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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About charlie76

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    • Birthday April 28

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    • Location Australia

    charlie76's Activity

    1. charlie76 added a post in a topic Blood Test Results - 2 Weeks In To Gluten Challenge   

      It's been quite a while since my last update. I did in fact finish my gluten challenge and had a biopsy in September 2013. 
      The outcome of my "gluten challenge" last year was a negative biopsy. The gastroenterologist who I was referred to came to the conclusion (despite the blood tests and symptoms) that I don't have coeliac disease and that it's okay for me to continue to eat gluten.
      In a way it was disappointing as I (and others) think that I do have celiac disease and I believe other doctors would give me a positive diagnosis on the blood work and symptoms. 
      Obviously I returned to a gluten free diet (I think this is especially important as there are other autoimmune issues in my immediate family).
      And on to my family... unfortunately my brother who has terrible "gastrointestinal symptoms" at times (to put it politely) still refuses to get tested for coeliac. My elderly mother has quite advanced MS and other issues so even if she were tested and it were a positive result, I doubt she would be able to change her diet. 
      My only concern for myself in the future is that Coeliac Australia state that any future vaccine which might be developed will only be available to those who have been diagnosed with a biopsy. Also my doctor mentioned that they wouldn't be as concerned with screening for other associated conditions in the future without the positive biopsy / diagnosis. 
      Whatever happens, the gluten-free diet is for life for me. 
      Anyway, that's the end of my very late update - thanks for listening and the advice :-)
      • 0
    2. charlie76 added a post in a topic Blood Test Results - 2 Weeks In To Gluten Challenge   

      Thanks Nicole.   I didn't specifically get any more health issues come up, but I went back to speak to my doctor as I still get "IBS" symptoms when I deviate from my diet (my normal diet is somewhere between gluten free with some gluten-free grains and paleo. I avoid dairy most of the time and try to avoid all grains where possible).    I often have issues when I eat out at restaurants (even when being careful that what I'm eating is gluten free). I can get gas, having to make a dash for the bathroom and even fatigue and a headache thrown in for good measure the next day! I am assuming that there is either cross contamination occurring, leaky gut, intolerance to soy, preservatives, processed oils etc. or something else happening.   When I spoke to the doctor about these continuing "IBS" symptoms, he explained that it would be an idea to re-check for celiac disease because the biopsy is the gold standard. I also understood from the consultation that if I have a definite celiac diagnosis then my health might be monitored more closely in the future for any related conditions.    Anyway, now that I have done more research (and this forum has been really helpful) I might have decided again the gluten challenge if I was making the decision again right now. But I'm so close to the biopsy now that I'll carry on. I don't think I'll delay it ... I want to get back to feeling well again   I'm considering doing an elimination diet like Whole30 and/or seeing a dietician once I'm done with the challenge.    Thanks again.
      • 0
    3. charlie76 added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      Blood Test Results - 2 Weeks In To Gluten Challenge
      Hi all,
      As I mentioned in a thread a few weeks ago, I've recently started a gluten challenge after 3 years of very strict gluten free eating. 
      I've got a biopsy in 2 weeks time (after which I will have been eating gluten for 5 weeks and 2 days in total - I've been eating around 6 slices of bread per day or equivalent).
      2 weeks into the gluten challenge I had blood tests done.
      Deamidated Gliadin IgA        * 99  U/mL    ( <15 )
      Deamidated Gliadin IgG          <1  U/mL    ( <15 )
      Tissue Transglutaminase IgA     <1  U/mL    ( <15 )
      Tissue Transglutaminase IgG     <1  U/mL    ( <15 )
      My results from 2010 are as follows (following many years of low gluten, but not gluten free eating):
      Gliadin IgA Abs               * 47  U/mL    ( 0 - 20 )
      tTG IgA/IgG                   * 52  U/mL    ( 0 - 20 )
      When I had a biopsy in 2010, there wasn't any sign of Villous atrophy.
      I was wondering after my latest blood test if I might be going for a biopsy too soon?
      I understand that the 99 U/mL result for Gliadin IgA suggests that there's something going on, but am I understanding correctly that the other results (the IgG and the tissue results) suggest that there's no sign of damage being done?
      Again, whatever the result I will be going back to strict gluten free eating. I'm definitely intolerant to the stuff. 
      • 6 replies
    4. charlie76 added a post in a topic Think It's Time To Abandon The Gluten Challenge   

      Hi, I'm in a very similar position to you. Today is day 11 of gluten for me. I too think I might be overindulging and also want to make sure I get a positive result if  I do have Celiac.
      From what you've described, your symptoms sound worse than mine. I've got lots of symptoms but they're not too severe yet although I'm seeing my doctor tomorrow to discuss.
      The specialist I saw suggested eating 4-6 slices of bread per day for 4-6 weeks before the biopsy.
      I would suggest reducing the amount of gluten your eating for a couple of days and see if it makes your symptoms more tolerable. 
      Good luck and hope you feel better soon!
      • 0
    5. charlie76 added a post in a topic Blood Test Results   

      Thanks for your reply, Nicole. It was very helpful.    And It's reassuring to know that I'm not the only one in this position.
      Only 4 more weeks until my biopsy and I can't wait so I can go back to gluten-free again. The symptoms I'm getting in addition to gastrointestinal problems include headaches, feeling slightly nauseous when I wake, sleeplessness, brain fog, tiredness, irritability, tingling in my face and feet. I'm seeing my regular doctor tomorrow so I'll see what he thinks. Maybe we'll agree it's not worth putting my body through this for 4 more weeks!    
      • 0
    6. charlie76 added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      Blood Test Results
      Hi all, 
      I'm trying to understand my blood test results from a couple of years ago. I'm in Australia.
      The results are as follows:
      Coeliac Serology
      Gliadin IgA Abs     * 47  U/mL    ( 0 - 20 )
      tTG IgA/IgG         * 52  U/mL    ( 0 - 20 )
      Since the blood test I have been gluten free and feeling so much better. I did have a biopsy after the blood work, but it was clear. This could have been because I was at the time of testing (and had been for some time) on a low gluten diet (although, not totally gluten free).
      Without going into the full story, my new gastroenterology doctor wants me to have the biopsy again now, and wants me back on a gluten diet for 4 to 6 weeks before the biopsy (I'm 1 week in now and feeling quite unwell at times).
      I really don't know if it's worth it, but I've started back on the gluten now so I guess I'm committed.
      Anyway, if anyone could help me understand the results above I'd be very grateful.
      • 3 replies

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