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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About MomToCeliacs

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    1. MomToCeliacs added a post in a topic Siblings Have Celiac, When Should Baby Be Tested?   

      We have a mixed kitchen just because it is less expensive to feed two kids 100% gluten free than it is to feed 6/7 people. Neither of them have been glutened in our kitchen since maybe two, three months after the two were diagnosed. There are some gluten things we restrict, and we try to not have sweets/treats in the house that have gluten, just to be fair. (Also, gluten free desserts are pretty darn good.)
      We didn't deliberately add gluten to the baby's diet, like, "oh, she's starting solids? let's overload her with gluten, get that celiac's rolling" of course. Essentially we let her eat whatever she wanted to eat as long as she would eat it. We tried to get her to breast feed again after my diet was controlled, she had little baby associations that food/breast = bad. It was poison to her, so I can't blame her. So we didn't want to restrict her any more, especially since the peanut allergy at least will more than likely be a lifetime thing and we were even told that more allergies are likely to crop up (though hopefully she'll grow out of the milk!).
      Maybe we should have kept her gluten free. But we needed her to eat something, as her weight was severely plateau'd.
      We asked her doctor if continuing with gluten (I wasn't entirely gluten free while breast feeding, so she likely was getting some in her via breast milk anyway) was a bad idea after the first wave of allergy tests. We were told to take it bit by bit, but that the rash didn't look at all like dermatitis herpetiformis and she had no GI issues, so we had no reason to believe that she was already Celiac, but to watch out for more Celiac related symptoms. This is also where we got the news that it would be for a few years until the testing started to become reliable, and her severe peanut allergy combined with how much peanut butter I was eating while breast feeding was enough to think it was just peanuts at that moment. She didn't start reacting to milk until after she started the milk based formula. We switched it after we thought it could be the milk (in between the peanut and dairy dx we got a pretty disapoiting diagnosis of, "maybe it's JUST exzema"), and BOOM, finally thrived.  
      I honestly don't think she is being effected by the gluten at the moment, and if she IS, it is so extremely mildly. She's doing great, back on her own little weight curve and is just much more pleasent in general. No rashes. If my oldest two weren't celiacs I would have no reason to think that she has it. But she has a liklihood of getting it, which brought on the mama worries. I started thinking of it after I scheduled her 18 month allergy retest, which will be the end of September.
      As per advice here, I think we'll try to get her tested around the same time as her 18 month allergy retest, and sooner if she starts showing symptoms that are worrisome. 
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    2. MomToCeliacs added a topic in Celiac Disease - Parents of Kids or Babies With Celiac Disease   

      Siblings Have Celiac, When Should Baby Be Tested?
      Hello! I am the mom to five kids. The oldest son and daughter were diagnosed with celiac at the same time at age 9 and 7, though they both had been suffering for years (my son worse). The two younger ones were tested, then 6 and 4 and neither test positive and neither have symptoms. Both kids are great without gluten at the moment, and the other two kids don't have all that much gluten but are exposed to it readily and are also fine.
      There is no family incidence of it, but my husband and I must have the genetic component in there somewhere.
      We also have a baby, now 15 months old (12 months-ish adjusted) with food allergies, which none of the other children have. She was dx'd with a peanut allergy at 9 months and a dairy allergy at 12 months. She was failure to thrive pretty much since birth, but officially around 8 months. She was a preemie born at 27 weeks after IUGR, so she was frankly destined to be small.
      Seems to be doing very well with her diet at the moment and is finally gaining weight again, but we are told that she will likely have more allergies crop up when she is tested again at 18 months.
      Thus far her main symptoms for her allergies have been skin rash/exzema and general grumpiness/colic, as well as some concerning enlarged lymph nodes. Around 5 months while she was exclusively breast fed, I started an elimination diet due to the rash, but it didn't help. As her rashes got worse and the lymph nodes got more enlarged, allergy testing was suggested and we got the ball rolling with the peanut dx and dropped the breast milk entirely... to a milk based formula, which led to the dairy dx. Never had her tested for celiac, as we were told it wouldn't be until age 2 or 3 at least where she would be able to be diagnosed.
      We introduced gluten to her diet at 9 months/6ish months adjusted because I know that in order to be diagnosed she has to have had gluten in her. She has yet to have what I think are the more classic celiac symptoms -- various tommy troubles. Even on gluten, her rash is essentially gone except for some dry skin and she is no longer spotty and scratchy.
      But because of the food issues already, and the familial incidence, we want to get her tested as soon as it would be realiable. Should we wait for symptoms or should we test sooner rather than later? With no symptoms, even if she will develop Celiac, will she be able to be tested for it now? Maybe wait until 18 months with the rest of her allergy tests?
      Thoughts, celiac parents?
      • 6 replies

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