Get email alerts Get E-mail Alerts Sponsor: Sponsor:

Ads by Google:

   Get email alerts  Subscribe to FREE email alerts

  • Announcements

    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


Advanced Members
  • Content count

  • Joined

  • Last visited

Community Reputation

3 Neutral

About MGR

  • Rank
    Advanced Community Member

Profile Information

  • Gender Female
  • Interests Research on language and cognition, cooking with friends, world music, travelling
  • Location Edinburgh (UK)
  1. Top tips for celiac travel

    I also travel a lot for work and more generally as part of our life... After having had some horrible gluten experiences, I now don't take any chances.. I now have a one-person rice cooker which I take in my hand luggage,, a small box with small bottles with olive oil, balsamic (small enough to pass the security controls),gluten-free  soya sauce, salt and a bit of uncooked rice..boiled eggs and prosciutto-things that last for longer without refrigeration and my own bread- as soon as I arrive at my destination I buy salad, tomatoes, tin of tuna or a bit of smoked salmon and some fruit-I also take a plastic picnic plate to eat from.. this means I can always have something warm that is also safe... not too interesting, but it means I don't need to live doubled up in pain and vomiting... 
  2. I agree, Schär Gluten free bread is one of the best gluten-free great on the market in general.. unfortunately not all varieties are available in all countries in some european countries they sell the type called Cacciatore which is also very nice!! it is even good for sandwiches and you don't even have to heat it up or toast it..!!  
  3. What wonderful news!!!! This result brings hope to many of us... I for my part I am getting there... I have been diagnosed by one consultant as having celiac disease and having IBS and severe gluten intolerance by another... Maybe the next time I go and see my GI they will do the right test and hey presto!! I am still on my second year... One can never lose one's sense of humor- but well done for you!! Cheers
  4. I make waffles wit all sorts of flours from scratch - teff, amaranth, coconut, almond and I mix them with ordinary self-raising flour in order to change the texture and tastes- 3 eggs, a good dollop of lactose free or soya yoghourt ( I am lactose intolerant)), lactose free butter ... And off we go onto the waffle iron!! Since becoming gluten free I normally don't eat bread anymore -as I cannot get used to the texture and the taste- And I make waffles with gluten free oat bran and use them as a substitute. I make up a few and freeze them to use as I need them.
  5. What's In Your Purse?

    Oat cakes gluten-free, tangerines, rice cakes, nuts, tuned fish (mackerel, tuna) , boiled eggs..
  6. If you eat a lot of bread, then it makes sense to have one. I for example, find it easier to keep flour in the cupboard and make the bread when I need to, than having to go to the shop to buy fresh bread- also where I live it is very difficult to find nice fresh gluten free bread... It always comes from a packet and tastes awful!! Even toasted... ... Ah , I nearly forgot... Every bread machine is different and you have to make sure you always stick with the instructions of your own machine as often recipes don't work with different machines...
  7. No, it doesn't- you actually DO need a bread maker with ht egluten free settin because the dough rises at different rates than normal bread - also if you just use a normal bread maker without the special setting they break down very quickly. When making your bread you should follow the instructions on how to add the ingredients, quantities, etc to he letter. You will then enjoy your bread success! Good luck!!
  8. I second mamaw's advice!!! I was told to do an 8 week challenge- I was extremely ill throughout, sore tummy constantly, spinning dizzy head, blurred vision, ringing ears, joints to die for- I could bearly get out of bed every day, face full of sores, palate one enormous ulcer, you name it, I had it!!! Had I spent another week eating gluten items I would have ended up in A&E... But I really went for it- I was told to eat two slices of bread a day.. But I really had everything I knew I had to say bye bye for ever- baguettes freshly baked.... Baaagels.... Cupcakes.... Cakes, everything,,, I had something gluteny at every meal and I certainly felt it every time and the effects were cumulative I got worse and worse. . When I went for my endoscopy I could barely stand up- they saw the damage in my intestine and I was diagnosed there and tren as having celiac diseñase and told to go gluten free ASAP!- unfortunately my blod tests we re negative - but they did only one test instead of a full panel - and my biopsies were also negative! So the other GI consultant who saw me said I was fine.... I see someone else every time I go to my GI appointment and everyone seems to have a different opinion... No one asks anything relevant like do you get any rashes? I even had to remind my GI that I actually had ulcerative colitis and 60 per cent of us are deficient in the antibody they look for.. And so on... It looks like I wasted 8 weeks of my life and did not get much further... I am one of those who also get DH rash in addition to everything else ( but not too badly I have to add) and the last time I got severely glutened I took a photo of it to show my next GI... I am not doing another challenge- I am waiting for better diagnostic methods... Now, enough of my ramble....! My advice to you now is eat as much gluteny stuff as you can and really have all those treats you know you will never have again... Make a list of of all your symptoms and make sure you report them to your doctor-Take photos of any rashes that come up - find out if anybody in your family has problems as Celiac tends to run in families and in general I wish you GOOD LUCK! You are going to feel like s........ Ley us know if you need any help hugs, etc
  9. Best Fodmap Book

    Together with Celiac I also have IBD and although I am now officially in remission since i have been gluten free GI recommended I go on FODMP diet in order to deal with some other intolerances and problems I also have - this book was recommended to me: IBS free at last! By Patsy Catsos is a good guide to the FODMP elimination diet - it looks like it is devoted to IBS but also deals with celiac and IBD and I have found it extremely informative. Hope this helps!!
  10. Before celiac, I used to make all my bread I a bread machine.. It was wonderful! As you describe, you just had to put all the ingredients together and press the button and 2 hours later, there was the bread!!! With gluten free bread, you need to buy one that specifically makes gluten free - if not, the gluten-free four will break it- if you do buy one just follow the instructions to the letter and put the ingredients in the right order and hopefully your bread will.appear! Cheers
  11. Also Holland&Barret have a great selection - I usually stick with plain versions of nuts and stay clear of fancy nut presentations like dry freezes or roasted with chilly, etc- our Costco is also about 30 minutes away I go once a month or so an buy a lot of stuff ( I have a big family and it is worth it for me) they have only recently started to stock gluten free products- the were recently also promoting gluten free coconut flour -you can also buy things online and have them sent home... They should probably pay me for promoting them, hahaha
  12. I am assuming you are in UK? Do you have a Cotco nearby? I have lately found that they have started to sell gluten free almond flour- it is reasonably priced and has a great texture and taste.
  13. ... thanks guys for cheering me up!!! I have just been travelling over Christmas and New Year and although I have now been gluten free for a year - I still believe in the "good nature" of restaurant staff and give in to eating my steak and salad as usual (because this is the only thing I feel is safe to eat that I have not cooked myself) and feel annoyed that yet again I end up with a sore tummy!!! I just don't seem to learn. It already took me a couple of months to learn to read labels first and then eat...   However, this Christmas I did break my NO GLUTEN rule when I went to meet some friends I hadn't seen in 20 years in a restaurant- as usual I asked for my steak and salad- and although the waiter said they had cooked everything separately, everything appeared together on the same plate, together with the chips-that I knew were contaminated, because I had asked about the oil beforehand. With all the Christmas goodies I had not been able to eat and a bit upset for personal reasons- I was weak and thought s**** it! and ate 4 potato chips- Not only did I get told off by the waiter who had gone through so much trouble... haha - and as a punishment I also had a sore tummy for the next few days and constant D!! Still recovering now... I will certainly remember next time!!! 
  14. Eating Gluten But Not Reacting?!

    My daughter had molluscum a couple of years ago... An important difference with DH is that it is not itchy and once it appears it takes about a year to clear up by itself, it does not come and go and is highly infectious- the doctor might give you something for it but it is generally useless as it has to run its course. if you have other children you have to make sure they don't have baths together or share towels. DH is extremely itchy, non contagious ( obviously, because it is genetic) and can come and go. I think molluscs it is a fungal infection. Also they look completely different.