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About RMJ

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  1. My GI is doing an endoscopy along with my every-10-year colonoscopy because some of my antibody levels are still elevated. How soon after the endoscopy can I eat? I need to take some medication that day and am trying to decide if I will take it with water an hour before my a.m. colonoscopy prep (divided prep) or after the whole thing is over. The pills are huge and I'm not sure I can choke them down without food, so I may wait until after but don't want to wait too long either.
  2. Tests made by different manufacturers do have different scoring systems. And some people have higher levels of antibodies than others. Kurasz, did your sister's docs just call it a false positive because it was high? It is possible but that interpretation would worry me unless they had other evidence, such as a negative biopsy. I used to work for a company that made allergy tests, measuring IgE antibodies. My blood (we of course tested ourselves on everything) gave a high positive reading for cat, which we disproved with a skin test. That was a genuine false positive.
  3. Oh, it would be more difficult if your doctors don't back you up. Sorry you don't have a definitive diagnosis from a doctor,
  4. I had my first experience last Friday turning down gluten free food made for me by someone I barely know. Yes, it was very, very kind of her, and she went to extra trouble to buy a gluten free Trader Joe's pie crust, but I only eat baked goods that I make or that are made in a dedicated facility. She claimed to know what Celiac disease is. I can't believe the number of times I had to say "No." Our hostess also told her I couldn't eat it. After three or four tries she switched to "just have a little bit." Luckily I'm stubborn and quite willing to stand up for my health. I'm sorry for those of you that have to go through this frequently!
  5. I just say that my being gluten free is from a medical diagnosis, not the fad, and most people are satisfied with that.
  6. I had my first celiac tests done through They can't operate in all states. In my area they actually use the same lab to perform the tests that lots of local doctors use. I don't know if they have the Dgp test available in all areas.
  7. GFR ranges are very strange. We went through this with my husband. Did you notice in Icelandgirl's link that there is no range that is considered good and normal? I just had mine tested and the report said that normal was > 60. As your report says, your value is only a problem if there is other evidence of kidney damage.
  8. My spine is fine, at least fine for my age (has some expected issues for a 61 year old). Still don't know what is causing the tingling. Oh well. At least it has stopped getting worse.
  9. Will do! Thanks to all for sharing your experiences and for your support.
  10. Thyroid tests normal. It appears to be a mechanical problem (compression of nerve), possibly in my back. Next step is MRI. I'm just thankful that it is merely tingling and not pain!
  11. Thank you for the reply and the links. I was tested for nutritional deficiencies when I was originally diagnosed with celiac and was fine (high B12 and folate). My doctor is testing my thyroid, I see her Monday for the results. Tingling in the right foot started while doing physical therapy exercises for tingling in the left thigh, so it may be that the exercises compressed a nerve, but it is getting worse even after stopping the exercises.
  12. I have celiac and am on a gluten free diet, although my DGP level is still slightly elevated. I am having troubles with peripheral neuropathy (tingling) in my feet. Certain positions make it worse, as if a nerve is being pinched. I have a question for those who have had peripheral neuropathy that is related to gluten. Do position and/or activities matter? Or is the pain/numbness/tingling constant?
  13. To answer about dairy: Celiac disease can damage the part of the villi in the intestine that make lactase, an enzyme that breaks down the lactose in dairy products. When lactose isn't broken down it can cause digestive disturbances. You can try eliminating it to see if you feel better. Eliminating it will not affect future celiac testing.
  14. That is surprising. Did you get a number for the EMA result? If a number, it would look like 1:160 or 1:5. Knowing that would let us know how positive the EMA result was.
  15. Having supportive family makes celiac much easier - so you caring so much is wonderful!