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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About dotsdots

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  • Birthday January 12

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  • Gender Female
  • Interests I am a graphic designer and illustrator. I used to work in the behavioral health field in Phoenix, AZ. I have a son with autism.
  1. I'm a little over 20 years past 40, bartful. I would love one of your Christmas CDs. I guess my list would be closer to a bucket list, but I'm hoping the bucket doesn't appear until 30 more years, doggone it!!   Some of the things I'm doing already, like spending time with my granddaughter by going to the Little League Softball World Series and showing my illustrations in coffee shops.   I'd like to go to Alaska during summer to see the land of the midnight sun, spend time in San Francisco, and visit New York City. I'd also like to go out on a sailboat and travel the world. I remember seeing an article in National Geographic many years ago about a 17 year old who sailed around the world by himself. All the pictures in the magazine made me want to do something like that - see the world on a boat, but be self-sufficient the whole time.
  2. Sad, Frustrated, Need Support

    Lots of good comments.   So sorry that you are having a hard time. But the good news is, you are preventing more damage by going gluten free whether you can see it or not. You are preventing cancer, kidney failure, etc., etc. You are giving yourself a chance to live a normal life span.   Your kidney stones could conceivably continue to exit your body for a while. They are already in your kidneys from when your body was still taking in gluten and couldn't expel the calcium properly through your stools so it crystallized in your kidneys. But you won't be making any more. Just getting rid of the ones that are already there and haven't moved out yet. So even though it doesn't look like progress, it is. There's more going on than meets the eye.   I'm praying your wife will take a look at the literature and realize how dangerous this disease can be if gluten is still consumed. Good luck to you and don't give up!!!
  3. How long does it usually take for blood tests to come back?
  4. Kidney Stones Or Celiac

    I am now in the process of getting tested for celiac disease. But I have had at least 100 oxalate kidney stones. (No kidding - 3 to 4 a year for almost 30 years.) I've had them zapped with a laser in the hospital 4 times, one time with complications where I had to stay a week. Plus a myriad of ER visits and stones passed on my own. The pain can radiate from the back all around into the abdomen. And sometimes it just stops, which usually means the stone just stopped moving down the ureter or within the kidney, so now it doesn't hurt for a while. When it starts to move again, it will hurt again. (As you know, "hurt" is a mild word. There's nothing to describe it...)   Getting a CT scan is a good idea if you have insurance and can afford it. That way you'll know what's there. Plus, stones that were already there may still be bothering you. You just won't make any more when you are off gluten. (Yeah!!!)   Good luck to you. I'm hoping to find out more about myself with an accurate diagnosis...
  5. Okay, I'm pretty new at this. I thought buckwheat was okay to eat. I make buckwheat pancakes for my granddaughter who has a problem with gluten. I am now being tested for celiac disease myself and have been thinking that I can at least eat buckwheat. Someone, please get me up to speed on this...
  6. Our son who has autism is now an adult and lives in the duplex next door to us. He has support services from a company here in Oregon to help with his daily needs. (We moved to Oregon from Arizona in 2010 as he lost services there during the Great Recession and we had two other children and a granddaughter here. When we lived in Arizona, he lived at home with us.) He's pretty severely involved. We are getting him tested too. When we get all the results back, and if they are positive, we'll get rid of gluten everywhere. I'm glad to hear your family is doing better. It's encouraging! Thank you.
  7. What would a positive test for celiac disease look like in a full celiac panel?
  8. Significant Other To Celiac

    I have trouble getting my husband to go anywhere, and he's not the one with celiac disease!   Is there a support group where you guys live that you could go to together? A physical one, where you meet people in person rather than just online. (Although online support is great - it's why I'm here!) Other couples might be going through the same thing and you could connect with them and see how they handle this. Sometimes it's nice to know that you're not all alone. It still would not be entirely "normal", as it would be celiac focused, but it might show your significant other that going out for a drink or coffee can work out. And you might find an activity to enjoy together that you haven't thought of yet.    Just a thought - good luck to you. 
  9. I know this topic is a couple of years old, but I just stumbled upon it and am interested because I have had a myriad of kidney stones. I've been hospitalized 4 times for laser removal where you blast the stone. Had to stay a week in the hospital due to complications one time. I've also had many ER visits and have passed a lot on my own. They were oxalate kidney stones.   On, under an article on the complications of celiac disease, they list "a type of kidney stone called an oxalate stone" as a complication. I'm sure you could Google it and get more info as this is how I came across it.   So yes, they do appear to be related. I wonder how many others have this same complication?
  10. I had the blisters on my fingers and scaling on my hands and made an appointment with my doctor. I also took pictures of it on my phone to show her. When I got to the appointment, the blisters were no longer fresh and she was unable to do a biopsy. But she said it looked like dermatitis herpetiformis and ordered blood tests.   So then I started reading up on celiac disease and was amazed to find out all the symptoms I had.
  11. I am relatively new to the forum and am in the process of having blood tests run for celiac disease. I am a senior citizen with 4 adult children and an 11 year old granddaughter. My youngest daughter and granddaughter have problems with gluten. My daughter sent me literature urging me to get tested.   I have been reading that mothers with celiac disease that has not been diagnosed are 3 and 1/2 times more likely to have a child with autism than the general population. My youngest son is a person with autism, and all of my children as well as my granddaughter have ADHD.    Also, mothers that were not diagnosed are also more likely to have a child with asthma than the general population, according to my reading. Two of my children have asthma. My oldest daughter has a sensory processing disorder.   I'm wondering if there is anyone else who is discovering that perhaps many conditions affecting their children and family have been caused by celiac disease?   I was diagnosed in my early thirties with chronic fatigue syndrome and irritable bowel syndrome. I understand that now many doctors screen people with these diagnoses for celiac disease. I also have had a myriad of oxalate calcium kidney stones and high liver enzymes as well as dermatitis herpetiformis, heartburn, and night blindness.   I would be interested in hearing back from anyone. Thank you! 
  12. I am new to this and am still in the diagnostic stage, but would be very unhappy if I have to give up coffee. What  other coffees would you recommend for someone with celiac disease?  
  13. Hi Ouchie!   I am a new girl too, but I'm actually getting up there in years - I'm 64 and just now getting diagnosed. I have had a myriad of symptoms all my life that no one realized was celiac disease, and I've had doctors discount me too. It's so annoying and has also caused me to mistrust doctors. So I feel for you, and understand a little how you might feel.   I believe everyone has suggested some great ideas. The one that I really would emphasize is to take a list of symptoms into the doctor with you so you don't get sidetracked while talking with him/her. Two weeks ago I went in to a new doctor who I had only seen once before, a naturopathic doctor, with a list of 20 symptoms. She paid attention right away and was very kind.    She has ordered the whole panel which Nicole suggested, so I'm hoping that I will get an answer soon myself. The only thing that could make it harder for me is that I went off gluten for a short while because my adult daughter who is your age, found that she cannot tolerate gluten and we have some symptoms in common. For example, the blistery rash on my fingers went away right away, but came back when I reintroduced gluten.    So stay on gluten until you get all your testing done. There seems to be differences of opinion on how long you should be eating gluten  before testing, so it's safer to just keep eating it until you are tested.   Good luck to you!
  14. I have an Irish, Scottish, and English background. My husband, who I believe also needs to be tested as he has symptoms, is Irish and German. I've read that people from northern European countries have a higher percentage of celiac disease than other populations. I think there might be an article on this site about that, in fact.
  15. Maybe it's because everyone eats pasta - LOL!