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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About taweavmo3

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  1. Same here....we react to Udi's, but so far, we've been good with Rudi's. I really like that the pieces are larger, and you seem to get more slices with each loaf. My kids, and their gluten eating cousins loved it too.
  2. Consider really cutting down on the Udi's bread....we were eating it nearly every day for a year, and my son started having mild seizures (his reaction to gluten) because of it. I took me forever to pinpoint it, I never thought to take Udi's out. It must have trace amounts that some are sensitive to, and it builds up over time. The same could probably be said for many "gluten free" snack items, with the exception of a handful of companies. Maybe you could try mostly whole foods for a while, and see if you get any relief. I know it's such a pain trying to figure out what's making you sick, it happens to us all the time!
  3. Thank you!! Hopefully if we play it safe, she'll be okay. I know what you mean about the horse bug....I used to ride quite a bit when I was younger. It is such an amazing feeling, it just never leaves you. I hope this works out for my daughter...I think this will be a great confidence booster for her. Something about horses is so therapeutic on many different levels. Thanks again
  4. I have signed my daughter up for riding lessons. She adores horses, and I know she would love this. Now I'm wondering if I made a huge mistake. She is extremely sensitive....the last time she was glutened, it was from painting a mold made from plaster. Apparently the inhaled gluten made her more sick than ingesting it. She had bloody noses, and ran a high fever (105) for over a week. Scared the crap out of me!!! This riding class teaches the kids how to groom the horses, feed them, etc. She will be in the barn, with dust flying I presume. Then there's the hay...could that be a problem too? I'm a city girl, have not a clue what hay is actually composed of. My husband said it could be from's probably not, but could be. Anyone on here have horses and Celiac? Could this be a problem do you think? Luckily I haven't told my daughter I've signed her up, so if I have to cancel it's okay. The last thing I want is for her to fall in love with the horses, then get sick:( Thanks for any advice.
  5. You might also think about having her evaluated for a learning disability. My daughter has been gluten free since the age of 3, but it didn't clear up all of her learning issues. She has an expressive/receptive delay. It wasn't overtly obvious, had I not had her evaluated, it would have probably just seemed like she was lazy and didn't want to try. She's been in speech therapy for 5 years now, and although she'll always struggle a bit in school, she has also learned the tools to help her cope. Hope that helps! Learning disabilities can be hard to detect, even for teachers. I always encourage parents to get a good evaluation to be on the safe side! If caught early, it's much easier on the child. Good luck
  6. Typical Weekly Menu?

    My daughter and I are super sensitive, and I have one child who is allergic to almost all of the top 8 allergens. So, our menu is really boring and simple Breakfast: Pancakes, Mesa Sunrise cereal, or Bob's Red Mill Mighty Tasty Hot Cereal (so good!) Lunch: Usually dinner leftovers or sandwiches Dinner: Taco salad, Chili pie, grilled chicken w/rice and veg, spaghetti, meatloaf w/potato and veg, pork chops w/potato and veg Boring, but easy!
  7. Also, regarding the high fat content....classic malabsorption, you were right in asking about that. That's what makes the stools so foul smelling. You are on the right track mom, now you just need to find a more knowledegable doc!
  8. Oh, these doctors!! What a load of crap (pardon the pun ) There are some great doctors out there, but there are always some very ignorant doctors who make these nonsense, catch-all diagnoses that mean nothing. Toddler's diarrhea is such an outdated, ricidulous diagnosis. And I am so tired of docs discounting a child's description about how they feel. In my experience, both as a mom and a pedi healthcare worker, kids do not complain about something unless it truly does hurt or is bothering them. Adults yes, but children are not little adults. I would definitely push for a celiac panel, maybe from your pediatrician instead, or find another GI. It sounds like you are on the right track to getting your dd healthy again. I have four children who are gluten free, and only one has an actual diagnosis of Celiac. They all had various symptoms, my oldest having psoriasis and possible ps. arthritis. His test was negative, but he clearly gets sick from gluten. He's in middle school now, and he has been very compliant with his diet, he knows how sick gluten makes him and has no interest in cheating. I leave it totally up to him...I buy him good food so he doesn't feel deprived, but the rest is up to him, I don't push. So far, it seems to be working (fingers crossed!) Good luck to you! Stick with what your gut is telling you is best. You can see with your own eyes what is working, and the overall goal is to have a healthy child, no matter what the tests say Take care.
  9. That happened to me last year with a different ADHD and autism cookbook. It was $25, and huge, so I thought it was a real find. Many of the muffin and bread recipes didn't work, and made me wonder if any of the recipes were ever tested. It's so infuriating when a gluten free cookbook is a dud, b/c not only have you wasted money on the book itself, but you waste so much money on expensive gluten free ingredients that don't work. Our library is finally starting to carry more gluten free cookbooks. Getting them is hard, they are always checked out. Also, thanks to all the gluten free bloggers out there now, my food disasters are few and far between!
  10. My heart is just breaking for your little girl. I can't believe there are teachers out there actually like that! We have been incredibly lucky so far...we had one teacher who really did not get it, and that was a rough year. However, the past two years we have had relatively young teachers, who had a much greater awareness of allergies and have been amazing. My son was in the first "allergen safe" classroom last fall...all the food allergy kids were in one class. It was heaven for me, I made friends with other special diet moms, and it was great for the kids b/c they didn't feel different at all I hope you have better luck next year, hopefully you just got the one bad apple of the bunch! We too send in a big bag at the beginning of the year full of safe candy and treats. It's been a lifesaver on those days I can't get a cupcake made, or if the teacher forgets to tell me about a party. I promise it gets much easier as time goes's great you have the summer to adjust and get prepared for the next school year. I have found the younger grades to be the hardest, b/c so much revolves around food. My older son will be in 6th grade next year, and there are much less food issues to deal with. Take care, and welcome to the board!!
  11. Inhaled/topical Gluten Vs Ingested's hard to tell. I thought it was a classic gluten reaction, b/c looking back there was a time after school she got sick and I never found the source. Turns out it was the day they made that darn fossil tooth. I just didn't connect it at the time. But now I just don't know. She's still running a high fever, and everything's come back negative. It could very well have just been a virus after all, or a virus she picked up after her glutening...who knows, LOL. I guess the silver lining is that we learned to stay away from plaster
  12. Fever After Eating Gluten

    My daughter does...she's running one right now, after a glutening on Sunday. I brought her in to the doctor today, since it's day 4 of fever. Nothing could be found, so I'm assuming it's her immune system gone awry. Hope your challenge goes okay and you get to feeling better soon!
  13. My dd is in the midst of one of the worst gluten reactions she's had in the past 5 years, and she didn't even ingest it. At school, the kids had made dinosaur teeth out of plaster. I did not know that the plaster had flour in it (big duh moment, talk about guilt). So Sunday, I let my dd paint her dinosaur tooth. She scraped the sand off of it, played with it, painted it, etc. Sunday night she started vomiting, and continued to vomit through the night. Today she's running a fever of 104. She has run a fever one other time with a glutening, but it was a big one, and it was within the first year of diagnosis. This reaction surprised me..she had even washed her hands when she came in. I know there are doctors who say gluten can't be absorbed through the skin. I got to thinking about nailbeds though...those are very vascular, right? Easy way for gluten to go systemic. When my dd ingests gluten, she vomits immediately, leading to less absorption. Anyway, just thought I'd share my observation, b/c it sure surprised us!!
  14. Thank you for the almond milk recipe! I soaked my almonds last night, so I'm excited to make some milk today. Woke up this morning without a nagging headache for the first time in a while, so I'm really hoping that carrageenan is the culprit that was making me sick for so long. Almond Breeze was about the last processed food item I bought...I have slowly gotten to the point of eating only whole foods and making everything myself. It seems to be the only way for us to stay healthy and truly gluten free. Funny how drastically our diet has evolved over the past 5 years since my dd's diagnosis!
  15. I know in our case, my daughter's weight dropped down before her height did. She first lost weight at her 18 month check up, she had lost 2 pounds. But, she had grown about 1/4 inch, so no red flags went up. This went on for another 18 months, when at age 3, she still had not regained any weight, nor gained any height. It all depends on the doctor I think, ours were very laid back about it, since I'm small. I found out about Celiac on my own....her symptoms were so vague, and she never actually got sick, but at home she was miserable all the time. Once she was dx'd and we went on the diet, her weight was also the first thing to come back. She really plumped up for a while (I loved it!), then she eventually grew a couple of inches as well and she evened out. Good luck with everything! This is an excellent resource for the gluten free diet, it saved my life the 1st 6 months