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LeanneMarie added a topic in Celiac Disease - Coping WithCeliac And Birth Control - Stopping Birth Control Made Symptoms Return?Hi everyone,
I was diagnosed in November of 2013 with celiac and have been EXTREMELY strict (never ever cheat, possibly sensitive to trace gluten, etc.). I started hormonal birth control about 3 months after my dx and never really considered how the BC may be impacting my gut flora. For the last year and a half I've had my ups and downs of recovery; slowly figuring out what types of things are easier and harder for me to deal with or what creates symptoms. I decided recently to stop the BC, because I wanted to see how I felt physically without it. I didn't really notice much change except my face broke out from the drop in hormones.
So, in the beginning I used to eat gluten free oats all the time for breakfast, but haven't in probably 6+ months. Tuesday I ate them for the first time (around 8am), and woke up the next day with an awful headache (the type I used to get from gluten). Wednesday morning was the first day of my first period off of BC. My period was EXTREMELY heavy, and around 11:30am I started to feel kind of weak, faint, shaky, etc. I did not feel well. My cramps were really bad and I was losing what felt like a LOT of blood compared to how my period used to be when I was on BC. The rest of that day I was miserable, and chocked it up to an extra heavy first "natural" period off of BC.
However, Here I am 6 days later, still bleeding(!) and feeling light headed/brain foggy.The headaches aren't as bad, and I think are getting better. But every time I eat even a TINY bit, or drink water, I start feeling light headed again which makes me think this is more Celiac related and less menstrual or low-iron symptoms. Could it have been the oats? Is this just a side effect of a super heavy period in a sensitive body? I feel confused!
Has anyone else experienced this? Has anyone else gone off BC and had a celiac-ish reaction? Any help is appreciated, please let me know what you think.
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LeanneMarie added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)Symptoms Returning?Hi everyone,
So I was officially diagnosed with Celiac in late November of last year. So, it's been about 6 months of very strict gluten-free eating (which started the day after I got my endoscopy and was told to start immediately). My symptoms before being diagnosed were constant throbbing headaches (esp. bad when waking up), night sweats, feeling "out of it" a lot of the time, getting SUPER sleepy about 15-20 mins after eating meals (which usually included gluten), muscle/joint pain in my back, nausea, and I really knew something was very very wrong when I started having all the digestive problems (although this was the last of symptoms to pop up, and the last to go, too).
So, through February and March I was doing really well, I felt almost totally back to normal. Then late April and May, when things feel bad again. Same symptoms, ramping up over time to now, beginning of June, where I'm feeling similar to how I did before going gluten free.
Things were especially bad on May 18th, after I ran the Brooklyn Half Marathon -- extreme nausea, etc. (and this was not over exertion, I have run this race many times) in a way that I could only recognize as similar to what it felt like when I was still eating gluten.
As far as I know, I'm not getting cross contaminated. Nothing has changed, and if anything, I've learned more and become MORE strict. My boyfriend and I are EXTREMELY careful with any foods containing gluten (he cooks his pasta in a separate colander, is the only one to use the toaster, uses a different cutting board, etc etc.) at home, and I usually bring my lunch to work from home. For dinner we sometimes go to dinner but only at the few places I've identified as gluten-free friendly, because I hate grilling the waitstaff about every sauce and ingredient (which sucks, because this used to be a big part of my social life).
What else could be going on? Does it just take this long to heal? Could I now be more sensitive than when I started eating gluten free? I am so frustrated and feeling sick again...and I thought I was out of the woods Any help is appreciated. Thanks.
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LeanneMarie added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)Confused And Annoyed!Hi everyone,
This is my first post. I was recently diagnosed with celiac in early December 2013. I finally saw an awesome gastroenterologist in November after an entire year of mis-diagnoses from SO MANY specialists/doctors and ridiculous other ailments...chronic headaches and flu-like symptoms, foggy headedness, sinus congestion, the list goes on and on and on... but I never had digestive symptoms until this past fall. Then out of nowhere I was really "backed up", which I thought was just a fluke for a little while, but got really bad while on a vacation across the country. I came home, saw the gastro doctor, and she added a blood test for celiac onto a larger lists of blood test, which came back (shockingly, to me) glaringly positive. After a gene test (also positive) and a positive endoscopy as well (moderate damage), I was fully diagnosed with celiac, no doubt about it.
So obviously right after my endoscopy I started eating gluten free, and have been finding much relief from the headaches and foggy headedness even a month into eating gluten free (I'm frustrated right now with all the changes, but that's a different story). I also feel a LOT less fatigued, and have been feeling more well-rested.
MY QUESTION has to do with digestion...My issues with the "c" have not cleared up. At all. For a moment I thought it was getting better/easier, but no, it hasn't. I also had a temporary bout of "d" on Sunday of this week after having a very dairy heavy meal the night before...I'm assuming that's what it's from. But then right away the "c" is back, and worse than ever. Gurgling, belatedness, and...nothing. Ugh.
Can anything help? I bought ReNew Life "Fibersmart" supplements that have flax and probiotics....but I haven't tried them yet (just got them tonight). What else can I do? I'm just worried and frustrated, and could use any help you all have to offer. Thank you!
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