This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
I think I have IBS on top of the celiac disease, or it's just my body still trying to heal from the damage the gluten has done. I can't handle a lot of fat either, and I have stomach issues when I get stressed out. It doesn't take much. I will definitely start a food diary.
Yes it definitely helps to vent. I'm glad this forum is here to talk to people who actually get it. Thanks for your support.
Yes he asked and i told him I was not officially diagnosed. Good idea! That's what I'll do when I get a new therapist. That way I can get some actual therapy and not just another person who doubts me. Thanks /hug. It really is frustrating. I'm glad this forum is here to get support from others who know how it is.
Thanks for your reply. I was in therapy a few months ago, and my therapist didn't believe that I had celiac. Mainly because it was not diagnosed by a doctor. It was hard that not even my therapist believed me (along with a bunch of friends). I eventually did get tested by a doctor but it came out negative because I had been on the gluten free diet for about a year at that point. I did learn a few good skills but I think it would have been more effective if my therapist believed me.
Thanks for the reply. Yeah, I don't think it was the crackers. I think it was the thyme. I found a website that says Simply Organic single ingredient spices are not certified gluten free and the company does not guarantee that cross contamination is not present.
I know my original post is a bit misleading, but I have been gluten free for almost 2 years. 3 weeks was the first time I got glutened in months (and last night was the second time in months).
Hello, thanks for your reply. I've been gluten free for almost 2 years. 3 weeks ago was the first time I got glutened in months (and last night was the second time in months). That's another thing that makes this whole thing so infuriating, I thought I had it all under control and then one little mistake messes it up again. No I don't keep a food diary but I definitely should.
Hello, Thanks for the reply. I know my post is a bit misleading, but I am by no means a newbie. I have been on a gluten-free diet for almost 2 years. This is the first time (and second time last night) I have been glutened in months.
I was wondering how you all cope with the
incredibly frustrating cycle of celiac disease. I am livid. I got glutened about 3 weeks ago and decided by process of elimination that it was most likely caused by the Absolutely Gluten Free brand flatbread I ate. I was finally starting to feel normal again when last night I began to have symptoms again. Then I found out that it was actually the Simply Organic brand thyme all along that is probably cross contaminated. Now I have to be sick all over again for another 3 to 4 weeks and I am really fed up with this bs. I don't know how to cope with the absurdity of finally feeling well again and then just like that getting sick again from one stupid little mistake.
I recently tried Absolutely Gluten Free brand flatbread and I got sick when I ate a significant amount of it (symptoms including extreme fatigue, muscle tightness, stomach issues, sneezing, stuffy nose, dry burning eyes). Has anyone tried this product before and had a reaction and/or does anyone have verification if this product is or isn't cross contaminated?
I recently went to the doctor. They tested for h pylori, thyroid, liver function, kidney function, and blood test for celiac disease. All came out normal.
I'm pretty sure I have celiac though because I have a very strong negative reaction when I accidentally eat gluten, so I think it was a false negative because I have been on a gluten free diet for a long time before they did the test.
Anyway I figured out what was causing the problems I mentioned in my original post, it was potatoes. I'm intolerant to all potatoes including yams and sweet potatoes. So I've been eating a lot of plantains, white rice, fruits and veg as a substitute for all the carbs I can't eat. I feel healthy now for the most part except I still can't gain weight (though at least I'm not losing anymore).
Thanks for the reply. I eat a lot of white rice too, because it's also the only grain I can eat. Are you worried at all about the arsenic in rice? And if so, do you do anything to limit the arsenic in your rice? The FDA did some studies recently and found there are pretty high arsenic levels in all rice products, though white rice does have less than brown rice.
I just got results back from a gluten blood test. They were normal.
Is is possible to get a false negative blood test because I've been on a gluten free diet since January? Also I haven't accidentally eaten gluten for over a month before the test was taken.
I'm pretty sure I have celiac disease because when I accidentally eat gluten (even very small amounts) I get a severe reaction and am sick for 1-2 weeks.
Since going gluten free in January, I have had to remove several foods other than gluten from my diet that I have intolerances to (or that I refuse to eat because it's processed).
Here is the list of foods I have removed from my diet since January:
2. most other grains, except for rice (this is mainly because when I ate millet, brown rice, quinoa, oats, etc... i got similar symptoms as gluten, and corn is GMO'd so I refuse to eat it unless it's organic, and it's hard to find organic corn so I usually don't eat it).
3. most processed foods
4. chocolate (i had to stop eating dark chocolate because it was causing bladder problems)
5. dairy (i have been dairy free for almost 10 years now, way longer than gluten-free).
So, my main problem right now with how I eat now is, I'm having peptic ulcer type symptoms, IBS type symptoms, and weight loss. I was perfectly fine a few months ago on this diet, but for some reason it all went downhill within the past few months, even though I'm almost 100% sure I'm not getting any cross-contamination or "hidden" gluten in my diet.
My question for everyone is, how the f do I get enough carbs without gluten, and without most other grains and processed foods? Right now I'm limited to these carbs: sweet potatoes, yams, other root vegtables, white rice, and fruits high in carbs such as bananas, apples, etc. Maybe my stomach problems are being caused by too little carbs? Is that possible?
This website http://caloriecount.about.com/percentage-fat-protein-carbohydrates-necessary-balanced-q1385
says per day percentages should be:
Now I'm pretty sure I'm eating way more fat and protein than that per day, and not nearly enough carbs. How in the hell do I get more carbs? Any ideas? I feel like I just need to suck it up and eat processed food?
Thanks for the replies everyone!
I think I'm going to stop talking to them about it, unless they specifically ask about it, or if it's unavoidable (like when going out to eat with them).
I finally have an appointment tomorrow with the doctor so hopefully I will get some definite answers soon.