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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About Hedgehog

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  1. Thank you - that is so helpful to know. Even though our school were really cooperative and tried hard, it was quite a challenge and we dealt with numerous accidental gluten exposures...
  2. Seraphim, my understanding is you should take Mg to bowel tolerance. If you get the runs, you need to back down to the previous dose level. For me, this does vary a bit but depending on the rest of my diet, it tends to be closer to 1200mg a day...when i'm doing great with my diet etc, I seem fine for a while without any supplement, but if I get glutened etc, I am right back to needing at least 800mg a day.
  3. Thank you for the feedback. Yes, I agree testing would be appropriate and we plan to do this (among other things). We don't have the more serious symptoms, so I think strokes and similar are highly unlikely, but certainly supplements seem very beneficial, so for sure something is going on, but tests should enlighten us. My assumption was that villi might be damaged and cause malabsorption, so I wondered if this is common for others - sounds like it is for gluten intolerance or Celiac.   VeggieGal - that sounds so frightening with the drip and all the associated pain. What a traumatic experience for you   Thanks again. H
  4. I figured out that I do much better on fairly high doses of Mg daily, which helps my constipation. I take anywhere from 800-1200mg a day to have one normal BM. When I make smoothies with all the good stuff (kale, ground flax seeds, maca powder, spinach, frozen berries, hemp oil, chia seeds etc) I seem fine without the Mg.   I believe my kids are also Mg deficient, since they get restless legs badly at night, and I found that putting the Epsom Salt cream (Kirkman) on them helps enormously. Mg oil makes them sting a lot (apparently a sign you are deficient).   So this got me to wondering - if we are gluten intolerant (or even celiac) and possible damaged causing malabsorption, is this commonly linked to Mg deficiency? Have others experienced this?   Thanks  H
  5. Thank you so much - so you think the biopsy is the best thing for the kids, even if the blood test doesn't pick it up, and even if we plan to go gluten free at home anyway?   My husband (who honestly doesn't care if he is gluten sensitive or not - nothing will stop him eating the stuff!) would be the only gluten eater in the family, and while I hate to restrict him at home, I am thinking this is probably the best for all of us....   For those few things he might miss, I will get a bread machine and make it strictly gluten-free and get rice pasta. Soy sauce is something he loves, but Tamari is gluten-free. Gluten is just one of our intolerances, so I'm fully prepared to adapt to that if it means health for us all.   I just don't see the point in putting my kids (and myself) through blood tests and biopsies if we are going to do this it really necessary?
  6. Mouth Issues

    Could it be something in your toothpaste? Perhaps try switching to homemade for a few weeks and see if that helps. You can google some simple recipes.
  7. Thanks for your replies!    I agree it doesn't matter about Celiac vs. Gluten intolerant for myself - I know wheat harms me. The main reason I'm wondering (and should have put this in my sleep-deprived post) is because I have 2 kids with severe eczema and numerous food intolerances, who often feel cold (and we live in a tropical climate!) and have ADD type behavior at times (I know certain foods are definite "triggers" for this)...   I don't want to put them through an unnecessary biopsy or more misery than they have already endured.   If I go through the eating lots of wheat and getting tested properly as suggested, and I do have Celiac, does this mean they are likely to have it too (or at least be intolerant)? Is there anything I can do to minimize risk for them in the future, other than adopting a strict gluten free diet for life?  I don't have an issue with gluten free cooking etc myself, the hard part is the lack of spontaneity, being able to join in at social things and parties etc. Because the kids are also avoiding eggs, dairy, corn...the is hard in addition to the gluten.   I understand there is some link between Celiac and eczema. We accidentally ate wheat yesterday (in soy sauce) and both kids had HUGE eczema flare ups. Can't be sure the wheat was the cause, but I assume it might be since we have been avoiding it so much, and they have probably only had tiny exposures (accidentally/contaminants) until yesterday.   Thanks again for your experience and advice H
  8. Hi all,   I have been gluten-free (but not super strict) for almost 12 months. I know I have issues with gluten, but I tested negative for Celiac in a previous blood test...does this definitely mean I don't have Celiac?   When I do (on rare occasions) regrettably eat wheat, I get the following: - peeling/flaking skin on my temples and scalp - aching knee joints when going up stairs - what might be blood in my stools - it is deep rusty color, so hard to tell - sometimes slight stomach discomfort, but pretty mild - sometimes stomach bloating - feeling very fatigued (suspect this could be tied to the possible blood in stools?)   I generally have the following (whether avoiding gluten or not) - thyroid tends to hypo side but seems to respond well if I take care of it and eat well, rest etc, and take a tiny amount of Lugol's - anemic - to the point where I used to pass out when I had peroids - anemia also caused my periods to be monstrous - enormous clots the size of an orange, severe fatigue and brain fog etc - chronic constipation - ADD/brain fog - prone to candida - had childhood eczema - it is now confined only to my ear canals, which itch terribly on occasion   When I ate wheat regularly I was an absolute addict...I loved and craved the stuff, and felt "empty" without it in every single meal. When I first stopped wheat my stomach growled a lot! I also experience a lot of bloating and lower abdominal discomfort when I eat wheat regularly, but for the odd infraction I seem to be okay in that regard.   Is it possible I have Celiac and it was missed somehow? Or are these symptoms also pretty typical of an intolerance? My mother also can't tolerate wheat (but also tested negative for Celiac with a blood test), and on my maternal side we have diabetes, chronic fatigue, MS and cystic fibrosis. Not sure which of those are linked if any, but I understand genetics play a role. My kids also both have severe and chronic eczema which is the misery of our lives.   Would love feedback and whether testing is something worth pursuing in our case!   H