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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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  1. Weight Lifting After Celiac Diagnosis

    Definitely a change, but not as quick as you.  I now can deadlift and squat 85 lbs and overhead lifting 35lbs.  Still working to see what I am capable of.  But 1.5 years ago when I went gluten free, I thought a 5 lb hand weight was heavy...
  2. Annoyance With Fad Dieters

    I live in a major city and my non-health food grocery store also carries gluten free flours and items.  However, there is no way I would buy my gluten free flour there.  Their shelves are a mess and there is regular flour just above the gluten-free flours dripping it's gluten all over...I am happy they carry gluten free flour but they really need to change where they put it and what they put next to it.
  3. Yes, I absolutely have had the same issues.  2 - 3 years of stuff breaking down.  Severely torn glute, elbow tendonitis, knee tendonitis, neck and back issues, torn scalene muscle in my shoulder, torn calf muscle, torn proximal hamstring, etc...the list goes on and on.  Most of these injuries were from very little cause or effort (i.e. 10 minutes on treadmill).  It was clearly obvious that normal people do not get injured doing the things I was doing.  I was tested for Lupus, Rheumatoid arthritis, thyroid issues, Lyme disease, etc.  Everything that you can think of that may cause such issues.  It wasn't until we centered on celiac disease and I was strictly gluten free that these issues improved.  My nutritionist told me that as far as your tissues are concerned, gluten stays in your system for 6 months even after you go gluten free.  It held true for me that my issues didn't start to improve until I was gluten free for 6 months.  Improvement started with no new injuries, still had all the existing issues to deal with. It has been a long battle with a great sport chiropractor who specializes in soft tissue injuries and a great personal trainer.  I am now about 1.5 years since I eliminated gluten and I have made great strides and am working out on a regular basis and my injury areas are slowly fading away.  The hardest part was working out in the beginning when everything in my body and mind was telling me not to.  I focus on adequate protein intake, vitamin supplements and drinking enough water.  It was shocking to me how the impact of adequate water intake can play into muscle pain.   At it's worst, I felt like my body was just breaking down muscle and tissue in order to sustain itself. I figure this was going on for many years, so it's not unrealistic to think that it will take a few years of diligent work to reverse everything. 
  4. Normalizing Sleep Patterns?

    I have never, like never, been a morning person by any stretch of the imagination.  Now I have never had trouble sleeping, in fact, one could argue that I sleep too much!  Since being gluten free for over a year now, I am suddenly becoming a morning person.  I wake up spontaneously with the sun (no alarm clock) and I am refreshed and ready for the day.  Literally all my life, I never understood people who woke up before 11 am. LOL    Symptom resolution?....perhaps
  5. I had a very unusual blot clot in my right ovarian vein that was likely associated with celiac disease.  First, it is very rare to get a blood clot in this location and those that do have either recently delivered a baby, or had a recent hysterectomy.  I had neither.  I was tested for every imagineable clotting disorder there is and nothing was found.  There was literally no reason for me to have a clot, let alone in this location.   There are a number of clinical references that cite an association of blood clots with celiac disease and in some cases, can be a presenting symptom before celiac is officially diagnosed.  In those who do form clots and have celiac, it is more common that clots are in the abdominal area (ovarian vein, splenic vein, hepatic and portal veins (liver vessels))
  6. Flying And Travelling With Celiac And Hotels, Etc

    I travel frequently for work and just got back from San Fransisco.  Northern california is a gluten free haven.  Many resturants are gluten free or have gluten free menus.  Great food in the area.    As far as airports and hotels, I have had luck finding stapes such as hard boiled eggs, fresh fruit (bananas, apples, etc), almonds, kind bars, and I have even noticed that some airport hudson news magazine stores are carrying the GoPicnic pre-packaged lunches.  However make sure that you read the box carefully, not all GoPicnic lunches are gluten free.    If I am renting a car, I will look for a whole foods in the area, if I am going to be there more than just an overnight and stop in there for some staples for the hotel or get dinner from the deli there if I am not eating out with clients.    The hardest thing for me has been making sure I tell people (clients) ahead of time about diet/food concerns for lunch if it is provided in the office.  I always feel like it's a bit of an imposition and will end up eating a salad or being hungry and eating more later. 
  7. For me, diarrhea (up to 9 times a day at the worse point), abdominal pain, bloating, lots of gas, stomach rumbling, light colored, foul, fatty and floating stools, elevated liver enzymes, osteopenia, weight loss, severe muscle and joint pain, nausea, fatigue, Low Vit D, multiple miscarriages, early menopause, numbness and tingling.  And the weirdest symptoms, that can be linked to celiac disease, I had a rare blood clot in my ovarian vein, that they could not determine why I had it.    90% of my symptoms have vanished.  I am still working on my muscle and joint issues.  My nutritionist told me that gluten stays in your system for up to 6 months.  It was around the 6 month mark that I really started to notice the muscle and joint issues start to improve.  I am almost 10 months gluten free now (so I figure from a musculoskeletal perspective this is really like 4 months gluten free) and everyday my muscle and joint issues are very slowly fading away.  Taking a long time...
  8. I agree with blessedmommy, if it doesn't make you feel good, don't eat it.  I will likely never know definitively whether or not I have celiac disease however, I live as though I do, as there are enough factors for me that lean in that direction that it's rather unthinkable to eat gluten.    I do have 2 copies of the DQ 2 gene (homozygous DQ2), which puts me in a high risk category for celiac disease.  Had horrible GI issues and abdominal pain (resulting in 3 hospitalizations and exploratory surgery - yes, it was that bad), have osteopenia, had elevated liver enzymes, low Vit D, had an ovarian vein blood clot (can be a manifestation of celiac disease and generally is otherwise quite rare), horrible muscle, tendon and joint issues (severely tore at least 6 different muscles - doing very little to cause this), it was as if my body was very malnurioused and was breaking down all my tissue to sustain itself.    Had negative blood work - although I tend to discount this because I was gluten free at the time it was done and had been gluten free sporadiacly in the 6 months leading up to the testing.   Had an endoscopy with biopsies - did 3 biopsies, only 1 was from the small intestine.  Not sure about this either since the number of biopsies was limited and in retrospect, I am not sure that I trust the doctors I was seeing to process the specimens correctly to accurately test for celiac.  This was also done very early on in my illness phase and I wasn't willing to go back to eating gluten later to redo this test.    I have now been gluten free for 10 months and all my GI symptoms have vanished.  Still dealing with some of my muscle, tendon and joint issues however, I am now building myself up instead of things beling torn down, it's just taking longer that I want it to.   So, celiac vs gluten intolerance??  I really don't care either way...I'm gluten free and living life again
  9. Iceland girl - As far as I have been able to research and determine it sounds like most celiacs have leaky gut issues caused by the celiac disease.  Others without celiac disease can get leaky gut too, like small instestine bacterial overgrowth.  When you have a leaky gut, large molecules are able to pass through the gut that ordinarily would not be able to.  The body sees these molecules as foriegn and mounts an immune response to these foriegn molecules.  Unfortunately for us, these foreign molecules are things like bananas, tomatoes, fruits, vegetables, advil, etc.  Basically anything we put in our mouths would be fair game.    It is a real bummer however because you don't know what to eat any more. 
  10. Ugghh...I am right there with you.  I thought I was going to be good with gluten free and at first I felt great eating gluten free and then at about 6 - 7 months of being gluten free, I seem to have triggered multiple food allergies.  I don't know that I have figured them all out yet.  However, I know I am reacting to bananas (can't eat raw or cooked), tomatoes (seem to be able to eat cooked but not raw), avacodos, cucumbers, peppers (raw).   I just made some yummy zucchini bread (gluten free of course) and the recipe called for 1 mashed banana.  First time I tried to eat a cooked banana after I know I was reacting to raw bananas.  One bite is all it took for my mouth and throat to start burning.  Now I have a whole yummy loaf of zucchini bread that I can't eat    
  11. Muscle/joint Pain When Glutened

    I like a more natural approach, so rather than anti-inflammatories.  A cup of organic turmeric ginger tea from "The Republic of Tea" with a bit of honey added.  Works as good, if not better than 2 advil.    Also, I am no stranger to neck pain.  I herniated a disc in my neck a couple of years ago (horrible) and my neck has never been quite the same since, so I understand the headaches and neck tension that you are talking about.  Moist heat works great.  I ordered this neck wrap that you can put in the microwave.  It feels so good and works great for loosening up that tension.  I even took it on a long car trip once and was putting in the microwave in gas stations and rest stops just to keep my neck in check with a long drive.
  12. At Mayo clinic, I have been there, Dr Joseph Murray is the head of the celiac department there.  I did not seem his specifically when I was there since I was there for another issue (blood clot) and then saw another GI to get tested for celiac.
  13. My husband came home from work one day and told me all about a nutritionist who have given a talk a seminar that he attended at work that day.  We both work for a health and wellness company who sponsored the seminar.  He told me that the nutritionist clearly stated that M & M's contained gluten.  At first I was in a bit of a panic.  Had I read the label wrong?  I looked again and I'm like, I don't know what she thinks gluten is but there are none in my M & M's
  14. Given the uncertainess with your tests and eating very little gluten at the time of testing.  I would make sure that you get genetic testing done.  While it can't conclude that you absolutely have celiac.  It can rule in or out the possibility and provide one more piece of the puzzle that would help support a diagnosis.
  15. So grateful that I feel better and want to do more and have the energy to do it.   Grateful for the feeling I have after a great weekly workout (haven't been able to exercise for at least 3 - 4 years).   Grateful for the satisfaction that I get from cooking a great tasting and nutritious meal   Grateful for this unspoken bond that I now seem to have with my body.  If I take care of it, it will take care of me.