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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About greenchick22

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  1. I've been gluten free for 2 months now (blood work negative for celiac, but doctor thinks it could be intolerance).  I was hoping at this point I'd be feeling a lot better but I'm not.   Still exhausted, achy, skin problems.  I've had more stomach issues the past month than I have in many months previously.  I'm starting to wonder if either   -I'm not gluten intolerant after all and i should stop the diet...I keep losing weight and I'm way too skinny.     or   -If cross contamination has been affecting me.  I guess because I don't have Celiacs I didn't worry too much about that, but maybe if I'm very sensitive I need to.     Anyone else who is non-celiac gluten intolerant have to be very careful??   Thoughts?   Thank you!
  2. Thank you so much!  I was eating normally at the time.  
  3. I haven't been diagnosed Celiac (negative blood test) but I am gluten-free for almost 2 weeks now.  I was diagnosed with lactose intolerance about 10 years ago but that's progressively gotten better the past few years.  I've found I've been able to eat more dairy foods without issue, unless I have too many the same day or certain things (like a milkshake).  Now that I've gone gluten-free though, I'm suddenly having diarrhea! (didn't have stomach problems with gluten)  I think maybe it's the dairy.  Why would this suddenly become a problem?  It seems common, but I don't understand why.  Can someone explain?  I'm a bit hesitant to go dairy-free because I first want to make sure I can't tolerate gluten.  If I do both at once I won't really know and may be cutting one out unnecessarily.  Thanks!
  4. I posted several days ago about my negative results and they came today.  I would love someone to explain them to me!   Celiac Panel 10     Test                        Result                             Flag                  Acceptable   TTG AB IGA              1.5 U/ml                          N                        <20   Gliadin Peptide AB IGG         10.1 U/ml            N                        <20   Gliadin Peptide AB IGA     2.1                          N                        <20   TTG AB IGG             10.6                                N                         <20   IGA                            106                                N                        69-380   Endomysial Screen - Negative   *There is a note at the bottom that in the case of negative results and still suspected Celiac, the total IGA should be measured to test for deficiency.  Could I possibly have that?  How does one know whether to pursue that?   Thanks so much!  
  5. I posted several days ago with my symptoms.  Called today and turns out the test was negative.  The doctor (integrative) recommends I go gluten-free for at least 1-2 months to see if I have Non-Celiac Gluten Intolerance.  My question is - should I push for a biopsy instead?  It would be really nice to have an official diagnosis, but then again I don't wait to feel crappy for a few more weeks when I could start going gluten-free tomorrow if I pass on the biopsy!  Any thoughts??    
  6. Thank you both!  As crazy as it sounds, I'm almost hoping that I can get a positive diagnosis.  At least then I'll have some knowledge about changes to make and hope of feeling better.
  7. Hello!  I'm in my thirties and had a Celiac blood panel about 10 years ago due to a lot of gastrointestinal issues at the time.  Blood test came up negative, endoscopy showed inflammation but that's all they told me and then diagnosed me with IBS.  I didn't know to ask more, I was so young, but I wish I had pushed for more info.!  Following that I took Levsin for my stomach, which helped, and on my own went off of dairy and basically diagnosed myself lactose intolerant.  Also started probiotics.  Stomach was much better, but it still flared up sometimes.  Fast forward a few years and I started experiencing fatigue that got worse and worse.  I feel like I could sleep for 15 hours or more if I didn't have to work.  I feel lazy, but I'm just too tired to do anything!  I used to be motivated to exercise but not anymore.   Other symptoms that have appeared or worsened over the past few years:  loose stools (sometimes), gassy, burping, eczema, itchy skin, anxiety, depression, irritable/moody suddenly for no reason, terrible pms, "fuzzy" thinking, memory problems, can't concentrate, easy bruising, hip and leg soreness,  weakness in muscles of hands and arms and sometimes face, congestion/frequent sinusitis, dry eyes and mouth, costochondritis, asthma,  more cavities (never used to have them)   Last year my liver was enlarged and I had low potassium and had to take a supplement - it improved and nothing was ever found out about why the liver was inflamed.     I had a blood workup a few months ago and turned up deficient in Vitamins B and D.  Iron wasn't deficient, but also wasn't very high.  The range is 10-291 and mine was 32.   Red blood cell count was a little high, and alkaline phosphatase was a little low - both of which they said not to worrry about.  They put me on high doses of vitamins to handle the B and D and I thought surely my depression and fatigue would improve with those, but no such luck.     I feel awful most of the time and miss the energy and zest for life I used to have!  I just had another Celiac panel, in the hopes that maybe something will turn up this time.  Is it possible to test positive years later, after testing negative? Does anyone have suggestions on what to do if the test comes up negative again?  I'm almost certain I have some sort of gluten problem...not thrilled about a diet change but if I feel better, it will be totally worth it.   Thanks!