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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About skullgrl

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  • Birthday January 23

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  • Gender Female
  • Interests Video Games/Magic: The Gathering/Knitting/Crochet/Art/Books/Warhammer/Warmahordes
  • Location Ontario, Canada
  1. I've had B12 deficiency/low iron for years. I just give myself B12 injections now. They work great. You may be able to find lactose free yogurts.    Edit: Oops, pardon the last sentence. I didn't realize it was an allergy! My apologies.
  2. How Do I Cope?

    Some tips, since everyone has covered the basics: 1. Don't apologize. You bring your own food and enjoy it, if other people are offended by your health problem it's their issue, not yours. 2. Don't be forced into eating something you aren't sure about. People generally won't do things like, "Oh but Mr. Diabetic, it's just a little sugar in this cupcake, you'll be fine!" "Oh but Ms. Peanut-Allergy, it only touched a peanut a little, I can just wipe it off!" Not OK there, not OK for Celiacs. 3. Find joy in the little things. 4. You will mess up, it sucks but it will get better again.
  3. If anything ever happens to you again that happened with the appendicitis, and you are in serious pain (obviously, you were, I'm just saying for others who may have problems in the future) or for whatever reason you are in a hospital and they aren't treating you properly and you know something is wrong I have a very simple solution that has worked for both my Mother and I.   Start screaming. And I mean screaming. Have you ever wanted to vent all your earthly frustrations like when you were a baby? Do it. I waited over 3 years for a referral to a rheumatologist. My GP (at the time) wouldn't give me one, no walk-in clinic would nor would anyone at a hospital (and there were no new GP's around). Fastest referral I have ever gotten, and he actually figured out what was wrong with me (not the Celiac disease mind you, but sorting out the nerve pain condition was good enough).   If you are in trouble and no one is listening, then you have to be louder. You don't have to be rude but you do need to advocate for yourself. In Emergency, if you don't have a visible representation of how bad things are then you need to tell them.    Fun Fact: 2 Hours in my Dad found the Emergency doctor asleep a few halls over, on a bench. 
  4. Make sure they are monitoring for psoriatic arthritis, if you have psoriasis.  
  5. Thanks for sharing! I think I might try them.
  6. Advice...please

    Please read all the newbie threads about cross contamination as well! It can take quite a while for things to start getting better but if you do a lot of research and make sure to avoid things like cross contamination it can make the transition phase a lot easier.
  7. My Mom has been having a pain like what everyone describes here. In her case it was caused by a Hiatus Hernia. Just wanted to put this on here in case anyone continues having unresolved issues.
  8. Yes, although its not my biggest complaint. I also have an issue where if I'm doing something else and someone starts talking to me and I don't really hear them, I won't hear them at all. Actually, thinking about it now I do have problems with it sounding like people are mumbling a lot!    Your vision problems, I have Visual Snow. Is it anything like that?   I suggest you buy Gluten Freedom, by Dr. Alessio Fasano. Apart from it being an amazing book otherwise, it has a helpful section on the neurological issues/nonresponsive Celiac disease. His "Fasano Diet" has really helped me, although I did start it before the book came out based on basic information on here. Your issues with potato and corn could simply be an issue with all/most premade gluten-free food. I know I can only tolerate a couple of certified gluten-free (10ppm, by GFCO) things in a day and even then its things like peanut butter or spices.
  9.   Awesome! Happy to share it and hope people enjoy it.
  10. The cutting boards, colanders, and anything plastic, wood or nonstick (ie. pans/baking sheets/muffin baking sheets) can NOT be shared. You need to get all new ones because gluten is a protein that can get stuck in the cracks and will not be removed by the dishwasher. I would advise against using the same towels, you need ones kept strictly separate. If you have a really crappy dishwasher I wouldn't want to wash things that have a bunch of gluten on them with things that are gluten-free (I'm looking at you dishwasher, I see all the food you leave on things!!).   I would also not have any sort of wheat/gluten-y flour in my kitchen. If you breathe it in, it can go down the back of your throat and you can be glutened. I know when I bake I get flour everywhere as well, if you have a coating of it (like dust) on things then it can easily get into your food.   I also suggest going through all your spice mixes to see if they contain any gluten.   The simplest solution is generally just to go entirely gluten free. My boyfriend has free reign to go out whenever he wants and eat whatever gluteny thing he so wishes. Its really not going to hurt your household to go gluten-free and it will be a lot simpler. I know a lot of people make it work but I can't. I don't mind if someone heats something up in my microwave but beyond that I don't want it near my kitchen. Peace of mind, especially not having to worry about what's touched what when I'm making breakfast and half asleep means a lot to me.
  11.   I love my kale chips too. Daw, I looked up the Cape Cod ones and now I'm drooling all over the computer.
  12. Have you considered the possibility of Gluten Ataxia? See if any of the other symptoms of it sounds like you. I was gluten-free and I still developed G.A. due to trace amounts of gluten.   Hope you figure it out and feel better!   Edit: Just thought to mention I have swollen lymph nodes too. Edit Edit: Don't forget that Celiac disease is an auto-immune disease, so if they think it could be auto-immune and you come back negative on the things you mentioned it could be that you are a Celiac.
  13.   I'll paint a picture for you; it's 11 PM, I'm craving something salty, something crunchy and I know there are potatoes in my fridge. I needed a quick fix, and I found it. Marvel in the glory that is the microwaved potato chip (and you don't have to buy that silly contraption). I have a recipe for you... Takes a little trial and error to figure out whats best for your microwave but it's worth it and for people who have issues with frying/oil, well, it doesn't use any. They don't stay crisp for a long time but I'm seriously considering making a bunch and tossing them in my dehydrator.
  14. They may be gluten free but if I remember correctly the Tostitos are made on a shared line (at least they are in Canada). The whole new law for gluten free labeling in the U.S. (I'm not sure where you are located) is not in effect until August 2nd, meaning the term gluten free on foods don't really carry much weight.
  15. Please make sure you get diagnosed first, if possible. Anything with teflon/nonstick coating, plastic and anything that can scratch and hold gluten in it. Colanders as well because its too hard to clean all the little crevices. All metal pots are fine. Cutting boards need to go. When looking for things to get rid of ask yourself, "if gluten was a bacteria that I couldn't remove because it's a protein would I still use this?" I got rid of things like my blender and food processor because the bowls were plastic and I used very gluten-y things in them. Depending on how much you cook, you can slowly buy pieces as you need them. If you're old items are in working order you can always sell them (any appliances) or donate them.    Oats - once you are feeling like you are in a good place, with little to no symptoms, try some gluten free oats (make very sure that they are gluten-free) and see how you feel. Don't eat to much at first, because they are pretty fiber-y which could make you think its an issue. So add them in slowly and try not to introduce other foods to see if they cause you any problems.    This article will help further with cleaning up the kitchen. By eating only plain foods and a few certified gluten-free items (mainly spices) I have eliminated all my vertigo, fatigue and all other ataxia symptoms.