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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About mdohtnla

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  1. Thanks everyone This has been really helpful.  I actually have gone dairy free.  I forgot to include that.  I will follow up with your suggestions.  So glad I posted on this board!
  2.   Colleen,    Thanks for responding.  I don't know which nerve it was.  My doctor's are not very good at being informative.  However, I will ask and see the next time I go to the doctor.    Thanks!
  3. I hope not to make this long but I am in dire need of advice.  I have been having these episodic seizure and stroke like symptoms.  It starts with my eyes fluttering.  I typically slump over. My legs work but I can't lift my head.  Sometimes the left side of my face goes numb.  I am completely unable to think or speak.  It's like my mouth won't move right.  If I can move my hands/arms, then I can not write or text.  I also have difficulty walking (the leg I broke in a car accident gets really tight)   This happens when I  wake up, at work,  walking, in shower, and sometimes in mid conversation, and once while driving (don't drive anymore).   I've been to many doctors. Some nerve in my neck is crooked or slightly blocked.  Referred to neuro.  He thinks its a seizure.  Long story short after several EEGs, MRI's, an MRA, and blood test they find: white spots on brain (unusual for age), positive western blot for Lyme (IgG), negative EEG, negative MRA. No strokes. negative spinal fluid. negative for lupus.  Later, negative for Lyme on a C6peptide test. took Topamax and that stops migraines I was having, but not the episodes. referred to psych. she says no mental health issues after examining me. continue to see her because I'm so stressed about not feeling well.   My general diagnosis is  complex migraines.  At some point I had a seizure like episode and was diagnosed with a complex partial seizure, but that was changed after the EEG's.   June 2013: Go alcohol and gluten free.  Then just gluten free. Miraculously I had no episodes for a week.  After 2 weeks my hands and feet aren't numb.     Oct 2013: Celiac panel is negative. My red blood, iron, and hemoglobin are all very low   Now: Despite being gluten free, I find that I constantly get "glutened" by little things (bun accidentally left on my burger, corn tortillas that aren't really gluten-free, medicines etc) .  One glutening can result in multiple episodes.  The longest I've gone is a week and a half without episodes.  Before June I had them everyday multiple times and they were very severe.   I can't find a doctor that will answer my questions to save my life.  I live near NIH, so you would think there are plenty of intelligent docs here but I have been largely unsuccessful.  I like to work hard and I am ashamed at my performance (work and school) because I have these uncontrollable episodes.      Does anyone struggle with this?  What doctor did you go to?  Have you been able to get anything other than "don't eat gluten"?  Are you able to get a diagnosis?