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About africanqueen99

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  1. You can also ask your child's school nurse. That's how I found my first mom of a celiac child. The nurse had to get her permission and then put us in contact. Same nurse also offered to ask the entire district (it's really large) through the nurses.
  2. My 9 year old started a gluten challenge last week (on Xmas Eve) and I'm amazed by the results! Rewind: When my youngest was a baby she was dx celiac so her siblings were both tested and both came back in that gray area of "could be or couldn't be - we decide." Because the oldest hadn't grown height and had lost weight in over a year, had daily stomach aches, often had to remove herself during a meal to relieve herself, etc, we opted to go with "yes - celiac." She gained weight. Grew several inches. Stopped running to the bathroom during a meal. All was right. For two years. Now she's back with running to the loo and general growing pains. Every speck of food comes from me and she was scared of cross-contamination so I know she's not cheating. Anyway, she asked about a challenge and retest and I felt she's mature enough to make decisions on her own. She came out the gate with a Dunkin Donuts long john - nothing. Then a Panera bagel - nothing. Sandwich for BBQ - nada. She's only had diarrhea once since starting and that was after a meatball sub - which has so many things happening at once. I'm amazed! She will get tested again in March. And, if her numbers are better this time, she will still be primarily gluten-free as my house, my lunches, my snacks, etc, are 100% gluten-free. Fingers crossed!! Oh, and this is the funny part, she actually made a list of everything she wanted to eat over this three month time span. She even put things on the list like Twix and licorice. It really is the little things!
  3. Well, I think you're over-reacting in the fact that you've left this door open for the school to make decisions for the child...and then you didn't like the outcome. 504 Plans are to HELP the school HELP your child. They can't know these things unless they're forced to. Please get a plan in place. Also, know that it gets better. The older the kid the more vocal they will be to teachers. My Kinder kid (not one of my kids with celiac) just had a gingerbread cookie decorating party at school. And the teacher made every single item in the room safe for every single kid. It's totally possible - even with a wide variety of allergies in one class.
  4. Welcome to the site, Christi. The gluten takes a bit to get out of your system so there's no option of "sneaking" a little gluten treat and going back to nursing. Oh, how I wish it was a simple pump and dump situation!! If you truly think your boy is having an issue with gluten you might want to "gluten light" him for the time and then consider blood testing him in the future.
  5. My 3 y/o attends a public school district preschool program. Last year she was in the public school district Kids Morning Out. I had a 504 filled out before she started KMO and then we updated at the end of the school year knowing she would bump up to preschool this year. This is a quote from me from a thread a while back about the situation. At this particular school they take all allergies seriously. Truly, there was a kid with a latex allergy a few years ago and they removed ALL latex from the school. They're that good - so I knew they would take gluten seriously. And they do:
  6. Well...hell. I went to my 4th grader's curriculum night last week and guess what I found out? You're right - unrestricted snacks are allowed all day in this teacher's classroom. She has one rule - no soda. WTF?! My husband wants me to go crazy as it's not fair to our child that the others eat junk and keep her on high alert all day. This particular kid isn't overly "sensitive", but it's just unfair to her. Besides, it's disgusting! One of the parents pulled a "family size" empty bag of doritos from their kid's desk. So he's eating crap and then licking that orange goo off his hands and then touching classroom items. Gross. Gross. Gross. I send in one small snack to keep her held over, but now I'm just annoyed at this process. Mostly, I'm disgusted that the teacher is using food as a way to make her cool.
  7. Oh, yeah, my kid is still small. She's long and lean (just like her sister - and my body before the kids blew it out!). She's now 3.5 and wears 18 mos shorts. Still short, too. Like I said, she's got a killer catch-up coming along.
  8. I am floored by this free range eating concept. It's unhealthy to eat all day (I can just imagine the carbs and junk being sent it) and puts your child at a huge risk. I know you can't answer this, but WHY would they even allow this?! I'd call a 504 Plan meeting. You can call it in - just ask the nurse (assuming this is a public school) to get the ball rolling. You also asked about lunch. I'm in a large, wealthy school district and the cafeteria doesn't make food - it receives it from the main cafeteria that sends it to the other schools. So our elementary essentially "warms" food to serve. Because of that I don't need to worry about particulate floating around the room. I can legally ask them to accommodate my 4th grader, but I don't want to get into it. I send lunch every day - and have extra Go Picnics in the nurse's office in case of an emergency (water bottle opens, forgotten lunch). It's a system that works for us. When we started this process my then-2nd grader went to lunch a minute early to Clorox wipe her eating space down, but she's past that now.
  9. By free range eating do you mean that children are allowed to eat anywhere and any time in the classroom? Or do you mean snacks at their desks?
  10. My youngest was DX at 18 months. When she went in for her 2 year check-up she hadn't grown yet. At her 3 year check-up she had gained SIX POUNDS (!!!). Her Ped said the average for that span should have been 3 pounds, but she is catching up. I practically danced in the office. Point of the story - it took 18 months to see that growth.
  11. My youngest was DX at 1.5 years and I immediately went gluten-free with her so she could continue nursing for another 1.5 years. StephanieL - I must have read different research than you, because everything I read told me to either wean or stick to a strict diet for her. We never had any issues as I was crazy strict with what we all ate. Pre-dx this kid would scream bloody murder all night long, couldn't sleep (in severe pain) and nursed all the time (way more than the average kid) to soothe her belly. It was clear that her diet was hurting her.
  12. Yep. All of the above. I write "Celiac Disease - can not eat or play with gluten (wheat, oats, rye, barley). All food will be sent from home." in the allergy area AND the "other" area. I do it to get a straight flag to the nurse.
  13. My oldest had a couple of summers at GS camps pre-dx. Now I refuse to send her. They tell me they can keep her safe, but I question that - and it's not worth the hassle when I can find alternatives. Last summer she went to a gluten-free camp in Georgia. She loved not having to thing about food, but the camp wasn't what her dad and I envision as "camp." She's currently at a ymca camp outside Indianapolis that is having a gluten-free week - not all kids, but they tried to pull the gluten-free ones together. This will be her first year, but they seem to have a great department to focus on dietary needs. I really want to just start my own darn camp!
  14. Yep, get some food in the kid. What about letting him pick some mom-approved junky food to eat along with his lunch? I have a friend that would send in a treat at every lunch. If any other food came back and the treat was gone she would stop sending in treats. Sounds fair, right? Until I had two kids that were struggling to not lose more weight. That first year I was so focused on calories and fats. My little stick children needed to get bigger. Don't forget, you get him for dinner. You can make that the most nutritious meal of the day. It's ok. I promise. One day he will grow and you'll be amazed. My 9 year old gained NINE pounds between her 8 yo and 9 yo well visit. NINE!! That would be a lot for an "average" kid, but when you're starting with these small kids with celiac... I did a happy dance in the doctor's room.