Liz, did you ever find a good GI doctor? I am from Tampa Bay area and was looking for recommendations as well. I went to Dr. James Barthell, he is in Largo. Seemed like a nice man, he did my biopsy and ordered bunch of tests, waiting on the results now. I would be interested to see if you found someone you liked.
krixem posted a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsI have been a frequent on this site for several months now but this is my first post. I started having symptoms over a year ago. At first it would be about once a months or so and they would last for 5-7 days. I would have bloating, gas, brain fog, insomnia and then extreme fatigue, etc. My period has been non existent for 14 months now even though I am only 32. The symptoms started to get worse to the point of every couple of weeks, then every week, then daily. I couldn't eat much, no matter what I ate made me sick. The IBS symptoms started as well and the brain fogs were debilitating. Dr was still convinced my hormones were causing all of this but friend suggested I try gluten free and doc approved saying it wouldn't hurt. The road was bumpy but it did make me feel better. I was following the diet very strictly for me but was cooking with gluten for my child and husband w/out testing the food. Then I realized that my symptoms were still present in a milder form, mostly brain fog, then joint pain, bloating... I had same reactions to watermelon, peaches, cherries, carrots and the number of other fruits and veggies as I had to gluten. I went to a doc to see if I was just getting very sensitive to gluten or if this was something else. I had to do a gluten challenge for total 4 weeks. I did have D and constipation, bad gas and bloating but I only had brain fog like 3 times towards the end of the challenge. I had stomach pains, at times pretty bad but most times I could tolerate them. Anyways, I did not feel as bad as I anticipated and I am starting to doubt that I have gluten intolerance. My test results will be available in 2 weeks but doc did not see an immediate damage during endoscopy. He told me to go back on gluten free and I have been for 4 days now. I had weakness, cold sweats, fatigue and some brain fog the first 3 days and today I woke up with horrible joint pain like a flu without the fever. So weird that I would go back to my symptoms after stopping gluten??????? Has anybody experienced this? I am sooo desperate, I just want answers so I can move on with my life. Sorry for the long rant...