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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About emilykay405

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  • Birthday 02/09/1984

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  1. What about chickpeas? This one has been on my list to try for a while...
  2. Ah!

    I agree with you 1000%. I am so tired of being poked, prodded and marinated. My Mom joked that they only thing they haven't done is cook me yet...this was before I got the results back from my colonoscopy and my answer was, "They may yet, depending on what they found..."   I'm also really tired of getting the eye roll from co-workers. Yes, I miss work. No, I'm not out galavanting around slaying dragons and looting ogres. I have a special schedule that allows me 3 days off during the week. I can't get it through my bosses head that some appointments cannot be changed or moved on a whim. And some are urgent enough that I can't wait until they have an appointment to fit my schedule. Not to mention I need at least one day that doesn't include appointments to just recharge from all of it.   Whew. Sorry about that..been in a funk for a week about all this nonsense. That being said, I try to put a smile on my face and joke with all the nurses to brighten their days as much as possible. Eventually I'll have a full weekend to do normal things (and feel like doing them...) but until then I take the advise of a fish named Dory, "Hey there, Mr. Grumpy Gills. When life gets you down do you wanna know what you've gotta do?...Just keep swimming. Just keep swimming. Just keep swimming, swimming, swimming. What do we do? We swim, swim."
  3. Thanks LauraTX! That's my Sun Conure, Beaker.   Really, the HIDA scan is just a hoop to jump through...I know it needs to be taken out but it has to be confirmed, blah, blah, blah. I'm planning on getting it out before the end of the year so I don't have to give my first born child for a deductible.
  4. cyclinglady is right, too much iron and just as bad as too little.   I'd also say that the testing needs to be done. During my initial blood work I was diagnosed with iron deficiency anemia but after a course of prescription iron I still didn't respond...turns out, I have thalassemia trait. So it could be more than just iron deficiency anemia.   My fatigue was originally blamed on the false iron deficiency anemia and it turned out to be a whole different beastie (Sjogren's Syndrome).
  5. I think mine is a family curse too. My Mom had hers out a while ago and they had to do the HIDA to see it wasn't working.   I will be glad to have it gone though. I deal with the big D enough...waking me up in the middle of the night is icing on the cake plus all the other nonsense it causes.   I actually started bringing my lunch to work today, gluten-free, too. I haven't felt this good after lunch in a long time.
  6. I saw my GI on Wednesday. He basically said that I don't have Celiac based on my test results (not that surprised) and completely blew off any of my other questions about it. His opinion is that all my symptoms are coming from a malfunctioning gallbladder. Ultrasound and HIDA scan for that Monday.   Some of my symptoms are definitely coming from my gallbladder. If I had doubts before, the poking and prodding he did at the appointment that hurt for hours afterward cleared that up.   However, I do know that no all my symptoms are caused by it. I still have fatigue, uncontrolled GERD, brain fog, inflammation, the scalp rash (which of course has mostly cleared up so I can't go to a dermatologist), etc, etc. And even with various medications my Sjogren's is still not under control. My SED rate keeps getting higher and higher. So I am gluten free, as of now.   Just needed to vent a little...not even sure this is the right board for it. =c)
  7. Craving Protein Like A Maniac :(

    Quinoa is good too. Make sure you're getting a complete protein. So combine grains with legumes or nuts. There are only a few options for complete protein grains for vegetarians; quinoa, buckwheat, hemp seed, and soybeans. Most dairy gives complete protein, too. I like throwing some chia seeds in my greek yogurt to bulk it up a bit. It took a while for me to get used to greek yogurt...but it's got more protein per oz than regular. Protein shakes are my favorite way to get extra protein. I prefer any protein over whey, it just has a funky taste to me. Soy, pea, hemp, and egg are some of the options available. My breakfast every morning is an 12oz combo of vanilla/chocolate milk, Vi-Shape mix (no product plug...just go by your taste there are tons out there and if you're replacing a meal you do need a 'meal replacement' mix), scoop of soy protein and about 4oz of cold press coffee.   I also agree with 1desperateladysaved, have protein at every meal. Chances are you're probably craving it all the time because you're not getting enough. This is the first one I found on google:
  8. I caved this morning. Had a nice breakfast with some toast. Two glorious pieces of toast. I payed for it all day. I've been sleepy headed with brain fog all day. And just a few minutes ago the bathroom breaks started. I feel super high maintenance with the new gluten-free diet. I haven't even had the guts (ha! pun!) to try gluten-free bread yet...I'm kind of afraid of the taste. So, I'm right there with ya. 
  9. Ultrasounds aren't going to show anything for Celiac. Unless they are looking at that upper right quadrant for gallbladder issues.    I wouldn't think the pain would take a week to show up from gluten. At least, I've never heard of it taking that long.    The pain on your right side. Does it feel like fullness or a golf ball under your ribs? What you decribe sounds a lot like my pain. I have an ultrasound and HIDA scan on Monday to check my gallbladder. The tentative diagnosis is that I have a malfunctioning gallbladder. My ultrasound a year ago showed no stones, but the GI doc said it could not be contracting right and cause the symptoms. I also read that some people don't make gallstones but have sludge like bile that causes problems. The only way to check for gallbladder functionality is a HIDA scan. Ultrasounds will show stones and maybe the sludge bile (depending out how good the tech and machine are) but it won't show functionality.  
  10. Basically when you have lots of reflux/acid it causes the esophagus to narrow. My Grandfather has to get his stretched every few years, too. When they did my endoscope my esophagus was swollen, so I opted to wait a while and see what happens.     When I looked up gallbladder symptoms after my appointment I did read about people who don't get stones but get sludge or sandy bile that causes problems which would not show on an ultrasound.    I had a sleep study done about a year ago. It showed that I have sleep apnea. I tried a CPAP for a couple of months but actually slept worse. I'm hoping that fixing deviate septum in my nose will help with it. If not I'm getting a mouth guard. 
  11. 2-3 Days For A Glutening Reaction?!

    It took 12 hours today. I had my first 2 pieces of true bread for breakfast this morning in a long time. I'm still on gluten because the testing hasn't been completed and my GI told me I don't have I thought, "Why not?" BIG mistake.
  12. I just got back from my GI doc with some of your symptoms. His diagnosis was a malfunctioning gallbladder. So now I get to have an ultrasound and HIDAscan.    When you get the yellow D, does it burn? That's also an indication of gallbladder issues. I also have a full feeling right under my rib cage about an hour or so after I eat.    My issues with swallowing come from GERD and a hiatal hernia. He mentioned today that he could stretch my esophagus whenever I felt I needed it. 
  13. Celiac Or Not?

    Really, the bottom line is: Does going gluten free make you feel better? If the answer is yes, then you can call it non celiac gluten intolerance and call it a diagnosis. I'm holding out for an endoscope because I want to know if there is any damage. It sounds like from your scope that there was some kind of damage and I know I've heard of the scallops before with celiac (not an expert in this area by a long shot).    With my intolerance issues I've noticed that it's not always a big huge reaction. I'm currently trying to determine if I'm intolerant to red meat. I've had reactions ranging from dry heaves/nausea (first time in a while that I'd had a steak) to a mild stomach ache (leftover steak, hamburger meat). For me, there is no predictability.  
  14. Yup..that Hiatal Hernia will cause the swallowing problems. I flipping hate them. Hopefully they will find something. =c)
  15. I didn't even think my bathroom habits were abnormal until I started having more problems earlier this year. I just assumed everyone went to the bathroom an hour after eating. Once I started having stomach cramps and issues with blood again, I decided it was time to get it checked out. I've already had a c-scope (which found a pre-cancerous polyp) and endoscope (found Hiatial Hernia but didn't go into my small intestine and no biopsy done). When I realized that the GI didn't do any Celiac testing, I asked my primary and it came back positive. So I'll be back at the GI this week to hopefully get an endo scheduled.   That was longer than I expected...but you mentioned heart burn and swallowing. Anytime I eat any gluten I have the same problems. My GERD flares, nausea (It's always fun dry heaving while walking through the office), and it feels like I have food in my esophagus. As far as pain, until I started focusing more on it I didn't realize how much pain I'm in after I eat gluten. It's entirely possible that you have other damage caused by the heartburn, too. That was another one of those things I didn't realize was a big deal.   Another red flag with the swallowing...does it feel like your throat is closing up when you eat gluten? That could be an allergy, possibly life threatening. I don't want to scare you, but anaphylaxis is dangerous. Check out this website and if that fits your symptoms while consuming gluten (or anything) find an allergist immediately or talk to your doctor about getting an epipen.