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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About RMJ

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  1. Gastroenterologist.  Although she is not a lot of help.  She didn't suggest the GCED, I did that on my own.  She does order the antibody tests when I ask for them.
  2. I've never had obvious symptoms so it was the antibody levels.  
  3. I thought I was gluten free, but  I had to do the Gluten Contamination Elimination Diet to get my levels down that last little bit.
  4. Some doctors won't give a celiac diagnosis without a positive biopsy, no matter what.  I was high positive on five different blood tests (TTG IgA and IgG, DGP IgA and IgG and EMA).  All values went down to normal or very near normal on a gluten free diet. I could not have a biopsy due to other health problems.  My GI will not give me a celiac diagnosis.
  5. You probably know this, but just in case - if you have another blood test after you've done a good job being gluten free, it will probably be negative.  But that does not mean the first one was wrong.  It means you have celiac and are keeping it under control with your diet.
  6. Have all of your tests been done by the same lab?  Unlike blood glucose and Vitamin D, different labs have different units and different ranges for celiac tests so they can't be compared. TTG and DGP are both celiac tests.  They are looking for different types of antibodies which may be involved.  They do NOT both have to be positive to indicate celiac.  One is enough.  Hopefully nvsmom will chime in with the explanation of the differences, or someone will quote her. If you don't eat gluten your numbers can get to the negative range, it may just take a while.  I'm almost there after 3 years. I hope you get some answers and feel better soon.
  7. Are you sure that all of yur vitamins and supplements are gluten free?
  8. Are you in Canada?  Are these links to the lab in question?    
  9. Test

    Do you have the lab ranges for the tests?  It is difficult to say much without those, but it is very likely that the gliadin peptide IgA is positive.  Some of the others might be also.  If I were you, I would get a copy of the complete results, make an appointment with a gastroenterologist, and get a new primary doctor.  
  10. Panel 2 is the one that tests for celiac with the DGP and tTG tests.  Panel 1 does NOT have any celiac-specific tests.
  11. I eat short grain brown because I like the flavor.
  12. Here's the General Mills press release for the recall:  
  13. I don't know where you live.  I was able to order my original TTG tests through, but not the DGP tests.
  14. I can't explain it either.  It is the opposite of my results - my hips got better and my spine worse.  I'm guessing that my exercises affect the hips more than the spine.