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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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  1. I don't think Rainbow Light Prenatals contain gluten. They say they are gluten-free on the box and I don't see any of the ingredients you are worried about on my package. Are you taking the Rainbow light "Prenatal One" multivitamin?
  2. Wow, thank you 2kids4me! You did some great research. I also had problems with a primer. (I started wildly crying halfway through the paint application). It was a Behr all-purpose primer. I called the manufacturer and they couldn't tell me if it had gluten in it or not. Has anyone else had problems with a primer?
  3. Hi All, I have a question: What is it that actually causes the problems for celiacs--the drywall dust, the taping compound, or plaster put over the drywall? I had some problems when we had our diningroom redone, though that was just new drywall and plaster. Thanks!
  4. Figuring Out Intolerances?

    Thank you all for the helpful responses. I have tried a food/symptom journal and found it hopelessly murky--no clear correlations between food consumed and symptoms, though I suspect my probably in identifying links lay in the fact that I was still consuming a diverse array of foods. I think I will try the blood test and maybe return to the journaling...
  5. I have been on the gluten-free diet since June 2005. I still have trouble, which does not seem to be related to cc or any kind of gluten exposure. I suspect that I am intolerant to certain foods, though I'm not sure how to figure out what is giving me grief. I have kept a food journal but don't see any noticable correlation between what I eat and the reactions I have. Is an elimination diet the best approach? And how does an elimination diet work? Any advice would be helpful. Thanks!
  6. A Calling?

    This may sound crazy, but I sometimes wonder if being diagnosed with celiac is a calling of sorts. We understand certain things after being diagnosed that we could not understand before, like how to care for ourselves and how others might end real pain in their lives. Ever since my diagnosis (in June 2005), I have been unable to let go of the idea that having celiac--what sometimes feels so unfortunate and hard--might be a calling to do good things in the world for others. Has anyone else had this idea and what has it led you to do?
  7. Specific Carbohydrate Diet?

    Hi Corinne, I have celiac AND microscopic colitis. I am considering the SCD, but am feeling a bit intimidated, simply because my diet is already so restrictive. That said, I really want to rid myself of my occasional (once every two months) bouts of colitis. They last for 3-4 weeks and are really unpleasant. I'd love your advice. Any chance I could email you directly? Thanks.
  8. It's hard for me to know how to advise you without knowing more about the email and whether or not she had a basis for what she said. In my own experience, on gluten, I was definitely myself, but my view of the world was out of whack. I was depressed, more emotional (too emotional, really), hyper-sensitive, and I didn't have enough energy to invest in friendships. All of these traits in combination meant that many of my relationships suffered; fortunately, none suffered irreperable harm. Part of this probably has to do with the fact that when I was most upset (and probably hardest to deal with) I really withdrew. It was only the people who were closest to me: my husband, parents, and best friend that really saw how off-the-wall I was behaving. I guess that's all a round about way to say that I know that gluten can do a number on the psyche. It's only been in the past 6 months (and I've been gluten-free since June 2005) that I've really been able to believe that it was the gluten that made me behave poorly. And it's only been in the past 6 months that I've been able to forgive myself and really be able to reach out to the people I'd pulled away from. I wish you the best and hope you can save this friendship. Though, in truth, I don't think your friend has been kind or fair.
  9. Broke Down Last Night

    Leah, I don't know... nor do I know how I would find out... do you have any ideas?
  10. All, Last weekend my husband and i went out for dinner to celebrate our anniversary. Something I ate must have been contaminated because, by the time we got home, I felt ill, was teary, and had D. Now, nearly four days later I'm still feeling off. Last night was the worst and I'm wondering if it could have been gluten-induced. (Because, like some others on this site have noticed, gluten does a number on my psyche.) My husband had to work late last night so I started painting the primer onto our newly plastered dining room. In the process, I began to feel totally stressed out, like I might make a mistake and I was so overcome by this that I started to weep. I cried for a full 40 minutes. I called my husband in the middle of all of it and asked him to come home. He was really worried about me. This is not typical behavior for me. I am emotional, but usually with cause. I felt my crying last night came out of the blue. I'm happy with my life. I don't know what was going on. I tried to come up with an explanation and found that: (1) I was quite tired due to lack of sleep earlier in the week; and (2) was about to get my period. Unfortunately, neither explanation really explained the extent of my reaction and I began to think: could it have been gluten? Could I have been cced by the "Garden of Eatin'" Sesame blue chips I'd had earlier in the day? Or the Amy's quesadilla I'd eaten? The truth is, I'm unsure and the whole thing has left me feeling a little out of control and a little in question about myself. Some of that, too, is my husband. He is wonderful, sweet, and very supportive, but doesn't deal well with excessive emotion. He commented last night that the whole episode had been stressful for him. He wants us to keep an eye on what's gonig on for me emotionally and thought we should have it "checked out" if it persists... I'm venting some, but more than anything I'd like someone else to let me know if they've had similar experiences. Thanks!
  11. Thank you both. I really appreciate your feedback and support!!!
  12. Hello All, I was diagnosed with celiac disease in June 2005 and adopted the gluten-free diet immediately. My symptoms immediately got worse. I had D all day and was soon diagnosed with microscopic colitis. Before I was diagnosed with celiac, I lost arond 12-15 lbs and I've only gained 2-5 back. I am 5'7" and weigh 126 lbs. I have some fat on me, but not a lot, and people regularly comment that I'm petite and quite thin. I am beginning to worry that I don't weigh enough or have enough fat to have a healthy pregnancy. I'm currently on the birth control pill and will get off it soon, so that my hormones have a chance to settle down before we ttc. So, while I've been getting my period, I'm not sure that I will once I stop the pill. I am writing this post mainly just to get advice and feedback from all of you. Is there anyone else out there who was on the thin side after celiac, had difficulty gaining weight, and was still able to conceive and carry a healthy baby to term? Any advice would be helpful. Thank you!
  13. Freaking Out

    hi All, Thanks for the replies. Monica, you asked my height/weight. I'm 5'7" and weigh about 125 lbs.
  14. Freaking Out

    Thank you, Thomas. It's strange how reassuring your words are, but they are. I appreciate them.
  15. Hello All, I'm writing here because I feel like some of you may understand what just happened to me. I am at work and a co-worker who started working me in September said, "you look really thin these days. Have you lost weight?" As best as I can tell, I have not. My weight seems to bob up and down, never gaining or losing more than 2 lbs, no matter how much I eat. In any event, her question freaked me out and I started feeling incredibly, uncontrollably anxious. I know this question--have you lost weight?--would not phase most people--in fact, most people might even think it was a compliment! It just causes me to worry. I was diagnosed with C in June 2005, having suffered near constant D and steady weight loss in the year leading up to my diagnosis. In total, I lost about 10-15 pounds (I don't know exactly because I never used to weigh myself regularly.) Now I associate unexplained weight loss with unknown illness, lab tests, and concerned doctor faces. I don't want to lose weight; I'd much rather gain it. Since my diagnosis I have been on a strict gluten-free diet but have still had digestive problems (largely due to microscopic colitis). I eat a lot and I only ever seem to put on a pound or two and lose it weeks later. I've read in various posts that it often takes people 6-8 months to put on weight. I'm in that range and feeling great, but still thin. I don't think I look sickly, but I am definitely slim. The other piece of this is that before last year, I never had problems gaining weight. Starting my freshmen year in college I was always about 5 lbs--sometimes 10 lbs--overweight in a family full of incredibly thin people. Now it's started to feel natural to be thin and I wonder if this is just the way my body wants to be/is supposed to be and if I used to overeat to compensate for the nutrients I wasn't getting due to celiacs. So hard to tell. I guess I'm just largely venting, sloughing off the anxiety that comes with the possibility of having lost weight... it makes me realize that I haven't totally gotten over having celiacs. I can deal with the gluten-free diet. It has just been hard for me to come to terms with the idea that something is not completely right with my body. Anyway, I'd love words of support, understanding. Thank you.