Yes! My daughter becomes a different person! She has black out rages on gluten. NEVER off gluten. She also has some ocd behaviors (afraid of germs, believes sister is contaminated, fixes and refixes bed, etc), low-self esteem, pessimism, anxiety (right now on challenge it is about tornados), and VERY reactive emotionally. Basically she flies off the handle over everything and has sobbing fits that sometimes last an entire day. Off gluten, all of these symptoms either disappear completely or drastically improve when we remove gluten. A few days into her gluten challenge she said "mom, I never believed you about the gluten affecting my behavior until now. I can't control myself and don't want to act like this. I just get so angry I want to punch someone. I'm so sorry." My stepmother witnessed her reactions during the first week of the challenge and said "this is not my granddaughter".
josaturn1 posted a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsHello! New here. I am a mother of a 9 year old girl. Run down of her past: Colic, Sleep problems, Extreme emotional reactivity from birth, pulled hair out from 1.5 until 4yrs, therapy since 3, very intelligent (in gifted program now), petite, growth rate slowed from 75th percentile at age 3 down to 3rd percentile at age 5 (same now), always loose fatty looking stools, stomach pain, diagnosed with acid reflux, gassy, daily headaches. At age six she was writing very scary notes about wanting to not exist and drawing herself with bloody tears and snakes for hair. Allergies tested: No food allergies, takes claratin for seasonal allergies Pediatrician thinks her growth rate slowed because she was breastfed. I don't think that makes sense. I stopped nursing at 1.5yrs. Her father believes he has ulcers and often avoids eating to avoid pain. Her paternal grandmother has stomach issues as well and says it is colitis. Her father also had stomach problems. No one has been tested for celiac. At age 6, out of desperation and through tons of research, I asked her therapist if she thought my daughter might improve emotionally with a gluten free diet. At that time she was taking medication for acid reflux but her stomach issues weren't improving 100%. She said it couldn't hurt. I was frightened at that time for her future. Within months of changing her diet, her stomach issues disappeared and we took her off the medication and she was able to eat dairy again without problems. The best part? Her mood dramatically improved. Things weren't completely fixed, but she recovered much easier from meltdowns and cried a LOT less. We were able to suspend therapy and I no longer had to walk on eggshells. Problem is her father, who is loving and wonderful to her, believes cheating once or twice a week isn't a big deal. He has good intentions, but she comes back from his house a holy mess every weekend. I get her back to normal (gluten-free rest of week) so when he gets her she is back to normal. After 2 1/2 years of this, we decided to discuss getting her tested. I believe my daughter, her father, and other family members need a diagnosis in order to take it seriously. We are 1 1/2 months into a gluten challege. The first week was AWFUL! My sweet girl became violent and very angry. She flew off the handle over nothing. She became OCD and believed her sister is contaminated. She disinfected her bed with lysol and bagged her stuffed animals and pillows overnight for "decontamination". She had an explosive incident and said "I F******* Hate You!!!!" and threw a marker at my head. This same girl normally gets very upset when I say "crap". She can not sit with us while we eat because we "sound gross". At night when she has had time to calm down she is very remorseful and loving. Second week the anger mellowed out some and the stomach issues have returned. The first day of school she laid in the office during recess. She says her stomach feels "big but empty". She is VERY gassy and having a headache every day. She is less angry, but cries a ton. Sooooo, even dad is seeing these changes and I think he's even wondering if he has celiac lol. My HUGE worry is that because she is doing a gluten challenge for three months after such a long time gluten-free that we will get a negative test. Do you think her cheating once or twice a week at dad's might make it more reliable. She will be on gluten for three months at the time of testing. Her dad and I agreed she could stop now if she wants but she says she wants to finish and find out the truth. Any words of advice or encouragement would be so helpful right now. Thank you.