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RMJ

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About RMJ

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  1. Thank you for that information! I'm super sensitive and trying to use whole foods plus a few certified gluten free items. This really helps.
  2. Have you been tested for intestinal parasites after being in the foreign countries?
  3. It is always nice to hear of a success, and someone feeling better! Yeah!
  4. Two weeks may not be enough of a challenge. Figure 2 in this paper: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3525791/#!po=33.8235 shows a very slight increase in some antibody levels at two weeks but it really took four weeks for the bigger increase. If you're so sick during the challenge it certainly says that your body can't handle gluten.
  5. I was very surprised that my doctor had the biopsy results a few days (I think 2 or 3) after my scope.
  6. I am not saying they should do more tests. They could easily improve their testing using the same number of samples they test now. They test X boxes and end up with X samples. But they mix everything together (from the X boxes) before taking the samples from that mixture. They should instead test the individual samples from the X boxes.
  7. They pool their samples then test multiple samples from the pool. So if one result was high it would be diluted out in the test results. I think this link is available to nonsubscribers to gluten free watchdog: https://www.glutenfreewatchdog.org/news/gluten-free-cheerios-take-two/
  8. Thank you Nomi2 for your diligence - I'm very sensitive and would feel safe eating your products! "Wild oats" is a slightly vague description. There is more than one species in the oat genus that may be called a wild oat. Regular oats do not contain gluten. As you said, regular oats may be contaminated due to shared trucks/silos/equipment. There is a small fraction of celiacs that react to a protein (that is not gluten) in oats. The amount of that protein varies with the type of oats. I can't find anything to tell me if wild oats would have more or less of that protein than regular oats. In addition, gluten free oats may be created in more than one way. For some manufacturers it means they take regular oats and sort them somehow to remove the kernels of wheat. Others grow them under a purity protocol so that the oats don't have a chance of being contaminated with oats. Hope this helps.
  9. If your son's doctor is saying your doctor didn't test you for total IgA, he's thinking in the wrong direction. Low IgA could lead to a false negative result (looking like a negative when it is really positive). Since you already have a positive result the total IgA result isn't really needed.
  10. The issue from my perspective (several decades as a trained scientist) is that their sampling plan for testing the Cheerios is not scientifically sound.
  11. The risk of a non-celiac getting intestinal lymphoma is extremely tiny. The risk of someone with refractory celiac disease is higher (I think maybe double?) but 2 x extremely tiny is still extremely tiny, and an elevated antibody level is not enough to say you have the refractory version. You could have a repeat endoscopy to look for damage. Are you still having symptoms?
  12. A visible bread crumb is not a small amount to a celiac, it is an amount that can cause severe reactions.
  13. Different doctors test for allergies in different ways, some more scientifically -based than others. Were the same types of tests run 10 years ago and recently? Blood tests looking for allergen-specific IgE or skin prick tests are the most scientifically accepted tests for things like pollen, housedust, molds and pet dander. I used to work in R&D at a company that made such FDA approved tests. Food allergies can be different and I am not as familiar with those. I don't know what you mean by negative or > 10. For the tests we made a higher number would be more positive.
  14. Weight bearing exercise is also good for osteopenia.
  15. Nuts.com has some certified gluten free nuts. https://nuts.com/gluten-free