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Amythyst added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsMy Celiac Panel Results?Hi there, I was hoping you guys could help me understand my Celiac Panel results... my Endocrinologist did the test and she just called me and said my Celiac test was positive and I had celiac disease and I should go see a Gastro doctor. She also sent me my results and I'm just a little confused by the results.... I have tried looking stuff up, but it is all over my head.
Immunoglobulin A Value: 660 (h) Range: 81-463mg/dl
Gliadin AB, IgA Value: 22(a) <20 Antibody not detected > or =20 antibody detected
Transglutaminase IgA Value: 1 <4 no antibody detected > or =4 antibody detected
So, I'm wondering what my Immunoglobulin A value means since it seems way higher than the range. And is the Gliadin AB antibody indicating that I have Celiac? Cause the last test appears to be normal ... so I really have no idea what each of these tests mean and what the results mean. I still need to go to the gastro and everyone told me not to go gluten free until I go to the gastro doctor. We just bought a house and are about to move, so I haven't had time to find a doctor and go...
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Amythyst added a topic in Celiac Disease - Coping WithThe Gluten Free Life For Me! - Long PostHi everyone, I'm new to the board and just diagnosed with Celiac disease. I seem to be catching a string of syndroms and disorders so its starting to freak me out... I had been going to my endocrinologist and a reproductive endocrinologist for awhile. I have had symptoms and problems for at least 10 years and only recently have things started to come to light. I guess it started when my husband and I wanted to have children and I found out I had PCOS. My reproductive endo thought I should probably have my thyroid checked and poof you have hypothyroidism too.
I have always been fat, since I was like 8 years old and could gain 5 pounds in a day no matter how I ate or exercised. Finally, when I got the PCOS and Thyroid diagnosis and got on medication I began to lose weight for the first time in my life and to be able to maintain it!! So far, I've lost 35 pounds over the last 3 years but still not pregnant.
But, even with the PCOS and Thyroid medications - I still have not been "normal". No matter how much I sleep, I'm usually always tired, I have struggled with vitamin deficiencies for years and years. My vitamin D is the worst and was at the lowest point 11 - even with 50,000 units a week (on and off) and then maintenance doses of 2,000 to 3,000 a day after getting off of 50,000, I have only ever been able to get my vitamin D up to 33. It has since fallen back down to 21. I have skin problems... itchy legs, fluid retention... even with cutting out as much salt as I can, caffeine and alcohol - my feet still swell. I sweat like crazy and I'm always hot. I have incredibly dry skin and even with using lotion it never seems to get better. I also have roseacea on my face and it has started to flare up a lot lately and I get these crazy red bumps all over the redness. Depending on my stress levels and what I eat, the redness can go down to a pinkish color and the bumps will sort of go away. And of course my infertility which is frustrating.
Then, there are the other sort of embarassing symptoms... IE: I've been struggling with diahrea for as long as I can remember. Depending on what I eat of course... its not as terrible as it used to be though. I think too the Metformin I take for PCOS varies this. And I have terrible flatulence... no matter what I eat I'm always gasy, joint and muscle pains, my feet tingle all the time, I was getting headaches constantly but those have died down a bit....
Anyhoo, my reproductive endo suggested last year that I should have a celiac study done because of my inability to absorb vitamin D. Shortly after my husband had 2 major surgeries and almost died, so my health sort of took a back seat. He is now totally well and I just found myself a new endocrinologist. I went to my first appointment and of course she wanted to blame all my problems on my weight. I told her that I'd like to have a celiac test done and she was hesitant and was like you probably can't absorb vitamin D cause you're heavy. But, she humored me and did the test. I got a voicemail from her yesterday saying my suspicisions were correct and my celiac study was positive. She is sending me the test results but I haven't received it yet. She also told me I should go see a gastro doctor now.
So, as of yesterday, I started doing the gluten free thing. I was pleased to find that lots of stuff I already eat is gluten free but I did make sure I only bought stuff that said gluten free and I will be ceasing all bread and gluten pastas. I also decided to try to stay away from dairy as well ... I happen to like soy milk... so I got some of that.
Luckily, I can say with all this I am a happy person.... I don't let things get me down and I look at everything as a challenge to overcome. But, I'm just curious if anybody here has the other conditions that I have as well? It sort of bothers me that I keep getting diagnosed with so many things. Is hypothyroidism, PCOS and Celiac sort of like a triad of related issues? I did read on the PCOS sites that it is common to get celiac when you have PCOS.
Anyways thanks for reading... I hope to learn a lot here.
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