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LivingHealthy42

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About LivingHealthy42

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  1. When I was hospitilized in August they ran a ridiculous amount of test, daily blood tests, usually around 4-6 a day, experimented with meds, tested for all pathogens, viruses, infections including CDIFF and CMV, also did a full colonoscopy and took tissue samples. Literally everything came back negative. All the docs were are very confused and only keep coming back to "it must be the meds." The kidney surgery is my first major major surgery, but I did have three other minor surgeries prior to this. They do say that I am certainly inflamed from the constant bowel movements, etc, and could take much longer to fully heal once the cause is determined. Regardless, until a definitive answer is know, the gluten-free diet works for me and is my best option.
  2. I was going 100% gluten-free for about 2-3 weeks and found my symptoms to improve. The bloating and gas pains decreased almost totally, but not all the way. I asked the dr's to order a gluten intolerance test which they did. I was to be on a regular gluten diet for 2 weeks and then go in for blood work and possibly additional test depending on results. I could only go about 2 days of eating regular food before extreme stomach pain and watery diarreah returned. I cancelled the gluten test for now and am returning to a 100% gluten-free diet. I was actually re-hospitilized for 10 days in the middle of august because of my stomach pains and diarreah. The obvious loss of fluids and other nutrition from the diarreah is a severe risk to my new kidney. I was discharged from the hospital with no results and no diagnosis. My drs (Kidney team, surgery team, GI team and infectious disease team) continue to feel it is associated with my daily meds. Until this is determined I've chosen to be on a gluten-free diet. Without this diet, my quaility of life was honestly better before the transplant and being on dialysis 3 times a week. It has been very frustrating. **To add: I've never had any dietary issues or needs prior to my transplant. Even during my dialysis period, I was perfectly fine eating any foods, and all grains, wheats, etc. The drs determined that my kidney disease was congenital and have shown long term scarring since childhood. I am very young for all these health issues, yet to turn 30.
  3. Hello everyone, I am obviously new to the forum and also to the gluten-free diet. I am not medically diagnosed with a gluten sensitivity yet, but choose to eat gluten-free. In January of this year, I became extremely ill with abdominal pain, weight loss, vomiting, and nausea. After going to the family dr and having some blood work done, I was immediately admitted to the hospital the next day. Two days later I was diagnosed with kidney failure. This was completely out of no where and unexpected. I've always been in great health, active, athletic, etc. etc. It was a shock. In July of this year I received a kidney transplant from my wonderful sister. Ever since the transplant I have experienced extreme diarreah accompanied by stomach pain, bloating, and gas. I was running to the restroom 4-6 times a day every time I ate. However, with the high volume of meds I must be on due to the transplant, this is common. The issue is that it has now been three months of being on these meds and my dr's have just told me they see cases like mine only about once a year. I've been experimenting with gluten-free foods, and this has certainly increased my quality of like. I still have daily episodes, but am better. I'm hoping there may be others that have had similiar situations via a post transplant or other similiar situations? Looking forward to joining the forum.