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RMJ

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About RMJ

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  1. A visible bread crumb is not a small amount to a celiac, it is an amount that can cause severe reactions.
  2. Different doctors test for allergies in different ways, some more scientifically -based than others. Were the same types of tests run 10 years ago and recently? Blood tests looking for allergen-specific IgE or skin prick tests are the most scientifically accepted tests for things like pollen, housedust, molds and pet dander. I used to work in R&D at a company that made such FDA approved tests. Food allergies can be different and I am not as familiar with those. I don't know what you mean by negative or > 10. For the tests we made a higher number would be more positive.
  3. Weight bearing exercise is also good for osteopenia.
  4. Nuts.com has some certified gluten free nuts. https://nuts.com/gluten-free
  5. I was not able to have a biopsy when I first discovered that my celiac antibodies were high. I decided going gluten free was worth it even without knowing how my villi looked, because I didn't want a bunch of autoimmune (against me!) antibodies in my body. You might try gluten free and see what that does to your antibody levels. Just be aware that the antibody tests need to be performed by the same lab in order to compare them.
  6. It usually takes more than 3 weeks on the gluten free diet for antibody levels to go down to normal. However, if your blood tests come back negative, you may want to do a gluten challenge and retest.
  7. Yes, those are antibody tests. The gliadin, tTg and endomysial should be repeated after she has been gluten free for a while (but DON'T go gluten free until the endoscopy/biopsy has been done). The IgA is a control test. Different laboratories use different ranges so to compare, the repeat tests should be done by the same lab as the original ones. And you'll need to find out the reference ranges so you'll know when she is in the normal range.
  8. How was she diagnosed? If she had antibody tests, you can repeat those in 6-12 months to see if they return to normal levels. If not, you should be more careful. I had few if any symptoms, but discovered through antibody testing that I am very sensitive to teeny tiny levels of gluten. One of my antibody levels (Dgp IgA) is still a bit above the normal range. I find out next week if my villi are damaged (doc decided to do an endoscopy since I was due for my every ten year colonoscopy). Visual examination said some villi are blunted, just waiting for biopsy results.
  9. There are two doctors involved and they have different recommendations. I had a colonoscopy 10 years ago and took the medication the morning of the procedure, but all the prep was the night before. If I take it one hour before I start the morning prep that will be too far ahead of the procedure, so I'll take it after, whenever I'm allowed to eat.
  10. My GI is doing an endoscopy along with my every-10-year colonoscopy because some of my antibody levels are still elevated. How soon after the endoscopy can I eat? I need to take some medication that day and am trying to decide if I will take it with water an hour before my a.m. colonoscopy prep (divided prep) or after the whole thing is over. The pills are huge and I'm not sure I can choke them down without food, so I may wait until after but don't want to wait too long either.
  11. Tests made by different manufacturers do have different scoring systems. And some people have higher levels of antibodies than others. Kurasz, did your sister's docs just call it a false positive because it was high? It is possible but that interpretation would worry me unless they had other evidence, such as a negative biopsy. I used to work for a company that made allergy tests, measuring IgE antibodies. My blood (we of course tested ourselves on everything) gave a high positive reading for cat, which we disproved with a skin test. That was a genuine false positive.
  12. Oh, it would be more difficult if your doctors don't back you up. Sorry you don't have a definitive diagnosis from a doctor,
  13. I had my first experience last Friday turning down gluten free food made for me by someone I barely know. Yes, it was very, very kind of her, and she went to extra trouble to buy a gluten free Trader Joe's pie crust, but I only eat baked goods that I make or that are made in a dedicated facility. She claimed to know what Celiac disease is. I can't believe the number of times I had to say "No." Our hostess also told her I couldn't eat it. After three or four tries she switched to "just have a little bit." Luckily I'm stubborn and quite willing to stand up for my health. I'm sorry for those of you that have to go through this frequently!
  14. I just say that my being gluten free is from a medical diagnosis, not the fad, and most people are satisfied with that.
  15. I had my first celiac tests done through www.mymedlab.com. They can't operate in all states. In my area they actually use the same lab to perform the tests that lots of local doctors use. I don't know if they have the Dgp test available in all areas.