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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About Nancym

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    1. Nancym added a post in a topic Giving Up On Celiac Diet   

      Just FYI, the dairy components of the diet are often omitted. I started out on SCD, but without the dairy, and then realized it was virtually the same as a "paleo diet" but with a lot more fussing over food. So I switched to paleo. I've since found there's things other than dairy and gluten that cause me issues. It seems like foods like nuts and seeds do as well. I can eat small amounts of them, but if I over do it I have some pretty severe intestinal issues.

      It is a bit of trial and error and it takes a good positive mental outlook to make a lot of dietary changes, but lots of people do it successfully.

      I hope you figure out what helps you!
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    2. Nancym added a post in a topic Casein Withdrawal?   

      Aw, sorry you're having withdrawal symptoms. I never had any at all, at least that I could identify.
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    3. Nancym added a post in a topic Does Anyone With Celiac Disease Hear Their Pulse?   

      That can be a symptom of thyroid issues. When I was hyperthyroid I heard my heart beating at night. Very unsettling.
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    4. Nancym added a post in a topic I Swear I Have Celiac Disease...but....   

      Well, you're in luck. This is one disease you can test yourself and treat yourself if you put your mind to it. Just get up to speed on the gluten free diet. I suggest eating foods as whole and natural as possible, eliminate the manufactured stuff so you don't have to worry about cross contamination. If you have to spend more than 2 seconds looking at a label, put it down and make something for yourself from scratch. You can even feed your whole family this way and they'll all be fine, maybe even healthier than usual.

      Give it at least 2 very, squeaky clean weeks at the minimum. A couple months is even better. See what happens.

      And you get to make a choice... do you look at this as an opportunity to take charge of your health, learn how to cook in new delicious ways or you can look at yourself as a victim. Lots choose to go the victim route and they spend a lot of time feeling angry and depressed. They're missing a huge opportunity to turn around their eating and still eat delicious food but food that's lots healthier.
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    5. Nancym added a post in a topic Help With Enterolab Results   

      People can be intolerant to casein (protein) or lactose (sugar). You're probably lactose intolerant, but not casein intolerant. Food intolerances are not allergies. They work differently.
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    6. Nancym added a post in a topic Sores In Mouth - Symptom Of Gluten-intolorance As Well As Celiac?   

      I used to get canker sores a lot. Started as a kid, continued into adulthood but not as frequently. AFAIK I am gluten intolerant, none of my testing for celiac came back positive but I didn't test until after I went gluten-free.
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    7. Nancym added a post in a topic Is Positive Genetic Test Enough For Some Of You To Go Gluten Free?   

      For me the decision was pretty simple. Make a temporary change in my diet to see if long standing issues went away or continue to suffer and put myself at the mercy of current medical practices constantly which weren't doing me a bit of good, and were quite possibly making things worse.

      I had my answer very quickly after going gluten free.
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    8. Nancym added a post in a topic My Family Is Insisting I Get Tested   

      If you don't have health insurance then I'd do a dietary trial and call it a day. If your symptoms get better, then you know what you need to do.

      There's no guarantee that testing is going to resolve all your questions anyway. Lots of people go through many painful, very expensive tests and never get an accurate diagnosis of anything. I had one doctor get very obsessed over the small amounts of blood in my urine. She ordered a bunch of really nasty tests... later on I found that most cases of this they never find the cause of and so it isn't really anything to be concerned over. *sigh*

      If I were you I would give the diet a good try, be very conscientious about it. If, after you've had a nice long time to heal, you still feel awful then you might need to tweak the diet some (might have other food intolerances) or you should look into having the doctors check you for cancer, colitis or whatever else might be the issue. Hopefully by then you'll have health insurance.
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    9. Nancym added a post in a topic Can I Get A Description Of A 'brain Fog'?   

      For me brain fog meant terrible memory and poor mental performance. I felt like someone had replaced my brain with a lot of wool.
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    10. Nancym added a post in a topic Bone Scan Results   

      I don't know if there's any answers here for you but I've been following this doctor's blog and his post today is about Celiac disease and bone loss
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    11. Nancym added a post in a topic Health Care Reform And "unnecessary" Tests   

      Right now the way things are you could lose your health insurance because you failed to tell them you had a stomach ache 10 years ago and they could refuse to pay any bills you racked up at all, deciding that you were trying to get covered for a pre-existing condition. And your recourse is basically to find another company to cover you which now you have a pre-existing condition and no one will.

      Health care reform isn't going to eliminate insurance companies, they're going to still be there, but they are going to set rules about who they can refuse and stop all the nonsense like recission. There's also the potential for a government run option. I don't hear too many seniors or vets complaining about their government run health care. Besides, if we don't like the health care we end up with we can always kick people out of office until they fix it. Hard to do that with private companies...

      And of course, people don't get all the tests they want with private insurance either. I suspect things won't change a whole lot and that gluten issues will still be self-diagnosed fairly often like it currently is. Just so long as I can continue to utilize companies like Enterolab to do my own testing, I'll be fine with that.
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    12. Nancym added a post in a topic Day 1 Of The Kitty And The Air Mattress Has Been A Success   

      Trim her nails? I keep my kitty's nails clips. Just the tips. I wait until he's sleeping, gently get a paw, push out a nail and quickly clip off the tip. Over the years he's gotten really used to it and I can usually do it while he's awake. I just fuss over him a lot and he loves the attention.

      On a lark I even tried to file his nails once and couldn't believe how cooperative he was with that!

      They also make these glue on covers for nails called "SoftPaws". They last about 6 weeks and they're very pretty! But frankly, it was just as easy for me to clip.
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    13. Nancym added a post in a topic Feel Like I'm Going Crazy...   

      I remember seeing an episode of Mystery Diagnosis, a lady with something wrong that was causing excess cortisol hormone production. She gained a ton of weight, had changes in her mood, and she had that buffalo hump. Cortisol is a stress hormone linked with adrenaline and such, could this be a possibility?
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    14. Nancym added a post in a topic Tiredness On Onset Of Period   

      I get dysmennorhea ( Which is loads of fun! Tiredness is all just part of it. It has gotten worse as I've gotten older.
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    15. Nancym added a post in a topic Im 13. Gluten Free 7 Weeks And Still Get Bloated   

      You might try to cut out dairy and see if that helps.
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