This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
When I was hospitilized in August they ran a ridiculous amount of test, daily blood tests, usually around 4-6 a day, experimented with meds, tested for all pathogens, viruses, infections including CDIFF and CMV, also did a full colonoscopy and took tissue samples. Literally everything came back negative. All the docs were are very confused and only keep coming back to "it must be the meds."
The kidney surgery is my first major major surgery, but I did have three other minor surgeries prior to this. They do say that I am certainly inflamed from the constant bowel movements, etc, and could take much longer to fully heal once the cause is determined.
Regardless, until a definitive answer is know, the gluten-free diet works for me and is my best option.
I was going 100% gluten-free for about 2-3 weeks and found my symptoms to improve. The bloating and gas pains decreased almost totally, but not all the way. I asked the dr's to order a gluten intolerance test which they did. I was to be on a regular gluten diet for 2 weeks and then go in for blood work and possibly additional test depending on results. I could only go about 2 days of eating regular food before extreme stomach pain and watery diarreah returned. I cancelled the gluten test for now and am returning to a 100% gluten-free diet.
I was actually re-hospitilized for 10 days in the middle of august because of my stomach pains and diarreah. The obvious loss of fluids and other nutrition from the diarreah is a severe risk to my new kidney. I was discharged from the hospital with no results and no diagnosis. My drs (Kidney team, surgery team, GI team and infectious disease team) continue to feel it is associated with my daily meds. Until this is determined I've chosen to be on a gluten-free diet. Without this diet, my quaility of life was honestly better before the transplant and being on dialysis 3 times a week. It has been very frustrating.
**To add: I've never had any dietary issues or needs prior to my transplant. Even during my dialysis period, I was perfectly fine eating any foods, and all grains, wheats, etc. The drs determined that my kidney disease was congenital and have shown long term scarring since childhood. I am very young for all these health issues, yet to turn 30.
I am obviously new to the forum and also to the gluten-free diet. I am not medically diagnosed with a gluten sensitivity yet, but choose to eat gluten-free.
In January of this year, I became extremely ill with abdominal pain, weight loss, vomiting, and nausea. After going to the family dr and having some blood work done, I was immediately admitted to the hospital the next day. Two days later I was diagnosed with kidney failure. This was completely out of no where and unexpected. I've always been in great health, active, athletic, etc. etc. It was a shock.
In July of this year I received a kidney transplant from my wonderful sister.
Ever since the transplant I have experienced extreme diarreah accompanied by stomach pain, bloating, and gas. I was running to the restroom 4-6 times a day every time I ate. However, with the high volume of meds I must be on due to the transplant, this is common. The issue is that it has now been three months of being on these meds and my dr's have just told me they see cases like mine only about once a year.
I've been experimenting with gluten-free foods, and this has certainly increased my quality of like. I still have daily episodes, but am better. I'm hoping there may be others that have had similiar situations via a post transplant or other similiar situations?