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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About kellysensei

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  • Birthday 02/07/1979

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  • Location Minnesota
  1. My doctors think I have acid reflux, too, and have tried to put me on PPIs. I tried Omeprozole for 30 days last year, and it was one of the worst months of my life - acid reflux got worse, plus I got nausea, headaches, diarrhea, fatigue, sinus infections...ugh. Now every time I tell a doctor I think maybe I have *low* stomach acid, they scoff or get defensive and try to put me on different PPIs. No, thank you.   I haven't tried HCL yet, and my doctors thus far have either not heard of it or don't know much about it. I'm going to a cough specialist next week and will ask her about it (my main reflux symptom is a terrible, chronic cough). I have asthma, too, so the reflux and asthma are probably related.   A strict Paleo diet seems to help me (I do eat some white rice) ,but I'm still having symptoms, so next I'm going to try reading "Fast Track Digestion" by Norm Robillard. Check it out on Amazon; many reviewers say it changed their life and their acid reflux went away.   Whatever you do, get off the acid reflux meds, IMO.
  2. Joint Pain (New To Me)

    My blood test last February came back negative for Celiac, but I switched to a gluten-free diet anyway because I'd been having some bad joint pain in my hands and wrists. Lo and behold, the pain went away within three days of being gluten-free. Twice since then I've unknowingly eaten gluten, and both times I ended up with joint pain again that lasted up to ten days. I keep seeing all these articles and videos lately basically saying a gluten sensitivity doesn't exist, but since gluten sure seems to give me pain, I will continue to avoid it for now.
  3. This was the company's response:   "From the guidelines set by the Food & Drug Administration and the World Health Organization, the Alive product line, with the exceptions of  Alive! Once Daily Men’s , Alive! Once Daily Men’s 50+, Alive! Ultra-Shake Pea Protein Chocolate, Alive! Ultra-Shake Soy Protein Chocolate as these formulas contain oat bran , are gluten free (<20 ppm). Alive! Women's Energy is <20 ppm which can be considered gluten free.   However, the Garden Veggies Blend in the Alive! contains wheat grass. While gluten content would be low since it is the grass and not the germ, we would recommend that individuals who are concerned about celiac disease and/or other gastrointestinal issues avoid taking the product unless otherwise specified by a healthcare practitioner."   So - their product doesn't contain gluten, but don't take it if you're gluten sensitive. LOL   I think I'm going to go to a functional medicine doctor to check for nutritional deficiencies and hormone imbalances. I'm tired of feeling like crap even on a gluten-free diet. I'm also going to start taking probiotics and fish oil capsules. I should probably find a multi-vitamin, too, that agrees with me. (Most multivitamins give me headaches or make me nauseated.)
  4. I just contacted the vitamin manufacturer now. We'll see if they respond.    I still don't know what to think about gluten. My cough was totally fine during my whole gluten challenge this winter, and I wasn't having nearly as many knee pains and leg cramps as I am now. So either I'm consuming more gluten than I think, or gluten is not my problem. I just think it's impossible to be totally gluten-free in a house with two kids (who play with Play-Doh all the time)  and a husband who are NOT gluten-free. I'm trying my best, but I'm bound to have an accident or get cross-contamination once in a while. Still pondering having cake at my son's party to see what happens...
  5. I just found out that the multi-vitamin I've been taking for a month has wheat grass and maltodextrin in it. I thought I was so good at reading labels, but somehow I missed that one. So angry.  Three months of buying gluten-free bread and eating only grilled chicken at restaurants down the drain. :-(
  6. Hi, I haven't posted in a few months. Long story short, I went gluten-free temporarily last fall in an attempt to get rid of a chronic cough. It seemed to work - although I also did a juice fast and went low-carb for a bit, so I'm not sure what actually helped the cough. I decided I wanted to get tested for Celiac, so I did a two-month gluten challenge. My cough did not return while I was eating gluten. In January, a stool test through EnteroLab came back positive for a gluten sensitivity. In February, my blood tests at my GI doc's office came back negative for Celiac.   In mid-February, I decided to go back to a gluten-free diet based on the EnteroLab results and the fact that I'd developed terrible joint pain in my left hand and wrist. That pain went away after three days gluten-free. However, I haven't had any other positive effects from being gluten-free. I still have bad sinus problems and have had two long-lasting sinus infections since going gluten-free. I still have bad headaches several times a month. I still have all sorts of Charley horses, leg pains, and overnight foot cramps that are affecting my energy and mood. And my vision seems to be all out of whack. I just can't find a correct prescription. Oh, and my cough came back, although I can control it somewhat by cutting out sugar.   So I'm starting to wonder if I should even bother with being gluten-free. I'm not convinced it's really helping me. What do you guys think? My son's birthday party is in three weeks; I'm debating having a piece of cake and seeing how it affects me...? Good idea or bad?    
  7. My kids have already been tested - negative. I'm not making my family go gluten-free, just me, although I do all the cooking at home, so home meals will be gluten-free unless I heat up a frozen pizza or some mac n' cheese for them.    I'd rather not do a biopsy at this point. Seems like every time a doctor touches me in the past couple years, something goes wrong. I know I have at least a gluten sensitivity and accept the fact that I need to be gluten-free. 
  8. I completed an 8-week gluten challenge and had bloodwork done last week. The lab contacted me today and said my results were negative - no Celiac. However, my results from EnteroLab last month indicated a gluten sensitivity, and I know that gluten affects me. For example, by week seven of my gluten challenge, I was having terrible joint pain in my left hand and wrist; I could barely grip or pick anything up because it hurt so much. I stopped eating gluten five days ago, on Sunday, and by Tuesday night, the pain had completely disappeared. It's gotta be because of the (lack of) gluten....   So, do I consider myself as having non-Celiac gluten sensitivity? I plan to eat gluten-free from now on, though I won't go as far as getting new pots/pans or anything like that. 
  9. Nope, no breathing problems, no nausea, dizziness, breathlessness, numbness, or anything like that. Exercise doesn't bother me. That's what makes all these pains so weird...
  10. At my follow-up appointment yesterday, my doctor continued to insist it's not my heart, because of the normal tests. She can't say what IS causing my pain, though. She prescribed me an anti-inflammatory drug called Naproxen. Until I have time to pick it up, I'm taking Ibuprofen a few times a day (starting today; I'd really only taken it twice in the last two weeks). We'll see if either has any effect. Today the pain was mostly in my ribs instead of my breast or heart. It changes all the time; grrr.   Thanks for the responses; it's a bit comforting to know that other people have experience chest pains, too, and are still alive and well. LOL
  11. I was diagnosed with acid reflux in September, but that's not what this is. I've had a lot of bad heartburn this fall, and the pain I'm having now is not heartburn, nor is it stomach pain. The sharp pains I'm having are directly behind my left breast, and the throbbing pains are directly under and also to the left of that breast. 
  12. This fall, I went gluten-free for seven weeks but then went back to gluten on Dec. 9 to do blood work (which I'll have done next week). An EnteroLab stool test recently came back positive for gluten sensitivity.   About four weeks ago, I started having pains in my left chest. Sometimes they're sharp pains; sometimes it's a dull ache. Sometimes it feels like it's my ribs, but much of the time it feels like it's my heart. Yet I had an EKG and an echocardiogram (ultrasound) done, and they both came back normal. My doctor seems confused and said "this is a strange case." She basically just told me to take a bunch of Ibuprofen.   Could gluten be giving me chest pains, by any chance? I didn't think so, but the pain had subsided a bit last week, then I ate a bunch of gluten this weekend and the pain is much worse again today. I don't know what to think...
  13. Well, I was off gluten for seven weeks. Since I've been back on gluten, I've noticed that I'm much more tired, I use the bathroom more, and the vision in my left eye is worse. So I do plan to avoid gluten after the next blood test, but I still hope that I don't have Celiac, of course, so I don't have to freak out if I eat something with a little bit of soy sauce in it (for example). Of course, being gluten-free could really mess up dreams of moving abroad in a few years. :-(
  14. So I got my gluten sensitivity stool test results back today:   Fecal Anti-gliadin IgA      36 Units   (Normal Range is less than 10 Units)   According to them, this means I need to avoid gluten. I'm not really surprised at the results. But they don't distinguish between gluten sensitivity and full-blown Celiac disease. Do stool test numbers correspond to blood test numbers?   I guess my next step is to have my GI doctor redo the Celiac blood test. I had a blood test done in November (and it was negative), but it wasn't valid because I'd been off gluten for several weeks. Now I've been eating gluten again for five weeks. I think I need to go eight weeks for a valid blood test, right? My birthday is in about three weeks, so I guess I'll eat a whole bunch of birthday cake and go out with a bang. LOL
  15. I was off gluten for seven weeks; now I've been back on for about a week. Unless my recent blood tests come back positive (doubtful), I plan on ordering the Enterolab stool test within a week or two. I don't think they distinguish between gluten sensitivity and full-blown Celiac disease, though, so it may not be right for some people. But it seems valid enough for me.