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Missylulu83

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About Missylulu83

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  1. Thanks for the replies!! I will know more on Wednesday after my endo/colonoscopy. I was talking with a friend who is a nurse and she mentioned hiatal hernia as possibility. It really makes me wonder. Wish me luck! I'm a little nervous about the colonoscopy prep :/
  2. I'm on my phone so it autocorrects everything and I noticed a few errors. Hoping you all understand my post
  3. I was only positive on the deamidated gliadiin iga. I was told to go gluten-free and see how I do. I had no idea that getting an endoscopy was a big factor in diagnosing celiac. I went gluten-free for 9 months. I did great for about six months with no symptoms or pain. Then out of nowhere I started getting sick again. I never cheated on the diet, I didn't eat out and I only eat whole foods, nothing processed. I ended up getting a second opinion to another GI. He was arrogant, rude and didn't even examine me. My doctors office sent him my records from over a year ago and didn't include my celiac panel. I told him my results and he said "you don't have celiac, you need to be positive on the ttg test for you to have celiac." He pretty much rushed me out the door and didn't give me any advise on how to help me. I decided to go back to the clinic that ran the test , they have me setup for an endoscopy and colonoscopy for next week and I've been eating gluten again. I've been so sick for so long that I can't tell if it's the gluten or other foods making me sick. I hurt everywhere, I have shortness of breath, my pain radiates from my abdomen to my back (gallstones have been ruled out ). I feel like I'm crazy and nobody believes me. My family and doctors seem irritated when I talk about feeling sick because nothing is showing up on blood tests or ultrasounds. Here are my results for my celiac panel. Deamidated gliadin pep ab igg -negative Deamidated gliadin Pdp ab iga- positive - 18 flagged as high - reference range is 0.0-6.1 EUmL Everything else was negative. They did the full celiac panel What else would cause dgp to be positive. Any info is much appreciated. Thanks