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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About whatzie

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    1. whatzie added a post in a topic Do I Really Have Celiac?   

      I have been going through hell since April. Had a million blood tests done, ANA negative, RA negative, elevated complement c4, elevated sed rate, elevated crp. extremely low b12. other tests are off also, i just can't remember them all. the last time i went to the rheumotologist he stated he believes it is one of the 2 and stated that sometimes it takes awhile to have any concrete to go on. the gi doc tends to agree with him and thats when he also had me do the blood work for celiac after going over the biopsies with me. i go back to the gi on weds to go over the celiac stuff.
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    2. whatzie added a post in a topic Do I Really Have Celiac?   

      Yes the TTG IgG is borderline. When the doctor ordered the colonoscopy and endoscopy we had not discussed Celiac's at all, I had never even heard of it. After the procedure he told me he had done several biopsies and then when i went for my follow-up that is when he told me the biopsies came back showing Celiac's.
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    3. whatzie added a post in a topic Do I Really Have Celiac?   

      Im sorry I meant dgp tests
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    4. whatzie added a post in a topic Do I Really Have Celiac?   

      Maybe I read them wrong. I think ema was negative and the iga number was 224. No results showing for the gbd tests so maybe those were not run. I will ask the doctor when I go. Their office is stating they believe my testd were negative because I wasnt eating enough gluten.

      Are you all stating that the symptoms dna gene test and biopsy results are not enough for a celiacs disease? Because the doctor is giving the diagnosis of celiacs disease. My gi doctor and rheumotologist believe I also have another autoimmune disorder. Maybe lupus or systematic inflammatory disease.

      I also have been getting dizzy and it feels like I am in a whirlwind. It makes me so sick I throw up. This happen to anyone?
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    5. whatzie added a post in a topic Do I Really Have Celiac?   

      Do I just ask my doctor to run those tests?
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    6. whatzie added a post in a topic Do I Really Have Celiac?   

      well according to the blood tests all are negative. however the endoscopy biopsy reports show findings of damage that coincides with celiac disease and of course the results of the gene dna tests. according to the nurse for the gi doc he will be diagnosing me with celiac's disease and i have to go see him this coming weds to go over what changes need to be made.
      my other symptoms that have been going on for a few months are:
      itchy skin
      joint pain
      brain fog
      tired all the time
      constipation and/or diarhea
      feeling ill
      tired all the time
      stomach pain
      tingling in hands and feet
      night sweats
      not sleeping well
      past blood tests show elevated sed rate, elevated complement c4  and elevated crp. (3 different times)
      my face is swollen and lymph nodes by my left ear has been swollen since april.
      rhuemotologist and gi think besides celiac's disease i also have possibly lupus or systematic inflammatory disease??
      any help or information would be greatly appreciated.
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    7. whatzie added a post in a topic Do I Really Have Celiac?   

      here are my results:
      TTG IGG - 5     REF RANGE - 0-5 U/mL
      EMA IGA - 224  REF RANGE - 91-414 mg/dL
      TTG IGA - <2     REF RANGE - 0-3 U/mL
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    8. whatzie added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      Do I Really Have Celiac?
      i need help understanding my results:
      i had a colonoscopy and endoscopy completed first. the results of the biopsy was that cells indicated celiacs disease so we moved on to the blood test:
      here are my results:
      TTG IGG - 5
      EMA IGA - 224
      TTG IGA - <2
      GENE DNA:
      DQ2.5 (HLA DQA1*05 : DQB1*0201)
      DQ2/other high risk gene - 16X VERY HIGH
      DQ2/DQ8 - 14X VERY HIGH
      DQ2/other low risk gene - <1X LOW
      DQ2-, DQ8- <0.1X EXTREMELY LOW
      based on the biopsies and these results my doctor said he will be giving my a diagnosis of celiac's disease. he asked me to come in next week to discuss the life changes that will need to occur. can anyone help me with this? do these results show celiac's?
      • 19 replies

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