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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About africanqueen99

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  1. My 3 y/o attends a public school district preschool program.  Last year she was in the public school district Kids Morning Out.  I had a 504 filled out before she started KMO and then we updated at the end of the school year knowing she would bump up to preschool this year.   This is a quote from me from a thread a while back about the situation.  At this particular school they take all allergies seriously.  Truly, there was a kid with a latex allergy a few years ago and they removed ALL latex from the school.  They're that good - so I knew they would take gluten seriously.  And they do:
  2. Well...hell.   I went to my 4th grader's curriculum night last week and guess what I found out?  You're right - unrestricted snacks are allowed all day in this teacher's classroom.  She has one rule - no soda.  WTF?!  My husband wants me to go crazy as it's not fair to our child that the others eat junk and keep her on high alert all day.   This particular kid isn't overly "sensitive", but it's just unfair to her.  Besides, it's disgusting!  One of the parents pulled a "family size" empty bag of doritos from their kid's desk.  So he's eating crap and then licking that orange goo off his hands and then touching classroom items.  Gross.  Gross.  Gross.   I send in one small snack to keep her held over, but now I'm just annoyed at this process.  Mostly, I'm disgusted that the teacher is using food as a way to make her cool.
  3. Oh, yeah, my kid is still small.  She's long and lean (just like her sister - and my body before the kids blew it out!).  She's now 3.5 and wears 18 mos shorts.  Still short, too.  Like I said, she's got a killer catch-up coming along.
  4. I am floored by this free range eating concept.  It's unhealthy to eat all day (I can just imagine the carbs and junk being sent it) and puts your child at a huge risk.  I know you can't answer this, but WHY would they even allow this?!   I'd call a 504 Plan meeting.  You can call it in - just ask the nurse (assuming this is a public school) to get the ball rolling.   You also asked about lunch.  I'm in a large, wealthy school district and the cafeteria doesn't make food - it receives it from the main cafeteria that sends it to the other schools.  So our elementary essentially "warms" food to serve.  Because of that I don't need to worry about particulate floating around the room.  I can legally ask them to accommodate my 4th grader, but I don't want to get into it.  I send lunch every day - and have extra Go Picnics in the nurse's office in case of an emergency (water bottle opens, forgotten lunch).  It's a system that works for us.  When we started this process my then-2nd grader went to lunch a minute early to Clorox wipe her eating space down, but she's past that now.
  5. By free range eating do you mean that children are allowed to eat anywhere and any time in the classroom?  Or do you mean snacks at their desks?
  6. My youngest was DX at 18 months.  When she went in for her 2 year check-up she hadn't grown yet.  At her 3 year check-up she had gained SIX POUNDS (!!!).  Her Ped said the average for that span should have been 3 pounds, but she is catching up.  I practically danced in the office.   Point of the story - it took 18 months to see that growth.
  7. My youngest was DX at 1.5 years and I immediately went gluten-free with her so she could continue nursing for another 1.5 years.    StephanieL - I must have read different research than you, because everything I read told me to either wean or stick to a strict diet for her.  We never had any issues as I was crazy strict with what we all ate.   Pre-dx this kid would scream bloody murder all night long, couldn't sleep (in severe pain) and nursed all the time (way more than the average kid) to soothe her belly.  It was clear that her diet was hurting her.
  8. Yep.  All of the above.  I write "Celiac Disease - can not eat or play with gluten (wheat, oats, rye, barley).  All food will be sent from home." in the allergy area AND the "other" area.    I do it to get a straight flag to the nurse.
  9. My oldest had a couple of summers at GS camps pre-dx. Now I refuse to send her. They tell me they can keep her safe, but I question that - and it's not worth the hassle when I can find alternatives. Last summer she went to a gluten-free camp in Georgia. She loved not having to thing about food, but the camp wasn't what her dad and I envision as "camp." She's currently at a ymca camp outside Indianapolis that is having a gluten-free week - not all kids, but they tried to pull the gluten-free ones together. This will be her first year, but they seem to have a great department to focus on dietary needs. I really want to just start my own darn camp!
  10. Yep, get some food in the kid.  What about letting him pick some mom-approved junky food to eat along with his lunch?   I have a friend that would send in a treat at every lunch.  If any other food came back and the treat was gone she would stop sending in treats.  Sounds fair, right?  Until I had two kids that were struggling to not lose more weight.  That first year I was so focused on calories and fats.  My little stick children needed to get bigger.   Don't forget, you get him for dinner.  You can make that the most nutritious meal of the day.  It's ok.  I promise.  One day he will grow and you'll be amazed.  My 9 year old gained NINE pounds between her 8 yo and 9 yo well visit.  NINE!!  That would be a lot for an "average" kid, but when you're starting with these small kids with celiac...  I did a happy dance in the doctor's room.
  11. Oh, one more thing.  When my oldest was in Kinder I wanted the perfect amount of protein, fruit, veggies, etc.  Now I just pack stuff without caring as much.  If elementary kids don't love what's in the lunch box it all comes home with them.  I'd rather she get some calories more than being hungry.  This might be the end of the school year talking, though...
  12. It's ok to be nit-picky.   I have made a school lunch for my elementary kid every. single. day for the past four years.  I'm really over school lunches.  But they're easy enough to get a good spread of food.  My older kid helps me pack.   I send a snack for the younger kid.  In KMO the other kids are given a center-provided snack and hers is sent from me.  She's the same age as your son.  So, she's always been "different" and it hasn't bothered her yet.  I truly think it's easy to overthink it as parents in that regard.  In fact, my girl loves carrots and asks me for them almost every day - while her peers are eating goldfish, graham crackers, junky food.  Since she's getting something she loves and picked out she's happy.  Twice now a little friend tried to snag her carrots instead of eating her own food (which is why I keep extra shelf-stable foods at school for her).  Ask your son what he would like and he might just love getting his favorites instead of worrying about it not being the same.
  13. I have two kids with 504 plans (current 3rd grader that got hers at the start of 2nd grade - and current *public school district* Kids Morning Out that starts *public school district* Preschool next year).  I'll only talk about the younger kid right now.   We met to put together her plan the Spring before she started KMO (she was 2.25 years at that time).  I had meetings with the upcoming teacher and aide, head of program, school nurse and Health Services Director for the district.  The Director of the building never attended anything - she had no need to.  Other than the Health Services Director (who puts together all 504s in the district), I had all the people I needed in the room.  We started off by them asking me what happens if she has gluten - I didn't sugar coat anything and might have embellished a little bit as I felt I was speaking for future kids with Celiac in the school too.  Then they literally asked me what I wanted and we discussed them point by point.  * No food not from me or approved by me * My kid is assisted with her food first and has a set spot at the head of the table (easier to not have other kids touch her food) * All supplies were checked and safe from the school district person that does that (not sure of his title - but the man is a beast and gets to the bottom of all ingredients directly from manufacturers) * Unrestricted bathroom acess etc   All this to say that I'd have a sit-down with the people that really matter in this scenario - teachers/aids/nurse/etc.   Like Stephanie, I wouldn't trust a cafeteria to feed either of my kids with Celiac.  For example, you have a gluten-free toaster - labeled and color coded and sharpied to high heaven that it's only for your kid - and a sub comes in, throws a regular waffle in, and that toaster is now not safe.  Or tub of butter gets a quick swipe from an unclean knife.  I send in all food.  Period.  Breakfasts from me would be - individual yogurt with granola, oatmeal in a thermos, cereal, etc.  Remember, meals are chaos and they're trying to feed lots of kids at once.   I'm not sure if you can get a formal 504 for a non-public school daycare, but you can always type up your requests and go from there.   Good luck.  It gets easier dealing with this stuff as they get older.
  14. There are so many variables about how long recovery takes, but I can comment on the growth aspect.  My youngest was DX at 18 months (after dropping off the charts between 12-18 months.  When she hit 3 years she finally started looking like a typically sized kid - "normal", just a little smaller.  I'd say it took about 9-12 months to go from the little twig limbs to what you'd expect.  She started wearing 12 month clothes at 12 months and didn't jump to the any other size until she was well past 2.  Now that capris are in style she's back to a lot of her 18 month pants - perfect on the waist, just below the knees for playing.   Fierce, but mighty!   We totally went through that stage that nobody believed she should be walking and talking because she was so small.  Honestly, her vocabulary was light years ahead of most kids at that age so that totally threw strangers - she was infant size, but carried on these amazing conversations.