This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
I ate in a Vegas casino offering a prime rib special where they brought me a salad with croutons. Before sending it back, I "marked" one of the lemon wedges with my fingernail, and sure enough, all they did was remove the croutons. I told the waitress I suspected the salad had not been redone but she reassured me (I did not tell her how I knew). I decided to just leave the salad without eating it. When the waitress asked me why I wasn't eating the salad, I repeated my concern and she took it away and THEN brought me a new salad.
Most of my meals in Vegas I ate in my suite at the Jockey Club. Whenever possible, I stay in suites with kitchenettes--it saves me money and worry too, although it's a pain to always be cooking on vacation. Still, it's better than getting sick. Nowadays, though, they use the word "suite" to describe multi-room accommodations that don't necessarily include a kitchette.
I'm now working on a "portable kitchen" I can take with me when travelling: two burners, cookware, food, utensils, and maybe even a small frig, although frig's are easier to come by when travelling--they go under the name "mini-bar".
"On Cedar Point's web site they are now listing gluten free foods and desserts! However, they are not all available yet. I spoke with Gary Jones, Food Director and Instructor at C.P. and he informed me that he got clearance to provide all of the foods but then for some reason (probably
finances) the company put the items on temporary hold. So he asked me to email him and for as many celiacs as possible to email him to let the company know how much we need C.P. to offer gluten free foods and he will compile all the emails and present them to the board with the hopes that these foods will be offered as early as July in the park. These foods include desserts, sandwiches, pizza and much more. So please spread the word and everybody email Gary Jones at firstname.lastname@example.org Thank you for your help, "
The "B12 Test" is Methamalonic Acid as VintageChick noted in this thread. It is NOT part of any of the standard blood test panels and so must be requested separately.
It was my B12 deficiency that first got me on the research path that led to my celiac diagnosis. Even gluten-free I have trouble with B12 absorption (2.5 years gluten-free) so I continue to supplement it.
Note that B12 is water soluable so there is no (less?) worry about taking too much. It is also cheap and easy to find. I like the sublingual format.
My attitude towards food has changed. More and more I'm gravitating towards strictly meat, fish, vegetables and fruits and avoiding grains. I'm learning to make these food choices more enjoyable. I'm starting to look at eating as something that is enjoyable but NOT entertainment which is how it is often viewed in Western society. Unfortunately, most socializing revolves around food but I'm learning to deal with that too. There are so many things in life to enjoy, food being just one of them. I've decided I can be a bit more indulgent on the other pleasures of life since my food options are limited. That sounded kind of hedonistic! Not really, I just enjoy my hobbies more and appreciate just being alive (especially since I lost a brother (age 56) to cancer last September.
I've been gluten free for 2 years now with many episodes of relapse (most recent 2 days ago from, I think, some ground beef from the market) that bring on the brain-fog for certain. Overall, my thinking can be very sharp if my diet is good in contrast to my months before diagnosis when I felt like my IQ dropped 30%.
I also avoid a number of other foods following an EVISTA test from York labs (eggs, soy, yeast, dairy, a few others). The better I stick to the diet, the better I feel and can think.
I took up piano/keyboard again about a year ago after not playing for 30 years. Memorizing IS harder. But there are many books an online tools to help with tasks like this. I do want to be able to play pieces without music, but I'm also building a repetoire to read from an 11 x 17 notebook I'm compiling where I put photocopies of my pieces in clear plastic sleeves. Anyway, all of it is very rewarding. It's good mentally and psychologically and I hope someday to play with others so it will be good socially too.
I have osteoporosis secondary to celiac disease and I know this is a common problem for us celiacs which is why I want to share this topic.
My neighbor has taken Fosamax orally for 10 years and appears to have osteonecrosis of the jaw (bone death of the jaw) following dental surgery.
Guess what--the lawyers are circling on this emerging finding. Is this the next HRT? The next Vioxx?
Try a search with these terms: bisphosphonates jaw osteonecrosis.
After researching this quite a bit (especially on Google Scholar where the scientific research articles can be found more easily), I decided to go off Actonel after 1.5 years. Here's why:
1. Bisphosphonate meds (Fosamax, Actonel, Boniva, and some others administered intravenously) have not been studied long enough (over 10 years) for the long-term side effects to be determined. The jaw problem is currently deemed by many doctors to be "rare" but how do they know it will be rare after patients have been on it 12, 15 or 20 years? Some doctors say it is more common with the IV versions of the drug but there have been cases with the oral meds too, including cases where no invasive dental surgery was involved.
2. Osteoporosis diagnoses are now based on low bone density measurements, usually from a DEXA scan, not from the presence of or known likelihood of a fracture. People with high density bones can have low-impact fractures; people with low density bones sometimes don't have fractures. (I was in an ATV accident last December, at least a medium-impact event, and did NOT fracture after landing on my hip)
3. There is no universal standard of what bone density should be. Different DEXA machines yield different results.
4. Bisphosphonates work by inhibiting the resorption or normal breakdown of bone (via osteoclasts) not by stimulating the creation of new bone (via osteoblasts). Thus, as time goes on, yes, the bone may get denser but it is also OLDER tissue--that is, there is still no normal turnover of bone as happens in a younger person. Is this "old" bone resistant to fractures -- maybe for a while--FIVE years; after that, no one knows and some scientists think the bone is MORE prone to fracture, more brittle. Makes sense, doesn't it? Older cell, less flexible cell. After all, there's a reason bone is broken down and built up by the body in a healthy young adult. There is some indication that after taking these meds for a while, if the bone does break, the normal remodelling process the body goes through to heal the fracture not work.
5. Some doctors say that if you avoid dental surgery, you will be OK. But, who knows if you might need an extraction sometime in the future? Why do so many seniors wear dentures? If we live long enough, loss of teeth may be inevitable.
6. I've discovered some alternative treatments that may be worthwhile: electromagnetic therapy and supplements with strontium. (Try a search using: strontium osteoporosis.) Also, I'm going to get serious about exercising again....
Two gallons of milk a week? Sounds like a red flag to me, if you're still exhausted.
Use enterolab.com and get tested for dairy, yeast, and egg sensitivities.
Use york.com and get tested for a variety of food reactions (tests different anti-body than enterolab).
Join the Tuesday Club online (do a search) and try a Detection Diet.
Simplest of all: consume only water, oil, meat, fish (no shellfish), vegetables, salt and pepper for a week and see how you feel. If better, then add other things back in one per week and see if you relapse. If you do, eliminate that food. You may not have to eliminate it forever, just until your intestines heal from gluten damage.
I didn't feel better until I eliminated gluten, dairy, eggs, yeast, soy and a few others.
I'd stay away from jobs where I come in contact with gluten foods.