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karencuba16

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About karencuba16

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  1. I have a skin disease that is unrelated to gluten sensitivity. For this I have seen several dermatologists, a few primaries, my OBGYN, and a rheumatologist. Each doctor is puzzled as to why a 28 yr old has hair loss and anemia. I recently found out these are symptoms of celiacs. Doctors dont have all the answers and sometimes they dont want to hear you, but if you think you might know whats wrong, speak up until you get through.
  2. Thanks for your input. I know a few people who have gone gluten free, but by choice not because the they celiacs so its nice to talk with someone in the same boat. I am the type of person who needs to know, especially if I'm damaging my intestines. I have been eating gluten but its only been about 1 serving per week. This test is aweful! Like you have to purposefully poison yourself to get acurate results. Not sure if I can increase my intake. It hurts too much. I might have to live without knowing.
  3. I need help and don't know what to do next. I have been tested for allergies and came back positive for milk, wheat, peanut and egg allergies. On a scale of 0-5 (5 being worst)wheat is a 2. The other allergies are 2 or below as well. Wheat is the only one I have reactions to. When I eat wheat I get migranes, joint pain in knees, elbows, and ankles, I feel tired and weak, within the past 3 months I have started to get stomach cramps that last for days and blood in my stool, sometimes so much it looks like I've gotten my period. I even get the rash that is common with gluten intolerance dermatitis herpetiformis. To me this seems a little more serious than an allergy. I had a blood test for celiacs and it was negative. I wasn't eating gluten at the time and I hear that can give a false negative. All my doctors say it's just an allergy and they couldn't even diagnose my rash I had to look it up online. It's definately what I have when I don't eat wheat it disappears. Should I insist on further testing?