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RMJ

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About RMJ

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  1. I went to a registered dietician who specializes in Celiac. She was concerned about the balsamic vinegar I was using and suggested a different brand, Napa Valley Naturals.
  2. Posterboy, canker sores and oral thrush are NOT the same thing. Kkgirl, good luck with your doctor's appointment, those look painful.
  3. In most people the gluten free diet will reverse the damage, although it may not go all the way back to normal. You're young so there is a good chance you'll heal completely - children seem to heal better than older adults, we'll hope you heal like a child! Your toddler should heal up just fine. Intestinal lymphoma is very rare. Untreated patients with celiac have a higher than normal chance of getting it but it is still in the very rare range. Healing on a gluten free diet reduces the chances. I wasn't diagnosed until I was 57 and my villi aren't back to normal yet but I'm not worried about it.
  4. Yes, blunted is less damaged than atrophy. Blunted villi are shorter than normal, but they are there and available for absorbing nutrients. Atrophied villi are basically gone - the surface is flat with no villi projecting out.
  5. There is a whole spectrum of damage that is seen in celiac disease. Looking at your results another way: "Patchy flattening" - Only patchy, not all over, Yeah! "Isolated areas" - Isolated, not all over, Yeah! "Blunted villi" - Only blunted, that's great. You still have villi. In some people the villi are totally atrophied. "40 intraepithelial lymphocytes per 100 epithelial cells" - That's part of the classification of even the mildest levels of celiac disease. "Hyperplasia" - That is seen in all but the mildest classification of celiac disease. Your results are normal for celiac and are milder than those of some people. Go gluten free and get ready to heal!
  6. Steak and potatoes? Ham and hash browns? (although ham gives me migraines).
  7. Some people with celiac can't eat oats, and some gluten free oats are not as gluten free as they could be. I'd try omitting those from your diet.
  8. I don't have symptoms either, so my doctor follows my antibodies (the whole panel was high when I was diagnosed). That is not ideal, the scientific literature says antibody tests are great for diagnosis but not so accurate for followup. At first I just read labels and avoided anything with gluten-containing ingredients. Antibodies went down but two were still high. Then I tried only eating if it was labeled gluten free (and on top of that mainly eating whole foods, meat, fruit, veggies, rice). Antibodies down more but one still high. I was due for my every ten year routine colonoscopy so my doctor decided to look at both ends. I still have Marsh 3A damage. So now if I eat prepared foods I only eat certified gluten free. I rarely eat out and only go to a restaurant that is completely gluten free or trained by the gluten intolerance group. I'm hoping my antibodies will finally be normal next year. I've been at this for four years now.
  9. I don't know if this would help, I've been eating Nature's Path Whole O's which are certified gluten free. They don't taste or crunch like cheerios (they are harder) but they are the same shape. They don't contain oats. They are also a lot more expensive than Cheerios.
  10. How frustrating/scary! Hope you get answers from the docs soon.
  11. Hi, Since you say you don't have seasonal allergy symptoms, I have some questions. I used to work for a company that made the extracts used for skin testing. (Extracts are standardized and if the tests are done correctly they CAN tell the degree of allergy). Did you come up highly positive on every single test? If so, did they do a control without any extract to make sure you're not one of the rare people whose skin reacts just to the scratch? Also, did they do a blood test for total IgE? Yours should be high if you really have that many allergies.
  12. The second column (first column of numbers) is your results. The third column (second column of numbers) is the normal range. Your results for celiac are negative. But you still could be sensitive to gluten (non celiac gluten sensiticity), there is no accurate blood test for that.
  13. A good place to look for data on this type of test is the FDA website. This type of test is approved by FDA via a "510(k)" process. A manufacturer has to compare their test to an existing test. Here is information where Inova compared the combined test to the separate tests (top of page 5). This is not their most recent combined test, but that one just compared to this one, not to the individual tests. http://www.accessdata.fda.gov/cdrh_docs/reviews/K062708.pdf They also compare their results vs expected results from celiac patients vs "healthy controls" (bottom of page 5). If you want to see all the Inova tests just type their name into the "applicant" box on this page. http://www.accessdata.fda.gov/scripts/cdrh/cfdocs/cfPMN/pmn.cfm This brings up pages of Inova tests that you can look through. It is easy to pick out the celiac tests, but I couldn't find a way to limit the search and get all of them.
  14. Very interesting. Here is a link to the full article. http://www.jgld.ro/wp/y2016/n3/a20.pdf
  15. I think this is the journal article: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2881171/