbury today (I'll added the details if that is ok?)
      The South Wiltshire Food Fair is taking place on Saturday 29 June from 10.30am to 3pm at:

      Southern Counties Auction Rooms
      Salisbury Livestock Market
      Salisbury Road
      SP2 8RH

      For more information on this and other Local Group events, visit or email the Local Group at
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    14. Serenity1366 added a post in a topic Newies Story So Far!   

      cough cough   will do.
      Just another question...I woke up this morning with joint pain in all my joints and swollen fingers, they normally swell up a bit at night when I sleep and I have to take off my wedding ring as I wake up in pain. But with the weight I have lost over the last few weeks it is very loose during the day time.  Question - is this normal after coming off gluten?  
      I must said there is some weird stuff going on with my body at the moment.   
      I will miss the hair falling out   (I have very thick hair),  but I will not miss the self inflatable tummy
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    15. Serenity1366 added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      Newies Story So Far!
      Hello All,
      I have been suffering over the last cough 6 years with bloating...I know I should have gone to the doctors then, but hey.   So 2 years ago, I cut out bread, and that stopped the migraines and diarrhea. But I replaced the bread with Weet-a-bix and milk for lunch at work. 
      Ok, I know this was silly, knowing that cough cough years ago my doctor then, told me to cut out wheat and milk...but hey back in the 80's there was not much to eat (that is my excuse and I'm sticking to it). So I ate Rye bread; funny it didn't get better!  If only the internet was around.
      So constipation and I have been great friends over the years. We've stuck together like glue, you could say.
      Anyway, finally I could take no more!  So I started keeping a food diary for a week.  Cutting out gluten...or what I knew was gluten.  I would love to say it has been easy sailing with no hiccups.  But the Tesco Cottage Pie defeated me for 2 days, by exposing my ignorance at reading the back of the packet and the lack of  gluten-free food in the small Tesco’s Express, I grubbed at it. Then, there was the MayonnaiseL.  I am now wiser with a happier tummy, only because I have been accosting people at the gluten-free shelves in Sainsburys and Tescos. And bombarding them with questions.
      Last Tuesday, I arrive at the doctors with my food diary, sick record from work and list of symptoms to show the doctor.  Ready to do battle to get him to read my food diary or fall at his feet and beg him not to ask me to eat gluten so he can run blood tests. 
      He just looked at me and asked why I had left it so long. And started writing a list of foods I could eat.  I was a bit shocked with the milk and oats (yeah I know I should not have been, but I was), didn’t really understand about potatoes and white rice being taken out of my diet. But by the power of Google it’s something to do with the body seeing it as gluten sometimes.
      The real reason I have joined you fair folk is to stop feeling so isolated and confused.  I have had a really bad time since I have given up gluten.  Tummy is great, but I have a bad head, feel totally weak, hands are swelling up in the night, a bit dizzy and yawning my head off. Same foggy head, so no change there. I am so tired I am not been going to work. Is these symptoms normal?
      I revisited my doctor this week who sent me for blood tests (Thyroid, Ferritin, Liver and Kidney and few other things), I am now waiting for the results.  He has suggested we speak about me returning to gluten for 5 weeks, so I can be tested for Coeliac. I am still unsure what to do.
      Thank you for reading my story.
      • 4 replies

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