This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity
InterestsI love playing volleyball, watching BAMA Football, reading anything I can get my hands on, writing (I'm an aspiring author!), taking care of kids (Elementary Ed. Major), and anything and everything orange!
Well, I guess I haven't been on since around last Fall or sometime around there. Either way, it's been a while! I just finished my Sophomore year of college with a 4.0 :rolleyes: and am finally back home for the summer! Some of you may have heard about us on the news recently actually... we had quite a lot of rain a few weeks ago that basically destroyed half the town. My house is okay though! The roads, however, are not.
Last time I was on here I was still very much struggling with avoiding all things gluten, but I am very happy to say that I have been completely clean of it for at least 6 months now! I feel absolutely amazing :D
I have also almost finished my weight loss journey! I have lost almost 30 pounds and now weigh in at a nice 145lbs. SOOO overall it has been a pretty successful few months!
Oh and my mom has decided to do this low-carb diet and so she's avoiding gluten too for the time being. It makes my life at home a LOT easier and she's starting to understand how hard it actually is. It's about time she got some perspective on my life!! :P
Well that's it! How has everyone been doing?
I attempted to cook some gluten-free noodles in the microwave today because I REALLY wanted some alfredo. Well the noodles got all goopy and had white creamy stuff all over them and tasted pretty nasty. I wasted like half the package
I got a microwavable container and added my noodles and water and them stuck them in the microwave for 10 minutes, stirring every 2 minutes. What did I do wrong? Or do I just have to cook these noodles on a stove top?
I live in a dorm and we do have a stove, but all the pots are missing so I thought I'd try this. Anybody have any ideas?
I think it's really sad, and I'm sure a lot of you would agree, that I am so elated to go back to college because I know people understand my needs there. This summer has been such a struggle being at home because my family just doesn't get it. I'm not sure they ever will. After being relatively gluten-free for over a year now I realize how much I was taking for granted when it comes to food.
This sounds a little silly, but food is amazing you guys. I mean, it gives us energy AND tastes amazing? God knew what He was doing when He made our food. I'm a hardcore food lover and being gluten-free has made life a little bit miserable for me. When I'm away at school though, I can make the right choices for myself because they are available to me. At home, everything I want but can't have is staring me in the face. And then when I do have things I can eat, my family members eat it all. :angry: Example: We buy Chex cereal for me to eat for breakfast and we buy random other brands for my mom, dad, and brother to eat. I have 2 boxes to last me two weeks until we make another grocery run. This isn't an issue for me because while I love food, I eat it in moderation because I'm terrified of being fat haha. However, my family chows down on MY cereal first and then when they are finished devouring it, they move on to their own cereal....leaving poor Lexi with nothing. And they just don't care.
Some of you may also have picked up on that I don't have a great relationship with my mother. Sadly, this is the case and I don't see it changing any time soon. She and I used to be really close when I was younger and she used to be more like my sister than an actual mother (she's only 18 years older than me). Then she got remarried and had my brother when I was 12 and our relationship died. This whole experience with Celiac has pulled us apart even more. Some days I feel like she is trying, and then some days she back to her old selfish self. I will refrain from saying any more. :)
I just feel like my family is so much more judgmental than the rest of the world and that shouldn't be how it is. I'm supposed to be comfortable in my own home right? I'm supposed to be able to be myself with my parents! Instead, I'm fearful of getting sick and self conscious about every detail that makes up who I am. Especially Celiac.
And then there are the other people out there who just don't get it or don't want to accept it at least. I tell someone I can't eat gluten and they act like it's just a phase I'm going through. One of my family members actually had the nerve to tell me that I cried wolf so many times growing up that people just don't believe me anymore. Don't they see that everything that was wrong with me leads back to my disease?? I wasn't crying wolf! I was a sick child who just wanted to feel better.
I just feel like people who know me could be a little more accepting and comforting. Celiac took things I love from me. It took the food I love, made my brain foggy, made me malnourished, and I was so sick my senior year that I missed my opportunity to play college volleyball (with the help of torn ligaments in my knee and a broken ankle). Now as an almost 20 year old college student I am trying to pick up the pieces and find my passion for life again, but it is pretty dang hard when everyone that should be supporting me seems to be against me.
Sorry for the rant guys. I just needed to get that of my chest.
P.S. I found this link and it explains my life perfectly and I suspect many of you feel similarly.
I meant to post this topic ages ago when I was on vacation, but it totally slipped my mind until just now.
When I was going through my lovely glutening experience earlier this month I started to notice that my throat would feel kind of itchy immediately after eating something that contained gluten. When I was on vacation I was extremely good at staying away from gluten, but I ended up getting contaminated by some Annie's cheddar bunnies that I thought were gluten free (even though it says ORGANIC WHEAT in big letters on the box *face palm*). Immediately after eating the handful of bunnies, my throat seemed irritated and itchy. I've never noticed that before.
Anyone else have new symptoms just randomly pop up??
So my brother turns 8 this month and I was pretty excited. Until I realized I'd be expected to bake his cake like I always have. It's not really a problem, but it's just depressing. Obviously mom doesn't want it to be gluten free because she thinks people will notice. No offense to my mother but I have mastered the gluten free baking technique. They wouldn't know. Why do I know this? Because my mom doesn't even notice ;)
Anyway, I have to bake a brownie cake and then ice it and it's going to look awesome (I may post a picture when it is done) but the whole time I will be paranoid of getting glutened. Or falling into temptation.
On top of this, my brother's party is at a pizza place! So exciting right?? Ha. And the snackies? Oh there will be things like pretzels and cookies and some things I can eat, but the little gluten covered hands will be all over everything...so that's not happening.
We are also celebrating MY birthday this upcoming weekend even though my birthday is a month away. I leave for college though so we are having our family shindig early. I'm getting cupcakes from this amazing little place downtown called Oh Snap! And they have been so good to me:) But I can't be too happy because all my family members are in the background complaining.
Does gluten free food really taste that bad? I mean...I don't really remember what some normal stuff tastes like, but I'm a really picky eater so if it was gross I'm pretty sure I'd know. Why are "normal" people (I call them muggles for my enjoyment) so against eating gluten free food? It's not that bad!
So I am back from my vacation and I feel great! I feel so good that I've finally realized that all the food I wish I could have, but can't, really isn't worth it at all. I know everyone on here has been telling me this, but as a newbie it was very hard to come to terms with. This site has done a ton of good for me:)
I stayed away from gluten entirely, ate my fruits and veggies, and showed my family that I can do this (and it's really not as hard as it looks).
My digestive track is working beautifully, which I am extremely excited about. No more planning my day around the bathroom! And I also just feel good overall. Perfect timing too with school starting up soon!
I did get a massive headache last night (much like my gluten headaches) but I don't think I got contaminated. It might have been from the 8 1/2 drive home and I was just tired and possibly dehydrated. Or it could've been from me accidentally stabbing my eye with mascara that morning (I have a very sensitive right eye). I slept the headache off though and didn't notice any tummy troubles.
I'm just so happy:) and proud of myself for planning ahead and researching good places to eat! Yay!
Thanks for everyone's help and support!
Hey everyone! For those I upset, I apologize. I was just diagnosed this summer and am still coming to terms with the fact that I cannot eat these things because it actually causes damage. Originally I was deemed gluten intolerant and was told that while gluten makes me feel rotten, it wasn't causing any permanent damage. So when things came up (like that delicious mac-n-cheese) and I was craving it badly there were times that I'd just deal with the headache and stomach issues. I cannot choose to do that now and it is difficult for me. Especially as a very recent adult who is used to relying on her parents for food (and whose parents still expect her to rely on them). I have been doing better. In fact, I was on a roll there for a little while on eating fruits and veggies and turkey/chicken and avoiding all gluten. I was glutened yesterday slightly however (completely on accident) because my mom bought me some Annie's gluten free snicker doodle bunnies and some cheddar ones. Except the cheddar ones weren't gluten free and I had already had a nice handful of them. That was last night and I seem to be okay...I may have slept off my normal symptoms. Fingers crossed.
Anyway, I am doing much better. I understand some of yalls frustration. Just please keep in mind that I am young and I am new to this.
Thanks for the help and support everyone!
I gained a lot of weight when I went gluten-free too. I realized that I was basically pigging out on the things I COULD have because well... they felt like a delicacy. I realized I was consuming a TON of calories a day and most of them consisted of things that were crap for my body. So I stopped pigging out and am keeping track of my calories now and making sure I eat my fruits and veggies daily. And lots of water! That's really important!
Also (and I'm not sure if this is really true or not), I read online and my doctor also told me that when you are an undiagnosed Celiac for so long, you are obviously malnourished and so when you stop eating those things and allow your body to start absorbing what it needs, it kind of goes crazy for a while. Again, don't know if it's true, but it did make sense for my weight gain.
My body has since then gotten pretty much back on track and I've lost half of what I gained now. Good luck!
Veggies make me bloat like crazy. I learned that I can't eat them raw at all. Baking my veggies usually helps with the bloating and washing them down with some juice. Like you, I also changed my diet because people told me how unhealthy it was and then started to feel worse. Try "drinking" your veggies instead. It's easier on the system.
This is embarrassing, but I've looked all over google and have come up empty handed so I figured I'd throw this out there and see if anyone has any insight to my issue.
First off, if you read my other post not that long ago you will know that I was hardcore constipated last weekend. It was awful and I'm glad it is behind me. However, I'm not quite back to normal. I am still drinking prune juice and taking Miralax on occasion because things seem to be pretty slow still. I'm talking about slow for ME. I usually go after every meal. I know that once a day is totally okay, but I feel sluggish and bloated if that happens.
Today I noticed that my stool is lighter than normal. You should keep in mind that my stool is usually never "brown" because it moves fairly swiftly through my body and thus it is usually a greenish shade. This is still greenish brown, but much lighter than I'm used to. I looked up lighter stool and it came back with liver and gallbladder issues, but I don't have any of the other symptoms. It is also very loose, but that is normal for me.
And then the weirdest thing that happened today was that my stool smells like...blueberries. It smells extremely sweet. I looked that up too and couldn't find much. Since there wasn't anything that basically said I was dying, I'm guessing I am okay, but what in the world causes sweet smelling stool???? Note: this was also my first major BM since last week before I was constipated. Could that have anything to do with it?
I have been drinking prune juice (4oz) and had some grape juice (8oz) today. I had Chex vanilla cereal this morning with milk, Annie's gluten free mac-n-cheese for lunch, and leftover mac-n-cheese with green beans and carrots for dinner.
I also saw on one site that the sweet smell could be from a lactose issue, but couldn't find anything to back that up.
Does anyone have any experience with this? Should I go to the doctor? I leave for TN this weekend so I wouldn't be able to see my doctor until over a week from now.