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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About Kreative

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    1. Kreative added a post in a topic Celiac?   

      Hi guys,
      The doctor just called me to come over tomorrow morning so I'm 99% sure my celiac bloodwork was positive (since it's the only thing I was tested for and they don't call if it's not worth it). I feel a bit of a relieve even though it's gonna be a long battle.  
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    2. Kreative added a post in a topic Does This Sound Gluten Related?   

      Hi Bert,
      I'm in the same boat as you (I've also given up gluten two weeks ago) suspecting that gluten intolerance might be the reason for my ongoing health problems.
      For me the neurological symptoms haven't improved much but I understand that it can take a long time, however I have felt a burst in energy since going gluten free. A real eye opener was some accidental contamination (eating some fish covered in a crispy breaded layer) that left me without energy for another two days. 
      Funny is that you're experience with caffeine is exactly the same as mine, I used to be a regular coffee drinker (daily Starbucks visitor) and for the first time in 2 months I had an espresso yesterday and I thought I was going insane.
      And yes I'n also skinny (I'm 6'1 and weigh 154lbs (a bit more but still in the low ranges and I'm quite athletic)).
      My advice would be to get tested asap, it only takes a little blood it will help you to rule out any other causes + the tests require you to have gluten in your system.
      Good luck with everything
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    3. Kreative added a post in a topic Celiac?   

      Hi everyone,
      Thank you so much for the replies. 
      A couple of things I'd like to add following some of your replies:
      - I've had tests done for mono, strep throat and hepatitis (all of these tests were negative). The doctor told me I had mono at some point in my life (probably childhood) so I don't think that's what's bothering me.
      - For my thyroid I've only had the (TSH?) values on my blood test. They were slightly higher (hypo) but nothing extreme and the doctor told me this could be a bounce-back from the stress I was under (worrying about my health problems only made things worse). He suggested to test it again in 2 months (which seems like a long long time).
      Wether I have celiac or not I expect stress to be the trigger for my current onset of problems (since it weakens the immune system) I've also been walking around with an untreated tooth infection for quite some time (which probably didn't help) but my bloodwork didn't show any sign of infections so I don't think this really bothered me. I've had a treatment for this a couple of weeks ago..
      Anyway tomorrow I'll be getting the results from my celiac blood work, I've done another allergy test to identify specific food allergies (quite expensive but it could be worth it) with the results arriving next week. Another symptom I'd like to add is some sort of chronic hunger that I'm getting after eating meals that are high in carbs / gluten (it's like a vicious circle). I've had my yoghurt - fruit - egg breakfast again this morning and I do feel better compared to oatmeal.
      I'm investigating vitamin deficiencies, my blood showed sufficient iron and in addition I've taken magnesium tabs. I also read that B12 could really help with things like tremors / brain fog so I've ordered a B12 supplement. All I can do now is wait .
      I've reduced my exercise schedule for now (I'm actually not really in the mood for it at the moment). These problems are also affecting my personal life, I've resigned from my job yesterday and I'm planning to move back in with my parents until I'm fully healed. All of this is really weird for me, I can't remember having anything (a cold, flu) for the last 7 years, people always commented on my physical health but now I'm a bit of a wreck (both mentally and physically).
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    4. Kreative added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      Hi guys,
      I'm new to this forum and still waiting for the results of my blood test. I'm not certain I've got celiac but I feel that my symptoms are similar to what I've read from other people on this forum.
      Before I started feeling ill I was having a very active but also stressed lifestyle (doing two jobs in high demanding environments, playing competitive tennis with daily training sessions and living on my own in a foreign country). My diet was extremely carb loaded (I had big bowls of pasta 2 times a day and a big bowl of oatmeal in the morning). I always felt that pasta was the perfect sports / quick energy food so I've eaten it in abundance. 
      Suddenly one day as I was walking with my colleagues for lunch (and after snacking on some oatmeal cookies) I collapsed with what felt like an episode of hypoglycemia. After some apple juice I slowly recovered but it took 2 weeks before I was able to make it out of bed again. I developed a dry mouth and an on / off sore throat during that period.
      My first idea was that I developed diabetes but my bloodwork was all fine (I had two thorough tests but nothing showed up) the only thing that was noticeable (but not worrying according to the doctor) was increased liver functioning and a slightly underactive thyroid). Since I collapsed (about 2 months ago now) I've been feeling slightly better but I'm still far from my old self (I'm often dizzy, blurred vision, weak, tired, lost some weight, brain fog, hand tremors and I feel weird after eating). The interesting thing is that despite all these problems I'm still able to do intense sports (mainly cycling) but I'm just not feeling healthy in general. I'm suspecting that exercise releases certain hormones that just make me feel better. 
      Last week as I was travelling to Italy I had to skip breakfast and I noticed I was feeling better (not dizzy, blurred vision) so I started thinking "maybe it's a food allergy". On holiday last week I had a very simple breakfast (yoghurt with dried fruit and two eggs) and that seemed to really hit the spot (I cycled 5 hours in the mountains without any problems). Since I'm back however I reverted back to my morning oatmeal and I spend most of my morning feeling bad. The oatmeal I'm eating is labelled gluten free but I read that a lot of celiac patients can't tolerate it. I went to the doctor yesterday to ask for a celiac test and I'm not waiting for results.
      Doctors told me it's probably burnout / adrenal fatigue but I sense a strong connection with the things I eat and the way I feel. They put me on anti-depressants but that just made me feel worse (so I stopped taking those). 
      I read that celiac is more common in blonde / blue eyed people (that would describe my looks)? Does this sound familiar to anyone?
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